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Pulling for Tyler

$1,855 of $5,000 goal

Raised by 25 people in 13 months
Created October 19, 2017
Tyler is a sweet boy who Loves hugs and Sponge Bob. He has autism and is mostly non-verbal, but he is still really good at making sure everyone is wrapped around his little finger. A few weeks ago, Tyler and his family had to face the scariest battle of his entire life. Here is what his mom has shared about it:
Hi All...Some of you are already aware of this, but, here goes...
Without going into gory, long-winded details, my little boy has been critically ill in the hospital since September 27th. He had been not feeling well for a little bit, and no one could really figure out why (for those unaware, he is autistic and mostly non-verbal). It got bad enough that on the night of the 26th, I called 911 and had him taken to the ER. After several blood tests and an initial tentative diagnosis of leukemia, he was rushed to a Los Angeles hospital, where it was determined that what he actually had was that awful, horror movie stuff that you see on the news - that flesh-eating bacteria that 'other people' get, the exceedingly rare infection that you always feel so bad about people dealing with. He not only had this crap, but he had it internally - all throughout his little body. They raced him into a 4 hour surgery, where they had to remove massive chunks of my baby, from both his outside and inside. They told me I came to within 24 hours of losing him.

So it's been the longest 3 weeks of my life, with probably another 3-4 weeks in the hospital and then months of recovery at home. He seems to be through the worst (life-threatening) part of this, now it's reconstruction and recuperation. He's in Children's Hospital in LA, so I know he's in the best of hands. That's about an 80 mile drive from our house, so we've been staying at the Ronald McDonald house, but we still take turns coming home every 2 or 3 days to care for my mom and our needy dog. Everyone has been amazing - friends, family, Tyler's teachers and classmates - and for those of you who've already been with us every step of the way, I want to thank you from the bottom of our hearts. For those of you to whom this is news, prayers are appreciated (or just happy thoughts, if you're not inclined towards praying). This has been devastating - physically, emotionally, financially - but we're doing our very best, and I just wanted to bring everyone up to speed. Every time someone says, "How's Tyler?", not aware of the situation, it gets a little harder to explain things one at a time, so I just decided to put this out there for those who are interested. Thanks for listening...anyone who'd like more info (yes, I'm aware I lied about not being long-winded, sue me)Love and hugs to everyone. ❤️

This sweet family needs all the help we can give them with love, prayer and financial support (for travel expenses, food, time off from work, etc).

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I know it’s been a while since there has been an update, so, here goes...
Tyler was able to go home for Christmas and has been home since then. He requires round the clock care and is still not ready to walk on his own yet, so he is using a wheelchair. He was scheduled for surgery yesterday to fix some of the damage from the infection, but it was cancelled at the last minute (that is what the picture is from). All in all he is doing much better though he still has a long road of recovery ahead.

Right now the biggest struggle for this amazingly strong family is that Greg (Dad) is out of paid time off and the medical bills have started rolling in (the first big one came on Christmas Eve ). If you are able to bless this family in any way, please do.
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Update from Tyler’s mom:
Hi All,

Just a quick Tyler update for those who are interested - he had a 4 hour skin graft operation this past Tuesday, to close the wound as best they could, and now we wait. They have to basically leave it alone for several days, so on Monday, they will check it to see how well it 'took' - they consider 80% coverage to be success, it seems as though 100% is too much to hope for. Basically, the higher the percentage, the smaller the remaining wound will be. A smaller amount of coverage means a larger remaining wound (god I hate that word!), which means much more treatment and likely much longer in the hospital. So for the next 2 days, it's just waiting and praying, much as the past 30 days have been. Separate from the skin graft, he will still need future surgeries to repair the internal damage, but that's further down the road.

Thank you from the bottom of our hearts for all the thoughts, prayers, well wishes, gofundme donations and love, it is all appreciated more than you can ever know.
I will post updates as I have them, and hopefully have more information on Monday. I'm posting this pic of Tyler in younger, happier days - the ones of him in his hospital bed don't really represent my happy, healthy little boy, who I'm hoping will be fully back with us soon. Love and hugs to all. ❤️
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Update from Tyler’s mom:
Hi all, just a quick update to let you know skin grafts officially start at noonish tomorrow. Thisll be the first of many to put my baby back together, so ill let you know how it goes and whats next. As always, prayers are much appreciated. ❤
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$1,855 of $5,000 goal

Raised by 25 people in 13 months
Created October 19, 2017
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