Noah Jude

£2,820 of £10,000 goal

Raised by 56 people in 33 months

Hello, thank you so very much for visiting Noah Jude's page! this page has been put together by Noah Jude's family (Aunties and Grandparents), to help with raising monies for a special little boy, supporting charities which help and assist Noah as well as supporting future projets to help and assist Noah jude.

Noah's Story so far! (written by  parents Scott and Gemma)
Heartbreaking and inspiring!

In Dec 2012 when our son, Noah, was just 8 weeks old we were given the devastating news that he had liver disease.

Over the course of the next few months he was tested for a rare genetic condition called Alagille Syndrome. Sadly it was confirmed that Noah did have Alagille Syndrome. This rare condition effects just 1 in 100,000 babies.

Noah has been in and out of hospital during his first 2yrs with complications due to the syndrome. Not only does he have liver disease but pulmonary stenosis of the heart and renal stenosis, with related hypertension. 

Noah has been through a lot of operations and In November 2014 Noah lost a kidney and spent time in intensive care unit. This little guy and so many others like him really are amazing. 

About Noah
Noah Jude, is a beautiful  two and a half year old little boy, Noah requires around the clock care, to sooth aches, pains, itching, irritations, medications and so much more.. it's impossible to imagine his daily routines, nor his struggles, yet Noah is rarely seen without a smile, and has aquired the nickname "Noggatron" from his transformer type ways.

Noah Jude has a feisty and strong personaallity,  and his strength is astonishing,  from going from intensive care to wanting to be up to play with his cars,  which is heartbreaking yet truly inspiring!

Noah's condition is hugely complicated, and serious, requiring continous  support from charities, specialists, and of corse his precious mother and father (Gemma and Scott) as well as a close nit family member to assist wherever possible.

Noah Jude day to day
Noah Jude, has many forms of medications, being supplied several times a day, including creams and lotions, the amount is as such that it is needed to be stored throughout various locations of the family home, in each room, and the family car, to be accesorable throughout each and everyday,  locations scattered for the quantity and sheer volume of medications being provided.

Noah and his family, (mother, father, brother,  and sister) live in a 3 bedroom house,  with Noahs condition and severity, Noah shares his parents room, to enable treatment throughout the night, and to be monitored too!  Their  living space has become limited, and moving is out of the question!

The family love their home, the location and the neighbourhood too, the school and loacal facilities are perfect for the family, which is why staying in their beloved family home is so important to them.  Creating space is the most important aspect of their home.

We as a family, would like to thank you for visiting Noah Jude's page, and would be entirely greatful for your donations,
thank you in advance,

best wishes to you all. x

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It's all been a bit quiet on here but we are hoping to raise some more funds this year for Noah's page and the Star Appeal at Birmingham Children's hospital. The Star Appeal is for a new Rare Disease Centre which will benefit Noah and many other children like him greatly.
We will keep you all posted!
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Warrior, Like father, like son!

So just over a week ago, Scott completed the iron man challenge in Wales, which is the second hardest triathlon In the world! Scott was raising monies, for the children's liver disease foundation, which contribute towards Noah Jude's specialised needs. Scott completed the challenge in just over 15hours, which is an massive achievement, which will help him and his family, as well as other poorly children like Noah.

This week, unfortunately Noah has been poorly, and because of his condition, struggles to recover on his own and has required special attention to recover.

Such a brave little boy, and amazing family!

Sending a huge amount of love,

From Auntie Collette!

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We have our total from The Noah Jude Rocks event, plus extra donations made after.
Thank you everyone for your kind generosity xx
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So many kind donations!

From the bottom of our hearts!

Thanks you!

Lots of love

Noah Jude, and family
Such an Amazing Day!! "Noah Jude Rock"
So much fun, from King of the castle!
So much love and support from all! xx
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£2,820 of £10,000 goal

Raised by 56 people in 33 months
Created June 27, 2015
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Anne Anderson
27 months ago

£10 from Anne Taylor in respect of my dry September challenge and £20 from our family, a Christmas bonus to bring it to a nice round £2800. xxxx

Brian Evans
28 months ago

Well done Tony, didn't think you'd do it. Taff

29 months ago
Fran adenis
29 months ago

well done Anne - having given up coffee for Stoptober last year, I know how difficult it can be (that was much harder than giving up booze) - so long as the sacrifice goes to a good cause its worth it.

Anne Anderson
30 months ago

This is the total generously given by my work friends as sponsorship for my dry September challenge. Thanks for putting up with me being more grumpy than I usually am - lol ! xx

Trevor & June .
30 months ago (Offline Donation)

Well done Scott on completing your Ironman. Such an achievement.

Karen and Tony Dixey
30 months ago

Well done Anne. So proud of you. Xx

Anne Anderson
30 months ago

Next Dry September donation, half of this is from Jeff and the other half from my friends, Chris & Katie. More promised sponsorship to come in, only 5 more days of the challenge. Lots of love to Noah. xxx

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