Hello, thank you so very much for visiting Noah Jude's page! this page has been put together by Noah Jude's family (Aunties and Grandparents), to help with raising monies for a special little boy, supporting charities which help and assist Noah as well as supporting future projets to help and assist Noah jude.
Noah's Story so far! (written by parents Scott and Gemma)
Heartbreaking and inspiring!
In Dec 2012 when our son, Noah, was just 8 weeks old we were given the devastating news that he had liver disease.
Over the course of the next few months he was tested for a rare genetic condition called Alagille Syndrome. Sadly it was confirmed that Noah did have Alagille Syndrome. This rare condition effects just 1 in 100,000 babies.
Noah has been in and out of hospital during his first 2yrs with complications due to the syndrome. Not only does he have liver disease but pulmonary stenosis of the heart and renal stenosis, with related hypertension.
Noah has been through a lot of operations and In November 2014 Noah lost a kidney and spent time in intensive care unit. This little guy and so many others like him really are amazing.
Noah Jude, is a beautiful two and a half year old little boy, Noah requires around the clock care, to sooth aches, pains, itching, irritations, medications and so much more.. it's impossible to imagine his daily routines, nor his struggles, yet Noah is rarely seen without a smile, and has aquired the nickname "Noggatron" from his transformer type ways.
Noah Jude has a feisty and strong personaallity, and his strength is astonishing, from going from intensive care to wanting to be up to play with his cars, which is heartbreaking yet truly inspiring!
Noah's condition is hugely complicated, and serious, requiring continous support from charities, specialists, and of corse his precious mother and father (Gemma and Scott) as well as a close nit family member to assist wherever possible.
Noah Jude day to day
Noah Jude, has many forms of medications, being supplied several times a day, including creams and lotions, the amount is as such that it is needed to be stored throughout various locations of the family home, in each room, and the family car, to be accesorable throughout each and everyday, locations scattered for the quantity and sheer volume of medications being provided.
Noah and his family, (mother, father, brother, and sister) live in a 3 bedroom house, with Noahs condition and severity, Noah shares his parents room, to enable treatment throughout the night, and to be monitored too! Their living space has become limited, and moving is out of the question!
The family love their home, the location and the neighbourhood too, the school and loacal facilities are perfect for the family, which is why staying in their beloved family home is so important to them. Creating space is the most important aspect of their home.
We as a family, would like to thank you for visiting Noah Jude's page, and would be entirely greatful for your donations,
thank you in advance,
best wishes to you all. x
We will keep you all posted!
So just over a week ago, Scott completed the iron man challenge in Wales, which is the second hardest triathlon In the world! Scott was raising monies, for the children's liver disease foundation, which contribute towards Noah Jude's specialised needs. Scott completed the challenge in just over 15hours, which is an massive achievement, which will help him and his family, as well as other poorly children like Noah.
This week, unfortunately Noah has been poorly, and because of his condition, struggles to recover on his own and has required special attention to recover.
Such a brave little boy, and amazing family!
Sending a huge amount of love,
From Auntie Collette!
Thank you everyone for your kind generosity xx