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Help Save Alicia

$7,596 of $35,000 goal

Raised by 179 people in 1 month
My daughter, Alicia, age 32, was diagnosed with a very rare, but dreadful, debilitating painful disease, called Calciphylaxis about 6 months ago.  At the time of her diagnosis, this is something we had never heard of before.

We live in Louisiana, and we are finding out at this point, and after considerable progression of this disease, that the physicians here are not experienced with treating Calciphylaxis.

As her mother, I feel helpless, because I feel like there is nothing I can do to help her. To sit in her hospital room and hear her cry out in pain is torture and I try to stay strong, especially in front of her, but it is extremely hard.

My daughter is a fighter, and right now, she is fighting for her life.  Alicia has a 12 year old son that needs his mom, and he is the main reason she is fighting so hard to stay alive.

Although Calciphylaxis has been classified as terminal, there are many success stories of patients that have been healed, but they have been treated by physicians that are much more experienced in treating this disease.

We have hired a patient care advocate to assist us with finding expert care for Alicia.  After speaking with personnel at some of the facilities where we are seeking treatment, I found out that expenses for her medical care will greatly exceed what her insurance will cover. These facilities are all located out of state and even having her air lifted will be expensive.

Alicia will need numerous debridement surgeries, so our family would have to relocate for a minimum of 3 months, could be much longer.

We are asking for a lot of prayer.  We are also hoping that  you can make a donation to help with medical expenses and relocation expenses for the family. Any amount will be appreciated, no matter how large or small.

If you cannot make a donation, then please say a prayer for her, and either way, can you please share, share, share this post.

I have included a photo of Alicia and her son, Kameron.

Please help us save Alicia’s life.

Thanking you in advance!
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My daughter lost the fight for her life yesterday. It breaks my heart that she fought so hard all the way to the end. With all the suffering she was enduring, she still wanted to live.

As her father and I held her hands, she drifted off peacefully after I told her, “Don’t worry about Kameron. We will take care of him. Kameron will be alright.” It’s the hardest thing I’ve ever had to do in my life, to just watch her die. She left here peacefully and was not in pain. I have to keep telling myself, she’s not suffering any more and that’s best. We wanted her here with us, but God wanted her more.

We are setting up an educational fund for Kameron, so all future donations will be forwarded to his educational fund.

Thank you all from the bottom of our hearts for all of your support, prayers and donations. We did get her to the best hospital in the US, and they really, really gave her the best care all the way to the end, but it was just a little too late.

Please continue praying for this family, especially Kameron. Pray that we find strength and understanding in all of this and that God helps us through it. Love y’all.
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Praise God! Alicia has arrived safely at Massachusetts General Hospital in Boston. We really appreciate all of the support you have given us along with your prayers and your donations. This is going to be a long road to recovery for her, so we are still asking you to continue praying and please, if you can find it in your heart to make a small donation, please do so. I will keep you guys posted as she make progress in her recovery.
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This is another update regarding Alicia. We really thank everyone for your generous donations. I am really pleading for continued support. I just found out that Mass General does have a bed and is waiting for Alicia. They will air lift her at 9:00 am tomorrow morning, but the cost is $30,000.00 and it has to be paid today. I’m hoping and praying that God will make a way somehow. This is an effort to save my daughters life so I am really pleading for help, and please continue praying.
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Praise God. Dr Nigwekar of Massachusetts General, who specializes in Calciphylaxis, has accepted Alicia as a patient. Please continue to keep her in your prayers. Please pray that she arrive safely and remain in stable condition.

The outpouring of love and support for Alicia has been overwhelming and really bring me to tears. Thank you so much to everyone that is praying constantly and that has already generously donated to this fund to help her. We thank God for you. I will keep you all updated on her progress as God graciously lead us on this new journey, a journey that He has orchestrated.
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$7,596 of $35,000 goal

Raised by 179 people in 1 month
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$15
Anonymous
5 days ago
$75
Anonymous
14 days ago
DG
$25
Danny Gorr
16 days ago
DU
$30
Demeka underwood
17 days ago
TT
$20
Timothy TYLER
17 days ago
TH
$100
Tran Hoang
17 days ago
DS
$25
Danny Sananikone
18 days ago
$25
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18 days ago
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19 days ago
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