Olivia Rae's 8th Birthday for CCA
Tax deductible
Happy 8th Birthday, Olivia Rae!
Dear Family, Friends, & Donators,
This year Olivia Rae Vargas's turns eight! For her birthday, her gift is to donate $8,000.00 to the Children's Craniofacial Association , a national 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. Yes, like our very own Olivia Rae!
This past year our family attended our first Annual Family Retreat & Educational Symposium in Newport Beach, CA. The retreat is held each June to provide individuals affected by a facial difference, their siblings and parents an opportunity to interact with others who have endured similar experiences. The unique weekend retreat allows them to share ideas, problems and solutions and make long-lasting friendships. The format of this weekend allows time to build new relationships and bonds of understanding and caring, which will lend support through both difficult and good times in the future. The weekend begins with a one-day educational symposium followed by visiting local attractions with plenty of time for adults to interact and kids to play.
It’s a time where all people are accepted for who they are, not how they look!
We need your help to insure that people like Olivia are able to continue their ongoing care. It would be an honor on behalf of Olivia 's 8th Birthday if you would please consider Children's Craniofacial Association as a charity organization worthy to receive your donation.
~If you prefer to send a check rather than use this link,
please mail to: Children's Craniofacial Association
13140 Coit Road, Suite 517
Dallas, TX 75240
Check Payable: Children's Craniofacial Association
Check Memo: Olivia Rae Vargas
All donations are tax deductible & will be acknowledged.
Thank you for your consideration.
Olivia Rae's Story
Born February 11, 2008, Olivia Rae Vargas was diagnosed with Treacher Collins Syndrome, (TCS), a rare genetic disorder characterized by craniofacial differences. Although the physical appearance is the most common noticeable feature among many, people who have craniofacial anomalies require just as much internal medical treatment, if not more. Due to craniofacial deformities alone, Olivia has been treated by the following specialists: Plastic Reconstruction, Otolaryngology, Audiology, Ophthalmology, Oral Dentistry, Gastroenterology, Hepatology and Nutrition, Genetics, Psychology Services, General Anesthesiology, Pain Management, Neuropsychology, Feeding therapy, Speech therapy, Nursing and many more.
At 18 months, we thought we lost our Olivia as she was unresponsive just short of 2 hours. In summer of 2009, we lived by her side in ICU for 2 months. By the time Olivia was 3 years old she had spent 1/3 of her life inpatient in hospitals. To date Olivia has undergone 15 major surgeries and 4 are scheduled this coming year. If you think that’s a lot, most children who particularly suffer from TCS, have undergone 30 to 40 surgeries on average by the time they are 8 years old.
Olivia's first surgery is scheduled for February 16th. We ask that you keep her in your prayers.
Warmest Regards,
Suzanne Ashby & Michael Vargas Jr.
Parents of Olivia Rae Vargas
Dear Family, Friends, & Donators,
This year Olivia Rae Vargas's turns eight! For her birthday, her gift is to donate $8,000.00 to the Children's Craniofacial Association , a national 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. Yes, like our very own Olivia Rae!
This past year our family attended our first Annual Family Retreat & Educational Symposium in Newport Beach, CA. The retreat is held each June to provide individuals affected by a facial difference, their siblings and parents an opportunity to interact with others who have endured similar experiences. The unique weekend retreat allows them to share ideas, problems and solutions and make long-lasting friendships. The format of this weekend allows time to build new relationships and bonds of understanding and caring, which will lend support through both difficult and good times in the future. The weekend begins with a one-day educational symposium followed by visiting local attractions with plenty of time for adults to interact and kids to play.
It’s a time where all people are accepted for who they are, not how they look!
We need your help to insure that people like Olivia are able to continue their ongoing care. It would be an honor on behalf of Olivia 's 8th Birthday if you would please consider Children's Craniofacial Association as a charity organization worthy to receive your donation.
~If you prefer to send a check rather than use this link,
please mail to: Children's Craniofacial Association
13140 Coit Road, Suite 517
Dallas, TX 75240
Check Payable: Children's Craniofacial Association
Check Memo: Olivia Rae Vargas
All donations are tax deductible & will be acknowledged.
Thank you for your consideration.
Olivia Rae's Story
Born February 11, 2008, Olivia Rae Vargas was diagnosed with Treacher Collins Syndrome, (TCS), a rare genetic disorder characterized by craniofacial differences. Although the physical appearance is the most common noticeable feature among many, people who have craniofacial anomalies require just as much internal medical treatment, if not more. Due to craniofacial deformities alone, Olivia has been treated by the following specialists: Plastic Reconstruction, Otolaryngology, Audiology, Ophthalmology, Oral Dentistry, Gastroenterology, Hepatology and Nutrition, Genetics, Psychology Services, General Anesthesiology, Pain Management, Neuropsychology, Feeding therapy, Speech therapy, Nursing and many more. At 18 months, we thought we lost our Olivia as she was unresponsive just short of 2 hours. In summer of 2009, we lived by her side in ICU for 2 months. By the time Olivia was 3 years old she had spent 1/3 of her life inpatient in hospitals. To date Olivia has undergone 15 major surgeries and 4 are scheduled this coming year. If you think that’s a lot, most children who particularly suffer from TCS, have undergone 30 to 40 surgeries on average by the time they are 8 years old.
Olivia's first surgery is scheduled for February 16th. We ask that you keep her in your prayers.
Warmest Regards,
Suzanne Ashby & Michael Vargas Jr.
Parents of Olivia Rae Vargas
Organizer
Suzanne Ashby
Organizer
Dallas, TX
CHILDRENS CRANIOFACIAL ASSOCIATION
Registered nonprofit
Donations are typically 100% tax deductible in the US.
