IT'S BEEN A BAD YEAR! CYSTIC FIBROSIS SUCKS!
Receiving treatment for her Cystic Fibrosis and after many hospitalizations, surgeries, treatments, ICU stays, comas and a hospital transfer our beloved daughter peacefully passed surrounded by friends and family via hospice services on 12/15/2018. She was barely 17. She loved life and spread joy where ever she went. Everyone who has met her said they have been better for it. We were with her daily during her hospitilazation of spending multiple nights straight at the hospital. We were hoping for a Christmas miracle and to have Christina home for the holidays or at least doing well and recovering. As you could imagine the expenses built up, medical, travel, food, things to make her stays more enjoyable. She spend Halloween, her Birthday and Thanksgiving in the hospital. Things also got pushed off at home, small repairs and maintenance that got pushed off turning into larger issues, projects not getting finished. So on and so forth but the main priority was Chrissy, even ignoring our own medical issues to take care of hers. I have recently been diagnosed and hospitalized twice for West Nile Virus and my husband is 100% VA disabled. We are both retired veterans. I took a leave of absence from my job to help see my family through this difficult time and now we are also having to deal with final arrangements for our daughter throughout the holidays. The support, prayer and concern for me friends and the community has been amazing. Now it's time for closure and to get our lives put back together, things have fallen apart the last 5 months. Chrissy will always be with us, remembered and loved. The awareness of Cystic Fibrosis that she spread was amazing and she was able to leave knowing she truly accomplished something important to her. Any help will be greatly appreciated please help us get our lives back together. Thank you.+ Read More
Final picture of Chrissy at rest. Unfortunately as if the on going expenses were not enough. Now I need to deal with final arrangements.
It is with sad regret to have to write this...At 4:45 PM 12/15/2018 Christina Van Der Velden gained her beautiful wings. Fly High Baby Girl! Gone but will definitely never be forgotten. You fought till the very end! We love you Chrissy
Had a second PICC line installed today. Also needed a drain. Tube inserted through the liver and into her gall bladder to assist in draining it. Started more antibiotics for her infected gall bladder as well as the. C-DIF that has taken over in her stomach due to all the good bacteria that had been wiped out by prolonged use of antibiotics.
From the bottom of my heart,I want to thank everyone and anyone who has contributed to Chrissy's campaign. Whether it being a thought, prayer, or donation, it means so much to us. it is so refreshing to know and feel that our family is not in this battle alone. The outpouring of support has been welcome and we are so very grateful to all of you. When things are not so overwhelming, I fully intend to personally thank each and every one of you. Chrissy's story will be aired tomorrow morning on FOX news sometime around 9 am if you are interested in watching it.