New Wheels for Josh

Josh is a 7 year olds funny, goofy and amazing little boy. Joshua also has Alternating Hemiplegia of Childhood (AHC), a very rare genetic condition stemming from improper conversion of energy into the cells and to the brain. Josh experiences seizures, migraines, dystonia (muscle stiffening), Hemiplegia (paralysis), development delay and severe stomach dysmotity. Josh fights everyday to overcome every mountain in his way, and now he needs a little help with his next hurdle. Josh is unable to walk any kind of long distances, this means that he cannot walk around places like the mall, zoo, park, museum and many other places kids love to go. When Josh has a hemiplegic or dystonia crisis he is unable to move his body, sometimes for days at a time!  For years we have used a manual wheelchair to help Josh, but this deprives Josh of any form of autonomy to move himself around. After a year of deciding, and progression of his disease, the time has come to move him to a power wheelchair. With this change we will finally need to purchase a wheelchair accessible van. To date we have always manually lifted his chair into and out of the car which is just not doable anymore. We have a few funding options to help with the finanaical burden but need to clean up with the remaining $20,000 by the end of February when his new chair will arrive. This is a big number but every little piece goes a really long way to helping Josh have the equipment he needs to function to his potential. please feel free to share this link and help us to help Josh reach this goal!!