Rally for Rhett

$22,915 of $40,000 goal

Raised by 302 people in 11 months

20957654_1520260898.6497_funddescriptionAs most of you have heard, Rhett has been diagnosed with Epileptic spasms, also known infantile spasms, juvenile spasms or West syndrome... it is an uncommon-to-rare epileptic disorder in infants, children and adults. We also recently found out that he had a massive stroke before or during birth. It was called a left MCA stroke. Common effects of this stroke are loss or lack of movement and sensation, attention, memory, judgement, perception, speech and vision . Rhett’s Epilepsy has been untreatable with medication. He has now been diagnosed with two types of epilepsy, Infantile Spasms and Focal Seizures with impairment of consciousness. Because of this Rhett has under gone brain surgery called a hemisphereotomy to disconnect the left side of his brain that is triggering his seizures. This will give him a 60-70% chance of being seizure free and off seizure medication for the rest of his life. Rhett will need a lot of therapy and treatment along the way. Life is going to definitely be difficult for the family and your donation will help immensely.

Every donation will be used to help feed the family, buy gas to drive to and from therapy, medications, etc.

Also, pray every day! The power of prayer is important and much needed!

The Keefrider family thanks you in advance for the support and love!

*Shantel (Flack) Keefrider and Brian Keefrider will be accepting funds on behalf of their son Rhett.*
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Rhett's latest EEG showed that Rhett's is having spasms and hypsarrhythmia again. Unfortunately the medication he has been on is not helping him. We are back to square one. Rhett's neurologist wants to treat this aggressively in order to give him some comfort and get his seizures to stop. We are devastated that our sweet boy has to suffer like this for so long. Thank you so much for your prayers and love. We appreciate everyone who has donated to help our family get through this difficult time.
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Rhett is so grateful for all the love and support. You have given him such an amazing chance at life. We can not begin to thank you all enough.
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Rhett's MRI showed that either before or during birth he had a massive stroke. He has devastating damage to the left side of his brain. It was called a left MCA stroke. Common effects of this stroke are loss or lack of movement and sensation, attention, memory, judgement, perception, speech and vision. This type of stroke would be completely devastating to an adult, but a baby has the ability to rewire some of the damage. The brain damage is the cause of Rhett's seizures. He will continue on the ACTH injections to stop his seizures. He will need cognitive, motor and many other therapies to get him through his life. The doctors are impressed with Rhett already only being a little behind on his milestones. The right side of his body shows sign of the stroke but with therapy can hopefully get stronger and stronger.
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Read a Previous Update
Michelle Keefrider Terrio
11 months ago
1
1

Thank you to everyone who has prayed, given financially, and who is supporting my nephew and his family in any way they can. We are so appreciative of and overwhelmed by your love and support!

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$22,915 of $40,000 goal

Raised by 302 people in 11 months
Created June 5, 2017
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SA
$100
Sandra Avayou
5 days ago

Hoping for a miracle for this beautiful baby boy.

$50
Anonymous
13 days ago
DB
$50
Diane Bridi
13 days ago

Sending love and hugs to Rhett.

CG
$200
Cory Grimes
1 month ago

Praying for Rhett and sending much love to him and your family.

$100
Anonymous
1 month ago
PP
$50
Patrycja Piescik
1 month ago

I recently gave birth to a baby boy and I cannot imagine the pain you must feel for Rhett. He will be in my prayers.

Michelle Keefrider Terrio
11 months ago
1
1

Thank you to everyone who has prayed, given financially, and who is supporting my nephew and his family in any way they can. We are so appreciative of and overwhelmed by your love and support!

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