Support for Cadence and Asher

$3,240 of $25k goal

Raised by 38 people in 24 months
Jennifer Adams Biddle
on behalf of Lori Adams
 MURFREESBORO, TN




A few months ago, my nephew, Cadence, was thought to have hearing problems. The results of testing revealed a more devastating diagnosis called MPS II (Hunter Syndrome), a rare genetic disorder that results in a missing or faulty enzyme needed to break down complex molecules in the body. The buildup of molecules causes various symptoms, many of which are life-threatening and quality of life interfering (e.g. respiratory difficulties, cardiovascular problems, progressive hearing loss, etc). More information about this disorder can be found at  http://mpssociety.org/mps/mps-ii/ . 

After Cadence was diagnosed, it was recommended that his younger brother, Asher, also be tested though he had no obvious signs of the disorder. He was diagnosed with MPS II also. There is no cure.

There is a new medical treatment that is believed to slow the progression of the disorder and greatly improve quality of life. It is an enzyme replacement treatment called Elaprase. The treatment averages $300,000 to $500,000 per year, per child. More information can be found at  www.elaprase.com. The boys have had ports surgically implanted and will begin receiving treatment within the next few weeks.

This news has been devastating for our family. The diagnosis means having to experience the loss of my nephews living the kind of happy, healthy life most people are afforded. We want to make sure they have the kind of life that is worth living for them  - to make their lives as happy as possible.

My brother and sister-in-law, Mike and Lori Adams, are driving over 200 miles per weekly visit to the hospital. Funding will help with the cost of transportation, including a reliable car (theirs is on its last leg!), cost of medical expenses such as Elaprase treatment, occupational therapy, speech therapy, and physical therapy. With two boys who have MPS II, it is impossible to have 2 incomes and to ensure medical needs are met.

Every dollar will help. Please help me in supporting my brother and his family. We will be eternally grateful for any help you can offer.
+ Read More
Be the first to leave a comment on this campaign.

$3,240 of $25k goal

Raised by 38 people in 24 months
Created March 17, 2015
Jennifer Adams Biddle  
on behalf of Lori Adams
MF
$100
Mary Alice Franklin
28 days ago

<3

RM
$30
Robert Mancinelli
4 months ago

Wishing you all the best!

PB
$100
Patrick and Mel Van den Bergh
5 months ago

Glad to join the effort in supporting the boys! We know, are friends with your Mom (Susie) here in Yorktown Heights!! Keeping you all in our prayers!!!

$20
Anonymous
21 months ago
$20
Anonymous
21 months ago
KB
$250
Kevin Brady
22 months ago
DK
$100
Dee Kidd
23 months ago

Stay strong! Donation to help in honor of Ryan Duffy

KS
$50
Kristin Swanson
23 months ago

Sending continued positive thoughts, prayers, and strength to your family, Lori

$75
Heather Grant
23 months ago

Lori, Sending many prayers of hope to you and your family. We just love you all at Katz and we pray for you daily. Please let me know if I can ever do anything to help.

VW
$100
Vena Wilson
23 months ago

So very sorry to hear. God bless you all.

Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now

Pledge now, give later.

Pledge Now
You won't be charged for this pledge. We'll let Jennifer know that you have pledged support.
Thank you!
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.