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Help for Josh and family

$1,980 of $1,500 goal

Raised by 26 people in 13 months
Update on Josh, he is still getting sick from his tube feeds which is bad but somehow is still maintaining his weight and even gaining a little bit slowly which is good, his lung function improved a tiny bit but are still very low they say it will take several months to get to a safe enough level to do his spinal fusion surgery but then I was told that when it is done that he will need to have a trach put in and be on a ventilator after surgery for a while now they say that he will be coming home with the trach and a respirator afterwards and they are not sure if he will ever come off of it because his lungs are just so damaged from the spine crushing them for so long. I'm told that when it's closer to time for his surgery that they will go over his survival odds and all possible outcomes and we will have to make a decision then on what to do for sure for him which is an impossible decision. He is happy and playing still now and it's hard to imagine all that is wrong with him when you watch him, he has had so much go wrong in his short little life and has overcome so much so I just pray and ask everyone else to pray for him too that by some miracle he makes a turn around and can make it through all of this because as of right now the doctors says the odds are against him. I'm just numb right now and have no more tears left in me and have had so many seizures since has all started that I'm pretty sure my brain is fried but I do know that Josh is strong and a fighter and hopefully that will help get him through and I know that I will fight with my last breath to keep him going thanks to my mom who taught me how to be strong and never give up. So I just ask for prayers for him to make it through and for me to keep going for him we will keep God by our sides and just let him show us the way. Thank you all who has stood by us and pray for us I appreciate all of you.. ❤❤ Josh has begun his hospital stay, he had his first surgery and we will be in the hospital for 6 months to a year. He has been placed in traction in the hopes of straightening his spine and relieving the pressure on his lungs so he can have the rods placed in his spine, they tell us without the surgery he won't make it but he is not able to have the surgery now or he won't survive that either. So far we are a month in and the traction seems to be working he just needs a lot of time for his lungs to get strong and he needs to gain a lot of weight. So we are 4 1/2 hrs from home and in need of help for the expense of staying here for that length of time. Also we need all the prayers we can get for Josh to come through all of this well and healthy.
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New update, Josh had a GJ tube placed and he is now gaining weight but since nothing now goes into his stomach so he now gets horrible dry heaves daily. His lungs are no better and is still unable to have his spinal fusion surgery, the doctors say now that they are running out of hope that he will not survive so they let us bring him home in his traction, trilogy breathing machine, oxygen, feeding pump, and bunch of medications, they said they wanted him to be home to try to be happy and enjoy his home while he can until they have no time left then they will have to try the surgery no matter what just to have a tiny chance of living. So now we have to drive him 4 1/2 hrs to be checked up once to twice a month. So right now my goal is to do anything and everything to try to get him better and to do whatever possible to keep him as comfortable and happy as I can. Thank you all for any and all help and for your continued prayers. ❤❤







Update on Josh, he is still getting sick from his tube feeds which is bad but somehow is still maintaining his weight and even gaining a little bit slowly which is good, his lung function improved a tiny bit but are still very low they say it will take several months to get to a safe enough level to do his spinal fusion surgery but then I was told that when it is done that he will need to have a trach put in and be on a ventilator after surgery for a while now they say that he will be coming home with the trach and a respirator afterwards and they are not sure if he will ever come off of it because his lungs are just so damaged from the spine crushing them for so long. I'm told that when it's closer to time for his surgery that they will go over his survival odds and all possible outcomes and we will have to make a decision then on what to do for sure for him which is an impossible decision. He is happy and playing still now and it's hard to imagine all that is wrong with him when you watch him, he has had so much go wrong in his short little life and has overcome so much so I just pray and ask everyone else to pray for him too that by some miracle he makes a turn around and can make it through all of this because as of right now the doctors says the odds are against him. I'm just numb right now and have no more tears left in me and have had so many seizures since has all started that I'm pretty sure my brain is fried but I do know that Josh is strong and a fighter and hopefully that will help get him through and I know that I will fight with my last breath to keep him going thanks to my mom who taught me how to be strong and never give up. So I just ask for prayers for him to make it through and for me to keep going for him we will keep God by our sides and just let him show us the way. Thank you all who has stood by us and pray for us I appreciate all of you.. ❤❤
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Josh's condition had gotten worse and now his breathing has diminished to the point of surgery being to dangerous but without it the doctors are telling me he won't make it, so they are doing everything they can to bring up his breathing functions to try to help him and be able to do the much needed surgery. We have a lot more trips out of state to go getting him ready then we will have our 3 month stay at the hospital but now he will have to be put in ICU and I will have to find other staying arrangements to be able to be with him, so we are still asking for any donations possible to help get him and I to his appointments and for me to be able to be with him. Thank you and God Bless
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Josh's condition had gotten worse and now his breathing has diminished to the point of surgery being to dangerous but without it the doctors are telling me he won't make it, so they are doing everything they can to bring up his breathing functions to try to help him and be able to do the much needed surgery. We have a lot more trips out of state to go getting him ready then we will have our 3 month stay at the hospital but now he will have to be put in ICU and I will have to find other staying arrangements to be able to be with him, so we are still asking for any donations possible to help get him and I to his appointments and for me to be able to be with him. Thank you and God Bless
+ Read More
Josh's condition had gotten worse and now his breathing has diminished to the point of surgery being to dangerous but without it the doctors are telling me he won't make it, so they are doing everything they can to bring up his breathing functions to try to help him and be able to do the much needed surgery. We have a lot more trips out of state to go getting him ready then we will have our 3 month stay at the hospital but now he will have to be put in ICU and I will have to find other staying arrangements to be able to be with him, so we are still asking for any donations possible to help get him and I to his appointments and for me to be able to be with him. Thank you and God Bless
+ Read More
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$1,980 of $1,500 goal

Raised by 26 people in 13 months
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JM
$10
Jack Morrissey
4 months ago
JM
$20
Jack Morrissey
4 months ago
ME
$10
Matthew Erwin
5 months ago
DF
$25
Dave Faford
5 months ago
LP
$110
Luis Pallares
5 months ago
JB
$10
Joseph Bruno
5 months ago
KP
$1,000
Kevin Potts
5 months ago
BT
$55
Bryan Truong
5 months ago
SE
$20
Sarasvati Edmon
5 months ago
$20
Dale Brennaman
5 months ago
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