"Out-Thinking Parkinson's" Fund

£3,405 of £5,000 goal

Raised by 80 people in 27 months

SUPPORT THE PARKINSON'S DISEASE EDUCATION & RESEARCH PROGRAMME "OUT-THINKING   PARKINSON'S"

Help accelerate the development of pragmatic and practical solutions for people with Parkinson's Disease and caregivers, from the insider's perspective.

Dedicated to finding working solutions for people suffering from Parkinson’s Disease all over the world.

Through self-experimentation (I have early onset PD myself), and joined-up research, I’ve been able to innovate and develop impactful quality of life interventions which people with PD are finding beneficial. Using these, I have made good progress towards my own progressive symptom reduction, bringing hope back to so many people around the world.

I have gathered a large number of testimonials for this work, which shows that the research and education outcomes are indeed helping many others regain their quality of life too.

I created and maintain a website/blog www.outthinkingparkinsons.com, in order to share freely all the research, and to make the results, outcomes and ideas generated open access for everyone. I’ve never charged anyone, ever, to access the information and knowledge amassed and never will. I also freely contribute to other forums, including the major independent information sharing project “Parkinson’s People ” .

However, I need to generate some funding for this work in order to sustainably continue the research & education programme, as it has now become a full time effort: essentially, this is now my job/career - albeit unpaid! As well as the substanial time I spend on desktop research, sharing and translating science and providing new understandings about the disease via the website and social media, including engaging and helping to develop other Parkinson's forums, it has become quite expensive to continually test out supplement protocols,  develop PD focussed movement recovery therapies, and especially to keep trialling and reporting on the effectiveness of new devices and assistive technologies.

It is my hope that I will be able to cover this funding gap by appealing directly to the people around the world I help, via this crowdfund. The current funding milestone is set at £5000.  Please support the Out-Thinking Parkinson's Fund!

Who Are We?
Dr Gary Sharpe, Phd, is a scientist and engineer by background, diagnosed with Early Onset Parkinson's Disease in 2009. After six years of dying inside, he started "Out-Thinking Parkinson's" in January 2016 in order to pursue pragmatic and practical solutions towards progressive symptom reduction for people with Parkinson's Disease. Today, Out-Thinking Parkinson's has become a major resource, where Gary and colleagues from around the world, who also have an insider's perspective of PD, share their knowledge, philosophies and experience of living well with PD, and, also, record their stories of recovery.

What Do We Do?
Out-Thinking Parkinson's is a Psychoendoneuroimmunology based approach seeking to unlock the conundrums of Parkinson's Disease. We apply and test working hypothesis on Gary, observe and analyze the results. We then optimize the solutions which work and continually integrate new interventions. Progress is fully documented via a video diary. Information is freely shared for the benefit of all People affected by Parkinson's. All our interventions are non-medical, non-surgical and everything in our recipe for recovery can be implemented at home on a daily basis.

Why Do We Do It?
Simply to stop the suffering of People with Parkinson's and their families as quickly as possible. We are not seeking to understand the microscopic details of the disease nor are we looking to develop the science over time scales of years. We are engineering the simplest and most effective solutions that we can find and then freely sharing and documenting our empirical results for anyone else to evaluate for themselves.

Who Is It For?
We are focused on providing information and knowledge for everyone, including People affected by Parkinson's and those involved in their care, therapy and treatment, as well as education for the general public, students and the media.

What's In It for People with Parkinson;s?
Significant reductions in both symptoms and drug-induced side effects. Significant reduction in health and care costs.

Where Are We At?
Having reached a point where Gary had recovered a lot of movement, balance, mental health and speech, together with much improved wellness generally, we began a second phase of Out-Thinking Parkinson's, based on further research which involves Gary seeking to lower his drug burden as much as possible. This was hard going in the initial stages, but using the evidence gathered in the first stage, we were able to show that it really is possible to reduce the drug burden and improve quality of life at the same time. By the end of this phase, Gary had weaned himself completely off of: ropinerole [a dopamine agonist drug]; amantadine [prescribed to counteract uncontrolled movement (dyskinesia) induced by the other medications]; Madopar dispersible  [a fast acting form of l-dopa based drug] . He is now on standard Madopar (l-dopa) capsules only, and most nights he now sleeps through without having to take any drugs, allowing him to have an eight to ten hour "drug holiday". His dyskinesia is signifcantly better contolled. We continue to document the progress.

We have now begun a third phase, having learned in the second stage so much about the role of malfunctions and dysregulations of the entire nervous systems (enteric, sympathetic, para-sympathetic, social engagement). Based on this understanding, we are now both educating as many other people affected by Parkinson's as we can about the Psychoendoneuroimmunological nature of PD, transfering the knowledge of what we've learned, as well as implementing - and having rapid success - with interventions based on these new understandings.

What Does It Take?
A lot of hard work, dedication and intensive practice. Sticking to strict nutrional and supplement regimes. Changing inappropriate coping behaviours. Resolving physical and emotional traumas. Intensive movement therapies, performed with a spirit of Curiosity and Play.  Consistency and persistence with supporting therapies, in particular strategic light therapy and music & dance therapy. The desire to be a calmer, more frivolous, more fulfilled person than who you were before Parkinson's manifested.

What Does It Cost
Nothing. The website is free and open access. The only means of support is via this Crowdfunding Appeal, which we simply ask people who have found our work helpful to consider contributing to.

How Do I Stay Informed?
You can subscribe to our social media channels or sign up to our website notifications, but the best way is to join our Facebook Group and ensure Group Notifications are switched on.

+ Read More
I have included a new update as the new "cover" video for the "Out-Thinking Parkinson's" crowdfund, which demonstrates the year-or-year progessive reduction in symptoms achieved. Please support and share.
Documentary of Symptom Reduction
+ Read More
Thank you so much to Margaret Yo​ for generously supporting me through a monthly contribution. May I ask previous contributors, whom may have benefitted from my work on Out-Thinking Parkinson's​ already, or anyone who feels it is worthwhile, whether they too might consider putting just a little something aside each month to help me keep this crowdfunding campaign alive and kicking? I am currently making a series of "one minute" educational films about and for people with Parkinson's. An example is attached. These are proving very popular and hence I would like to be able to make many more.
+ Read More
Thank you so very much to all the contributors who have helped me reach my second milestone. Here is the laptop I have purchased through your support for me to do my Out-Thinking Parkinson's project work on. It is touchscreen and can be used both in laptop and tablet modes, which helps as my symptoms wax and wane through the day.
"Out-Thinking Parkinson's" Laptop
+ Read More
Thank you to all the 14 contributors who have donated an amazing £405 already, taking me halfway to my second milestone. Please continue to support me to be able to keep on "Out-Thinking Parkinson's" for another year!?
Audio of my blog "How to Love and Care..
+ Read More
Read a Previous Update
Tara Conway
16 months ago
1
1

I have been diagnosed with Parkinson's disease even though I don't have the DaTscan until may 22. I was being tested for multiple sclerosis and have been displaying symptoms for around 3 years, shaking, twitching, rigidity, neck pain and anxiety. I am a 61 year old female. I started falling a lot when losing my balance and had a hard time walking normal,for the past few years my life hasn't remain the same,i almost spent all my money on medical treatment not until i found totalcureherbalfoundation gmail. com online who helped me get rid of this disease,i then started using a Total cure herbal foundation herbal remedies.i start to use their herbal formula which was the best i ever had,i used this herbal remedies for weeks and i can proudly say i fully cure of Parkinson (PD) disease. totalcureherbalfoundation gmail .com

+ Read More
Jackie Potter
27 months ago
1
1

Good luck Gary. I hope you receive the funds you need to continue with the amazing, informative, supportive and inspirational work you have done so far.

+ Read More
Marlon
1 month ago

I was diagnosed with Parkinson's disease nearly 4 years ago, at age 51. I had a stooped posture, tremors, muscle stiffness, sleeplessness, and slow movement. I was placed on Sinemet for 7 months and then Sifrol and rotigotine were introduced which replaced the Sinemet but I had to stop due to side effects. I was in denial for a while as there is no history of PD in my family. I also used amantadine, and physical therapy to strengthen muscles all failed. I decided to adopt a more natural approach and started on Parkinson's Herbal formula from Organic Herbal Clinic, the Parkinson's natural formula immensely helped my condition, i had a total recovery from PD with this natural herbal formula treatment. Organic Herbal Clinic official web site www . organicherbalclinic . com. I feel alive again!!

+ Read More
Lerato
1 month ago

I was diagnosed with multiple sclerosis 1 month after I turned 45. My grandma is 96 and had it since she was in her 20s. I have been on Copaxone, the first year was daily and now I am on 40 mg, 3 times a week. It made a tremendous difference for me. Although the fatigue is what really gets to me. When I do too much, I do start to feel weak. My MS got significantly worse and unbearable Last year, a family friend told me about Organic Herbal clinic and their successful MS TREATMENT, I visited their website ww w . organicherbalclinic. co m and ordered their MS Formula, i am happy to report the treatment effectively treated and reversed my Multiple Sclerosis(MS)), most of the symptoms stopped, I'm able to walk and eat well, sleep well and exercise regularly., I'm pretty active now and my attitude is extremely positive.

+ Read More
Ricardo Daniels
3 months ago

I was diagnosed with multiple sclerosis 1 month after I turned 45. My grandma is 96 and had it since she was in her 20s. I have been on Copaxone, the first year was daily and now I am on 40 mg, 3 times a week. It made a tremendous difference for me. Although the fatigue is what really gets to me. When I do too much, I do start to feel weak. My MS got significantly worse and unbearable Last year, a family friend told me about Organic Herbal clinic and their successful MS TREATMENT, I visited their website ww w . organicherbalclinic. co m and ordered their MS Formula, i am happy to report the treatment effectively treated and reversed my Multiple Sclerosis(MS)), most of the symptoms stopped, I'm able to walk and eat well, sleep well and exercise regularly., I'm pretty active now and my attitude is extremely positive.

+ Read More

£3,405 of £5,000 goal

Raised by 80 people in 27 months
Created January 25, 2017
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
WC
£50
Warren Cargal
8 days ago

thinking outside the box...love it

£30
Anonymous
3 months ago
1
1
£25
Anonymous
3 months ago
1
1
MW
£25
Marva Weigelt
3 months ago
1
1

I appreciate your drive and persistence in healing, as well as the range of your research. What you are uncovering about trauma and the nervous system is useful to so many and makes sense of so much. Thank you.

TF
£50
Talmon Friedlander
3 months ago
1
1

Wishing you much success on this important journey!

RS
£30
Ramona Springer
3 months ago
1
1

Hi Gary, this is Giovanni and Ramona in Calgary Canada. We are pleased to send this contribution to thank you for all the information that you have shared with all of us in the PD community. We wish for everyone to recover from Parkinson's. Sincerely, Giovanni and Ramona

Tara Conway
16 months ago
1
1

I have been diagnosed with Parkinson's disease even though I don't have the DaTscan until may 22. I was being tested for multiple sclerosis and have been displaying symptoms for around 3 years, shaking, twitching, rigidity, neck pain and anxiety. I am a 61 year old female. I started falling a lot when losing my balance and had a hard time walking normal,for the past few years my life hasn't remain the same,i almost spent all my money on medical treatment not until i found totalcureherbalfoundation gmail. com online who helped me get rid of this disease,i then started using a Total cure herbal foundation herbal remedies.i start to use their herbal formula which was the best i ever had,i used this herbal remedies for weeks and i can proudly say i fully cure of Parkinson (PD) disease. totalcureherbalfoundation gmail .com

+ Read More
Jackie Potter
27 months ago
1
1

Good luck Gary. I hope you receive the funds you need to continue with the amazing, informative, supportive and inspirational work you have done so far.

+ Read More
Marlon
1 month ago

I was diagnosed with Parkinson's disease nearly 4 years ago, at age 51. I had a stooped posture, tremors, muscle stiffness, sleeplessness, and slow movement. I was placed on Sinemet for 7 months and then Sifrol and rotigotine were introduced which replaced the Sinemet but I had to stop due to side effects. I was in denial for a while as there is no history of PD in my family. I also used amantadine, and physical therapy to strengthen muscles all failed. I decided to adopt a more natural approach and started on Parkinson's Herbal formula from Organic Herbal Clinic, the Parkinson's natural formula immensely helped my condition, i had a total recovery from PD with this natural herbal formula treatment. Organic Herbal Clinic official web site www . organicherbalclinic . com. I feel alive again!!

+ Read More
Lerato
1 month ago

I was diagnosed with multiple sclerosis 1 month after I turned 45. My grandma is 96 and had it since she was in her 20s. I have been on Copaxone, the first year was daily and now I am on 40 mg, 3 times a week. It made a tremendous difference for me. Although the fatigue is what really gets to me. When I do too much, I do start to feel weak. My MS got significantly worse and unbearable Last year, a family friend told me about Organic Herbal clinic and their successful MS TREATMENT, I visited their website ww w . organicherbalclinic. co m and ordered their MS Formula, i am happy to report the treatment effectively treated and reversed my Multiple Sclerosis(MS)), most of the symptoms stopped, I'm able to walk and eat well, sleep well and exercise regularly., I'm pretty active now and my attitude is extremely positive.

+ Read More
Ricardo Daniels
3 months ago

I was diagnosed with multiple sclerosis 1 month after I turned 45. My grandma is 96 and had it since she was in her 20s. I have been on Copaxone, the first year was daily and now I am on 40 mg, 3 times a week. It made a tremendous difference for me. Although the fatigue is what really gets to me. When I do too much, I do start to feel weak. My MS got significantly worse and unbearable Last year, a family friend told me about Organic Herbal clinic and their successful MS TREATMENT, I visited their website ww w . organicherbalclinic. co m and ordered their MS Formula, i am happy to report the treatment effectively treated and reversed my Multiple Sclerosis(MS)), most of the symptoms stopped, I'm able to walk and eat well, sleep well and exercise regularly., I'm pretty active now and my attitude is extremely positive.

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a £5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.