Brayden's Fight against Bronchiectasis
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My name is Cassandra and I have a 19 month old son named Brayden. When Brayden was 5 months old he started having problems with his ears. By the time April 2014 came around he had already had 3 double ear infections so at just 7 months old he received his first set of tubes. Afterwards we noticed he started getting this horrible wet cough all the time and gagging a lot of days. So he was put on breathing treatments as needed. Throughout the next several months his coughing became more of a routine thing. At some point his dr put him on allergy meds to see if it would help. In between all this he was still having tons of issues with his ears, constantly at the dr with infections as well as every couple of weeks he would spike high fevers however we were always told it was a virus. Around 11 months old his breathing issues had became more of an issue and he was having to have more treatments. We were then referred to a Lung Dr. In November 2014 at 14 months old he underwent another Tube surgery, as well as the Lung Dr did a Bronch.
The Bronch came back and told us Brayden had been dealing with a severe bacterial infection in his lungs, and he has severe asthma. He was put on medicine for over a month to try and clear things up. However he still continued to be sick and have coughs and ear infections.
He was also put on an adult dose of an inhaler to help with his coughing and breathing.
My husband Matt and I knew something else had to be going on for him to be so sick all the time. Dr's wanted to tell us it was because he had started daycare but we knew he couldn't be getting a virus two times a month when no one else was sick. Eventually his lung dr felt the same way and that leads us to now.
On 3/25/2015 Brayden underwent another Bronch as well as a Chest CT and X-Ray. We were thinking maybe his lung infection was back however we were heartbroken when the dr told us Brayden has a Lung Disease called Bronchiectasis, and tons of scaring from past sickness.
Bronchiectasis is a rare condition in which there is damage to the airways causing them to scar and no work properly carring air in and out of your lungs. It also causes mucus to build up in the lungs and its hard for him to get it cleared out, which leads to more infections down the road. There is no cure for this disease, but with good care and a good treatment plan Brayden should be able to live a normal to him life.
Our Treatment plan right now is to order a Chest Vest, which Brayden will wear daily and it will shake him to keep all this mucus loose and hopefully not cause infections. He will also be put on at least 2 new medicines. We are praying insurance will cover some, maybe all of his Vest however weve been told it's a hard process since it cost anywhere from $10,000 to $20,000.
The dr thinks Brayden's condition could be caused by another Lung Disease called Primary Ciliary Dyskinesia. Sadly we have to wait till his follow up appointment on April 13,2015 to find out if this is the case. I will keep everyone updated on our follow up and what is going on then.
Please keep my son in your prayers, that his coughing and breathing get better and that hopefully he can start being a happy little boy.
Thank You,
Cassandra
The Bronch came back and told us Brayden had been dealing with a severe bacterial infection in his lungs, and he has severe asthma. He was put on medicine for over a month to try and clear things up. However he still continued to be sick and have coughs and ear infections.
He was also put on an adult dose of an inhaler to help with his coughing and breathing.
My husband Matt and I knew something else had to be going on for him to be so sick all the time. Dr's wanted to tell us it was because he had started daycare but we knew he couldn't be getting a virus two times a month when no one else was sick. Eventually his lung dr felt the same way and that leads us to now.
On 3/25/2015 Brayden underwent another Bronch as well as a Chest CT and X-Ray. We were thinking maybe his lung infection was back however we were heartbroken when the dr told us Brayden has a Lung Disease called Bronchiectasis, and tons of scaring from past sickness.
Bronchiectasis is a rare condition in which there is damage to the airways causing them to scar and no work properly carring air in and out of your lungs. It also causes mucus to build up in the lungs and its hard for him to get it cleared out, which leads to more infections down the road. There is no cure for this disease, but with good care and a good treatment plan Brayden should be able to live a normal to him life.
Our Treatment plan right now is to order a Chest Vest, which Brayden will wear daily and it will shake him to keep all this mucus loose and hopefully not cause infections. He will also be put on at least 2 new medicines. We are praying insurance will cover some, maybe all of his Vest however weve been told it's a hard process since it cost anywhere from $10,000 to $20,000.
The dr thinks Brayden's condition could be caused by another Lung Disease called Primary Ciliary Dyskinesia. Sadly we have to wait till his follow up appointment on April 13,2015 to find out if this is the case. I will keep everyone updated on our follow up and what is going on then.
Please keep my son in your prayers, that his coughing and breathing get better and that hopefully he can start being a happy little boy.
Thank You,
Cassandra
Organizer
Cassandra Brown
Organizer
Chickamauga, GA
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