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Oakley Mae's Leukemia Fund

$41,568 of $50,000 goal

Raised by 209 people in 3 months
Created May 25, 2018
In support of Oakley's battle against AML leukemia. We appreciate your prayer support and words of hope and encouragement as we walk along side Oakley in this Battle. We pray that God heals Oakley and that she continues to have strength as she goes thru her chemo treatments. Thank you for your financial support and easing our load as we care for Oakley in the Hosptial and Stetson, Sterling and Maverick at home.


Set up by Anni Blevins (Oakley’s Aunt) for Zach, Shayne, Stetson, Sterling, Oakley and Maverick. Let’s lift them all up
in prayer throughout Oakley’s battle.
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By Zach Poth -
Family and friends—

Yesterday, August 19, 2018, our precious Oakley Mae took her last earthly breath in our arms at home and her next breath in the arms of her Heavenly Father. We are broken and hurting but couldn’t be more thankful that she is singing and dancing and that her little body has been fully restored. She is looking into the eyes of Jesus and there is no safer place to be.

There are not words to convey the level of gratitude we have for each of you as you have poured out your hearts in calls/messages/texts, made yourselves available for any need we’ve had, given of time and resources, and given financially. You have made yourself available to be cooks, house keepers, babysitters, drivers, ranch hands... the list goes on and on. You loved our girl SO well. You loved our family SO well. But mostly, you gave yourself in praying and contending with us for a miracle. Thank you. Your prayers were answered, not in every way that we had hoped, but there have been miracles. There have been more miracles than we can count. We have seen the Lord’s faithfulness and goodness over and over in the last four months.

One of the greatest miracles for us was being able to bring Oakley home to be loved on and surrounded by family. We will cherish those moments forever. The other miracle of these last few days was on Saturday morning. Oakley quit breathing and her heart quit beating in our arms. We wept and prayed and said goodbye, and suddenly, she took another breath. Everyone says they wish they could have just one more day... we were given that gift. One more day of holding her, kissing her, singing to her, declaring life over her and being together as a family. It does not make any part of this easier, but we recognize the gift we were given and are so thankful.

Every moment spent with her was a gift. She was and is a gift. Her life was not for nothing. Your prayers were not for nothing. We believe our time here on earth should always point to Jesus, not a breath wasted. Her life was certainly not wasted. We are amazed at the amount of people that have heard her story and reached out, that have been moved by the power of prayer, relationships that have been restored, hearts that have been softened, and many who have encountered the Presence of Jesus just by being a part of Oakley’s life. Her testimony will live on for eternity.

Our prayer request now is that you would cover our family in prayer. Our hearts are aching and our family is not whole. Please pray for all of the kids, but specifically for Stetson. His heart is broken and there are so many questions... so few answers. Pray that we can figure out how to be present for each other and our children while taking time to process and grieve. We have a journey ahead of us, but we remain confident that Lord is near, our Hope is not lost, He has never forsaken us, and that He will give us peace that transcends all understanding in the days to come. Isaiah 61 says that “He brings beauty for ashes, oil of gladness for mourning, and the garments of praise for despair.” We trust that He will do exactly those things in our home and hearts.

As more details are available for celebrating her life, we will update you all here. Again, thank you so much. Your prayers have been literal life for us these last months and will continue to be as we move forward.

Love,
The Poth’s
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By Zach Poth -
Hello everyone. Sorry to have waited so many days since the last update. The last 14 days have been quite the journey.

The MRI results showed the bacterial meningitis was still present and that there had been some brain damage. In the days following, we met with her care team and discussed what options were available. The short version is this:
-Bone marrow transplant no longer possible
-Continued chemo not available because her health is too poor
-Bacterial meningitis and c.diff (infection in her gut) not responding to antibiotics
-Many side effects from brain damage
The care team had come to the end of their earthly abilities. So... we brought her home. We have a hospice team working with us to help adjust to life at home.

Although the circumstances which led us to having the freedom to come home are not what we had hoped for, we are so happy to have our baby girl home. All six of us had our picture taken on our couch tonight for the first time in 4 months. Just being together is wonderful. We are so thankful. We don’t know what the next minutes, hours, days, or months look like, but we are doing everything we can to be intentional and present in every single one we are given.

Our “plan” now is to continue doing what we have been doing... trusting the Lord, praying and singing, declaring truth and life over her body, and helping her minute by minute in the best way we are able. Her first day/night home was difficult, but we are all adjusting and finding a rhythm. Most of the day yesterday, she had no fever. Thank you Jesus. We are thanking the Lord and celebrating every victory. One of Oakley’s favorite songs is “This is the Day.” So we are learning from her example and rejoicing in each day because the Lord has given us another.

For right now, we kindly ask for no visitors at our home. We are leaning in to one another. After being at the hospital for so long, the quiet moments are very welcome.

Please continue praying with us!!! We are still believing the Lord for a miracle in her body. As we contend for that miracle, please pray that we would have wisdom to make sound decisions, that we would be able to rest (our whole family but especially Oakley) and grace for the days ahead. As much of a blessing as it is to be home, there are hard moments. It is very hard to see our baby girl not thriving. Our hearts are aching yet we know we have hope in Jesus.

Thank you all for everything. We will keep you updated as we are able.

Love,
Zach, Shayne, Stetson, Sterling, Oakley, and Maverick Poth
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August 12th

Hi all. We want to start by saying how humbled and thankful we are. You have loved us so well the past 3 months. I'm amazed at the diversity in the body of Christ. You've shown up with meals, encouraging words, prayers, finances and gifts. You've watched our kids, fed the animals and cleaned our house. You've prayed through the night when we needed to sleep. You have flown across the countries to give hugs. The list is endless! Ohhh we love you all.



Oakley has been in PICU for 8 days now. She is getting treatment for bacterial meningitis. It has been an overwhelming week— physically, mentally and emotionally— for us and her. Bacterial meningitis is difficult to treat in a healthy person with a good immune system, but since Oakley doesn’t have an immune system, the antibiotics can only do so much. The doctors have been giving her white blood cell infusions to help her body fight. Tomorrow, they will be doing an MRI to see how the antibiotics/ white blood cells are affecting the infection, look at her brain and do an overall assessment. Please pray with us for positive results from the MRI.



Tomorrow (August 13), after the MRI, the plan is to take out the breathing tube. She has been successfully initiating breath on her own for the last few days. This will allow her to be a lot more comfortable, and we will be able to hold her. We have missed that so much, and we know she draws comfort from it as well. Pray that everything goes smoothly so that it can stay out. Also, that with the tube out, she is able to rest. She has been at a constant place of unrest this last week. Her body cannot heal without being able to rest.



The MRI and the removal of the breathing tube are our immediate prayer requests. Join us as we continue to believe for total healing in her little body, complete restoration for her brain, and cancer to be gone as well as wisdom for her care team and wisdom for us as parents. And rest. This last week has felt long. We are all exhausted. We all need rest— especially Oakley. Your prayers have carried us on days we couldn’t do it alone. Thank you.



Tonight, we rest our heads on the fact that there is no problem too large or mountain too high or sickness too dire for Jesus. He is our hope and our ever present help in time of need. He is able. We place our confidence in Him. Thank you for contending with us.



Love,

Zach, Shayne, Stetson, Sterling, Oakley and Maverick Poth
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By Zach Poth - 18 hours ago
Thank you everyone for your constant prayer and encouraging texts/calls/visits these last few days. Today was an improvement from yesterday. This is where we are:

Since there has been so much that her little body has gone through the last few days, she was intubated (breathing tube ) on Sunday. When her body is strong enough to initiate breath it allows it, but when/if she needs help, it is available. It also requires her to be sedated. Although this is hard to see, it helps to keep her from getting stressed out or agitated from the multiple things going on, which helps her improve more quickly.

The meningitis is the cause of the pressure that is building on her brain. Since the infection isn’t under control yet, the fluid is having to be drained regularly to keep the pressure down. The doctors put in a stent to regulate the fluid and keep the pressure from building too much.

Today, the doctors removed the 25 electrodes that were on her head to watch her brain function. Her brain is showing definite signs of awake and sleep time and trying to recalibrate itself. These are very positive things.

Prayer Requests:
-The bacterial infection in her system would be gone. Immediately.
-Strength for her whole system. She has been through a tremendous amount these last few days.
-No neurological damage
-Fevers would cease
-Continued wisdom for all of those who are in charge of her care.

We are anxious to hear our sweet girl singing her songs of joy and hope again soon. Thank you for believing with us.

Love,
Zach, Shayne, Stetson, Sterling, Oakley, and Maverick Poth
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A CaringBridge campaign

$41,568 of $50,000 goal

Raised by 209 people in 3 months
Created May 25, 2018
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