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Remembering Henry

Sweet, precious Henry passed away Friday 7/12/19 due to complications from his diagnosis. Henry went peacefully in his sleep, comfortable and happy. At age two, Henry was diagnosed with a rare and severe form of epilepsy. Dravet Syndrome is a genetic mutation in the DNA. For the past three years, based on the diagnosis, his family knew his life expectancy may be short.

Henry was a people person. He lit up any room he walked into and loved giving hugs and high fives to everyone he met. He loved music and playing in the water and going on walks with his family. For the past five months, Henry's seizure control had been excellent and he had been living his best life. The days leading up to his passing, he was at camp in NH with his mom, Sarah, his dad, Paul and his little sister, Tallie.

Henry's family is heartbroken. They could all use our prayers of comfort in this time. This fund will go directly to Sarah and Paul to offset the funeral costs and provide for the family while they are taking time to grieve their baby boy.
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Donations 

  • Ali & Rob Durbois
    • $30 
    • 5 yrs
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Organizer and beneficiary

Stephanie Krist
Organizer
Natick, MA
Sarah Curylo
Beneficiary

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