The Myers Family

$2,705 of $5,000 goal

Raised by 30 people in 32 months
We have spent almost a year trying to get a proper diagnosis on our mom’s condition.  We have been told she suffers from a very rare brain disease, which has caused short and long-term memory loss, is affecting her eyesight, and her language and comprehension is also impaired.    Mom is only 52 and has spent her life as a devoted daughter, military wife and mother of 2 kids; my brother, Thomas and myself.  This past year has been a tiring year of misdiagnosis, 3 long term hospital stays through 4 different hospitals (she is still at the hospital now going on her 8th consecutive week on this visit alone) and although medical is mostly covered we have accumulated a lot of debt with hotel cost, gas, food, dog boarding and there will be the need for future care involving medical staff and assisted living.

In February 2016, it started with mom having a debilitating migraine, which turned into what looked like a diagnosis of stroke/bleeding brain that led to brain surgery in which they extracted 2 brain biopsies to try to get answers on why this was happening. After ruling out a sample of diseases such as mad cow disease, progressive Lyme disease, Alzheimer’s, multiple sclerosis, ALS (Lou Gehrig’s disease), and many more, we are still left with no true diagnosis despite many neurologists, brain surgeons, neuropathologists consult. We were even invited to sit on a medical board with over 40 doctors in a room to diagnose her case in front of us at Vidant Health Medical Center. Even with the Doctors at Duke University, not a single doctor has seen brain scans like hers nor could provide any answers. Her brain is severely damaged and doctors are not sure how if possible to stop more damage .We have witnessed her in seizures, stroke-like states, and more recently a medical induced coma she had to undergo. She is unable to read, write, and walk on her own and is working with multiple therapists to include speech therapy, occupational therapy, and physical therapy at the hospital.

Between myself, brother, dad and my aunt, we have accumulated a lot of debt to ensure mom is well taken care of to the best of our abilities. We know with the past expenses what to expect for the present year so we are asking for your help and continued prayers if you are able to do so. The funds will help supplement future medical needs not covered by her insurance .Any donation will be greatly appreciated. Thank you and God bless.
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Mom was just released from the skilled nursing facility this week . Her Insurance does not cover long term care but we were fortunate to have it cover most of her 3 weeks there . She will need continued 24 hr care at home so we are taking turns staying with her and she seems much happier . Hopefully we will get her brother or sister to move here from the phillipines to assist once we can get the logistics taken care of . Through meds and vitamins doctors are trying to manage the disease the best they can and we are all uncertain of the time and quality of life that lies ahead . The donations are helping pay her medical costs . We want to say thank you for the continued support and prayers . If you would like to visit her just message me and I'll give you more information . Thank you all again we love you
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Through genetics testing via Duke University, Doctors have confirmed that Mom has a rare condition called MELAS. Usually this disorder is found in children. This rare condition produces excessive lactic acid buildup in her body thus affecting her central nervous system causing strokes, muscle weakness/loss, seizures etc. There is currently no cure and hopefully the condition can be better managed . We are waiting to speak with the doctors from Duke to get more information . Hopefully this week mom will be moved to an assisted skilled nursing facility. Will be updating as we receive more information.
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$2,705 of $5,000 goal

Raised by 30 people in 32 months
Created January 3, 2017
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GO
$100
Gordon and Moriah Obermueller
31 months ago

Love you guys

LC
$500
Lamen Collins
31 months ago

With prayers and hope from Lamen and Family.

AJ
$500
Andrea Jaks
31 months ago
1
1

We love you!

SF
$100
Shawn Ferguson
31 months ago
1
1

We will continue sending prayers

SR
$30
Sheena Ross
31 months ago
GA
$100
Ginky Almario
31 months ago
VM
$25
Vanessa Moana
31 months ago

Prayers and thoughts are with the family. May she recover soon and her health.

MJ
$100
Matt Joiner
31 months ago
LF
$100
Lorna Fitz
31 months ago

Our thoughts and prayers are always with you and Lots of Love

JC
$100
Jeff courtney
31 months ago

God bless you

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