Help Kaylene Crewe and her Family
Donation protected
My name is Michelle Crewe
I would like to share my story with you....
Our family consist out of myself Michelle Crewe , my husband Wayne Crewe and our 9 year old son Wayne Jnr Crewe and our 7 year old daughter Kaylene Crewe.
Myself, as well as my husband has been active Police Officers for 14 years now. We wear the uniform and badge proudly and it is an honor to serve and protect. We are well known to society.
Not only do we have a duty to act as peacemakers of law enforcement towards our country and its citizens. But we have the same responsibility towards our family at home.
We used to be a normal happy family. Our house was always filled with laughter and joy. We had many friends and so did both our children. We socialized a lot and life was just perfect.
But our lives changed forever and here is how and why.
Tears flow as I write this to you:
On 18 March 2014, it started as a normal day. We woke up and got dressed in uniform in order to go work. As routine, I walked to our son Wayne Jnr’s room and woke him up to get ready for school. So I moved to our daughter Kaylene’s room to wake her up. I switched on her light and got the shock of my life.
There she was lying in her own vomit, sweat running of off her face and body, she had an extremely high fever and she was swollen beyond recognition. I called out to my husband “Wayne, get the car ready, something is wrong with Kaylene!!!!!”
I picked her up and we ran to the car and chased to the emergency rooms. While chasing to the hospital myself and Kaylene’s brother kept talking to her, in order to keep her awake. We ran into the emergency room and put her on the bed in the emergency room.
At this stage a doctor came walking towards us and without even examining Kaylene yet, he said: “I hope this is not what I think it is”. He asked us to remove Kaylene’s clothes, he called the nurses and ordered them to bring luke warm water, a cloth and suppositories to break her fever. He called the Pathology rooms to send a nurse to come take blood. When the Pathology nurse arrived and she stuck that needle into Kaylene’s arm, Kaylene’s screams filled the emergency rooms, like I have never heard before.
The medication they gave to Kaylene in order to break her fever, calmed her down and the doctor could eventually talk to us. He explained to us that he thinks that Kaylene has a rare kidney disease called Nephrotic Syndrome, that there is 3 stages and none of the 3 has a cure. That he did blood tests to make sure if this is what she has. He carried on saying that we need to be strong for Kaylene if this is what she has. He gave us medication for fever and vomiting, told us to go home and let her rest and that he would phone us with the results.
As we drove home, the car was filled with silence, sadness and confusion. When we got home, we put Kaylene to bed and we did not leave her side. Myself and my husband then decided to Google what the doctor fears it could be. As we read what it is, an unimaginable overwhelming fear took over. How I wish this upon no one. We prayed and prayed for it not to be what she has.
On 19 March 2014 the phone rang and we got the life changing phone call. It was the doctor himself and I will never forget his exact words. He said: “I am afraid that it is Nephrotic Syndrome, pack Kaylene’s bags, enough for at least 14 days, her bed is booked at the hospital and the Nephrologist is waiting for her.”
I packed her bags, but could hardly see through my eyes due to the tears flowing. My husband always being the strong one, sat with Kaylene and tears ran down his cheeks and Kaylene’s brother looked pale and worried. We drove to the hospital in silence and with great fear, not knowing what awaits us.
On arrival at the hospital, we took Kaylene to her booked hospital bed and we were welcomed by the Nephrologist. She explained to us, that a lot in our lives are going to change and that we have to be strong. That she is going to start Kaylene on a kidney treatment, that a dietician will also come and see us. She gave the nurses a bunch of instructions on what to do in regards to Kaylene’s treatment and arranged that a kidney sonar and hear sonar and urine test must be done immediately.
Pathology ward nurses came and took Kaylene to a little room in the children’s ward to draw blood. Kaylene did not want to let go of my hand and had fear and confusion in her eyes. As they drew the blood, I remember her looking at me, tears rolling down her cheeks. Her words after we left that room, “mommy why are you letting them do this to me”. It shook me to my core.
From there we went to do the heart and kidney sonar. I took Kaylene to go and bath and placed her in the bed. Bare in mind, before this day, Kaylene never had tablets in her life.
As the ward sister came walking in saying: “it is time to start the treatment”. I cannot explain the fear and emotions running through us at that stage. Kaylene was traumatized already at this stage, she was scared, sad and confused.
Then her treatments started.
11 Prednisone Tablets
1x One Alpha Tablet
1x Lasix Tablet and Vitamin D Syrup
Low protein diet for life.
No food with salt or sodium is allowed, No canned or processed food, No food containing Citrus, No cheese, no Simba chips, No sun, only 300ml of milk a day. Not too much sugar s allowed also.
In 2015 Kaylene had 3 more relapses and ended up in hospital each time and all the above was repeated. Kaylene became exhausted and we became emotionally drained, seeing what her tiny body had to go through.
When Kaylene had her 4th relapse, she had to undergo a kidney biopsy. The same treatment as above still continues.
However we were told that if she has another relapse, she will be placed on an
Endoxan injection also used to treat Cancer. The medical aid also only covers a portion of this injection.
Unfortunately our medical aid does not cover all her needs, nor do they pay in full for her treatments. We cannot afford her treatment either.
Without this treatment the following can happen:
Acute kidney failure, Atherosclerosis and related heart diseases, Chronic kidney disease, Fluid overload, Congestive heart failure, Pulmonary edema, Infections, Pneumococcal pneumonia, Malnutrition, Renal vein thrombosis and ultimately death.
And to make it even worse doctors’ bills from the Pathology and Nephrologist and Chemist started streaming in.
We approached our medical aid because of the short payments they make and we were told it is unfortunately what Kaylene is covered for and that we must pay the rest in from our pockets.
The Nephrologist refuses treatment without full payment on the bills and without this treatment we will lose her. The Nephrologist calls each treatment as "buying time".
The longer we wait for her to get treated, the more damage is done to the kidneys.
A Security Company stepped up and to help us, they registered a Non Profit Company for Kaylene”s medical treatment and expenses.
I then started a Facebook Support Group for Kaylene, where I post updates, pictures, Nephrologist reports etc. And proof on payments to medical bills etc.
I tried to approach any famous person you can possibly think of to help raise funds to pay the outstanding bills, to no avail. I tried actors, singers, sport stars, without any answers. I approached our friends, some helped and some abandoned our friendship. Some friends merely left, because we could not socialize anymore. And Kaylene lost a lot of friends. People just seem to not care at all.
I am a huge supporter of USA Marines and Veterans and spoke too many of them on Twitter. So I approached them to help me start a Go Fund Me campaign for Kaylene. Having the great hearts they have, they helped me and now we are struggling to reach the much needed target.
So here I am watching how our daughter is fading away slowly and I am begging you for help.
Please feel free to join her Facebook Support Group,
Kaylene Crewe NS Support Group.
https://www.facebook.com/groups/579738552162717/
You can also view her story on YouTube
Kaylene Crewe Nephrotic Syndrome.
https://youtu.be/eNp1X5eQWYM
Please Act Today
What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do?
We can't let this happen. We can't stand by and watch our little girl lose everything she is, suffer unimaginable pain and frustration and ultimately die. What would we tell her big brother in a few years, when the disease has taken over completely? What would we tell ourselves?
Please help support our urgent, lifesaving mission. Every cent counts, but even if all you can do is forward this link to as many people you know, you will have our eternal gratitude.
Regards
The Crewe Family
I would like to share my story with you....
Our family consist out of myself Michelle Crewe , my husband Wayne Crewe and our 9 year old son Wayne Jnr Crewe and our 7 year old daughter Kaylene Crewe.
Myself, as well as my husband has been active Police Officers for 14 years now. We wear the uniform and badge proudly and it is an honor to serve and protect. We are well known to society.
Not only do we have a duty to act as peacemakers of law enforcement towards our country and its citizens. But we have the same responsibility towards our family at home.
We used to be a normal happy family. Our house was always filled with laughter and joy. We had many friends and so did both our children. We socialized a lot and life was just perfect.
But our lives changed forever and here is how and why.
Tears flow as I write this to you:
On 18 March 2014, it started as a normal day. We woke up and got dressed in uniform in order to go work. As routine, I walked to our son Wayne Jnr’s room and woke him up to get ready for school. So I moved to our daughter Kaylene’s room to wake her up. I switched on her light and got the shock of my life.
There she was lying in her own vomit, sweat running of off her face and body, she had an extremely high fever and she was swollen beyond recognition. I called out to my husband “Wayne, get the car ready, something is wrong with Kaylene!!!!!”
I picked her up and we ran to the car and chased to the emergency rooms. While chasing to the hospital myself and Kaylene’s brother kept talking to her, in order to keep her awake. We ran into the emergency room and put her on the bed in the emergency room.
At this stage a doctor came walking towards us and without even examining Kaylene yet, he said: “I hope this is not what I think it is”. He asked us to remove Kaylene’s clothes, he called the nurses and ordered them to bring luke warm water, a cloth and suppositories to break her fever. He called the Pathology rooms to send a nurse to come take blood. When the Pathology nurse arrived and she stuck that needle into Kaylene’s arm, Kaylene’s screams filled the emergency rooms, like I have never heard before.
The medication they gave to Kaylene in order to break her fever, calmed her down and the doctor could eventually talk to us. He explained to us that he thinks that Kaylene has a rare kidney disease called Nephrotic Syndrome, that there is 3 stages and none of the 3 has a cure. That he did blood tests to make sure if this is what she has. He carried on saying that we need to be strong for Kaylene if this is what she has. He gave us medication for fever and vomiting, told us to go home and let her rest and that he would phone us with the results.
As we drove home, the car was filled with silence, sadness and confusion. When we got home, we put Kaylene to bed and we did not leave her side. Myself and my husband then decided to Google what the doctor fears it could be. As we read what it is, an unimaginable overwhelming fear took over. How I wish this upon no one. We prayed and prayed for it not to be what she has.
On 19 March 2014 the phone rang and we got the life changing phone call. It was the doctor himself and I will never forget his exact words. He said: “I am afraid that it is Nephrotic Syndrome, pack Kaylene’s bags, enough for at least 14 days, her bed is booked at the hospital and the Nephrologist is waiting for her.”
I packed her bags, but could hardly see through my eyes due to the tears flowing. My husband always being the strong one, sat with Kaylene and tears ran down his cheeks and Kaylene’s brother looked pale and worried. We drove to the hospital in silence and with great fear, not knowing what awaits us.
On arrival at the hospital, we took Kaylene to her booked hospital bed and we were welcomed by the Nephrologist. She explained to us, that a lot in our lives are going to change and that we have to be strong. That she is going to start Kaylene on a kidney treatment, that a dietician will also come and see us. She gave the nurses a bunch of instructions on what to do in regards to Kaylene’s treatment and arranged that a kidney sonar and hear sonar and urine test must be done immediately.
Pathology ward nurses came and took Kaylene to a little room in the children’s ward to draw blood. Kaylene did not want to let go of my hand and had fear and confusion in her eyes. As they drew the blood, I remember her looking at me, tears rolling down her cheeks. Her words after we left that room, “mommy why are you letting them do this to me”. It shook me to my core.
From there we went to do the heart and kidney sonar. I took Kaylene to go and bath and placed her in the bed. Bare in mind, before this day, Kaylene never had tablets in her life.
As the ward sister came walking in saying: “it is time to start the treatment”. I cannot explain the fear and emotions running through us at that stage. Kaylene was traumatized already at this stage, she was scared, sad and confused.
Then her treatments started.
11 Prednisone Tablets
1x One Alpha Tablet
1x Lasix Tablet and Vitamin D Syrup
Low protein diet for life.
No food with salt or sodium is allowed, No canned or processed food, No food containing Citrus, No cheese, no Simba chips, No sun, only 300ml of milk a day. Not too much sugar s allowed also.
In 2015 Kaylene had 3 more relapses and ended up in hospital each time and all the above was repeated. Kaylene became exhausted and we became emotionally drained, seeing what her tiny body had to go through.
When Kaylene had her 4th relapse, she had to undergo a kidney biopsy. The same treatment as above still continues.
However we were told that if she has another relapse, she will be placed on an
Endoxan injection also used to treat Cancer. The medical aid also only covers a portion of this injection.
Unfortunately our medical aid does not cover all her needs, nor do they pay in full for her treatments. We cannot afford her treatment either.
Without this treatment the following can happen:
Acute kidney failure, Atherosclerosis and related heart diseases, Chronic kidney disease, Fluid overload, Congestive heart failure, Pulmonary edema, Infections, Pneumococcal pneumonia, Malnutrition, Renal vein thrombosis and ultimately death.
And to make it even worse doctors’ bills from the Pathology and Nephrologist and Chemist started streaming in.
We approached our medical aid because of the short payments they make and we were told it is unfortunately what Kaylene is covered for and that we must pay the rest in from our pockets.
The Nephrologist refuses treatment without full payment on the bills and without this treatment we will lose her. The Nephrologist calls each treatment as "buying time".
The longer we wait for her to get treated, the more damage is done to the kidneys.
A Security Company stepped up and to help us, they registered a Non Profit Company for Kaylene”s medical treatment and expenses.
I then started a Facebook Support Group for Kaylene, where I post updates, pictures, Nephrologist reports etc. And proof on payments to medical bills etc.
I tried to approach any famous person you can possibly think of to help raise funds to pay the outstanding bills, to no avail. I tried actors, singers, sport stars, without any answers. I approached our friends, some helped and some abandoned our friendship. Some friends merely left, because we could not socialize anymore. And Kaylene lost a lot of friends. People just seem to not care at all.
I am a huge supporter of USA Marines and Veterans and spoke too many of them on Twitter. So I approached them to help me start a Go Fund Me campaign for Kaylene. Having the great hearts they have, they helped me and now we are struggling to reach the much needed target.
So here I am watching how our daughter is fading away slowly and I am begging you for help.
Please feel free to join her Facebook Support Group,
Kaylene Crewe NS Support Group.
https://www.facebook.com/groups/579738552162717/
You can also view her story on YouTube
Kaylene Crewe Nephrotic Syndrome.
https://youtu.be/eNp1X5eQWYM
Please Act Today
What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do?
We can't let this happen. We can't stand by and watch our little girl lose everything she is, suffer unimaginable pain and frustration and ultimately die. What would we tell her big brother in a few years, when the disease has taken over completely? What would we tell ourselves?
Please help support our urgent, lifesaving mission. Every cent counts, but even if all you can do is forward this link to as many people you know, you will have our eternal gratitude.
Regards
The Crewe Family
Organizer and beneficiary
Michelle Crewe
Organizer
United States
Vernon Hinote
Beneficiary
