Charlie's treatment

£6,647 of £20,000 goal

Raised by 124 people in 49 months
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Charlie is my brother

He was diagnosed with crohns at 11 and has been fighting so hard we have had ups and downs from nasal feeding tubes to just  a liquid diet, but he still kept going to school. He even got better GCSE's than me and my other brother put together. He works so hard to live a normal life.

Now we have had a massive down, his current treatment has stopped working (humeria 40mg injections every week using an epipen into his stomach). This treatment had worked  for over 3 years helping  him to live a normal or as normal a life as possible eg; holding down a full time job as well as being an amazing uncle to my children, and a great little brother. The thing is strangers seeing him wouldn't even know he was ill, he  hides it so well.

Without the new medication he will become so unwell that he could be house bound or even in hospital which is where he spend most of December and January.

Charlie has ulcers (like you and I could get in our mouths) throughout his entire colon. The blisters are now also spreading from his stomach up his wind pipe, this means that drinking and eating for him is unbelivably painful. The current medication  was stopping these blisters and ulcers from getting worse and spreading. But with the medication now failing, they have spread so much so that he is loosing weight by the week.  His body can now not obsorb any nurtients from the food he eats and he is now on a liquid supplerment. His colon is now so ulcerated that surgery is not even an option, Charlie now weighs a tiny 54kg.
If I now tell you he is 21 and over 6ft you will understand how ill he is.

The NHS have as good as written him off stateing that it is " NOT COST EFFECTIVE USE OF NHS FUNDS". to pay for the new treatment he needs. This was not just unbelievable but heart breaking to read.
Charlie's current medication which is NHS funded costs over 18k a year but that has stopped working.  At 20k the new medication is just 2k difference, how much is my brothers life worth.

The new medication vedolizumab, he now need is the last resort. Even the NHS stated this in their letter,
The medication comes in the form of a infusion that Charlie will have to go into hospital to recieve through an IV every 6-8 weeks.

Charlie dosent want people feeling sorry for him or  to pity him. He dosen't see why people would  want to  give money, just to help him. But I am asking for you to help  show him that he is a young man that needs our help, He deserves to have and live a full life.

I cant tell my Children that uncle Charlie isn't here anymore for rides in his car, to buy them sweets or just sit and read them a book, Please help me so I dont have too.  But also so that we all don't loose him out of our lives.

So yes I guess I am asking for your money not alot just 50p to anything you have laying around.
You can donate by either.
go fundme page card payments OR
PayPal charliestreatment@yahoo.com

If you want any more information, you can email me cerrie (his big sis) on the above email address or message me or my mum Bea James Marshall on  facebook

 Your support means so much to our little family so please, keep sharing  and Donate what you can every little helps. We need to make uncle Charles better xxxx

http://www.gofundme.com/n5b68s
above is the gofundme page for charlie

Our Mum is already arranging with the hospital how to fund the first course of treatment, and will be paying for it herself. We need to raise 20k for the rest of his first years treatment,

Hopefully then we will have proved the medication is 
"COST EFFECTIVE USE OF NHS FUNDS" and will fund his ongoing treatment.
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What an amazing job everyone is doing thank you so much guys xxx this means everything to us and to charlie xxx
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Wow you are all being so generous please keep up the good work and keep sharing xx
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Thank again to everyone who has donated and shared xxx keep sharing we are getting there xx
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Thank you again for all the amazing donations today wow please keep sharing xxx
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Read a Previous Update
Lisa Sherrington
49 months ago

So sorry to hear about this, I will fund soon when we can financially but in the meantime sharing this with everyone I know to help get it going. Prayers to the whole family!

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Bea Marshall
49 months ago

I would like to thank everyone who has shared this page if you donated as well I can only say from the bottom of my heart thank you. As his Mum I will be funding the first treatment myself as soon as the hospital can arrange how we go about this, as the treatment is £2,000 each time this does not include the hospital costs When you self fund you also have to pay to use the hospital like a private patient would.

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Liam Dedoncker
49 months ago

I don't no Charlie I saw this posted by some one I used to work with and decided to have look out of interest, I'm glad I did. I'm 21 as well was diagnosed with ulcerative colitis a similar condition that only affects the bowel. The condition got to severe but now After spending a lot of time in hospitals with menny operations iv had by bowel removed, im now on the last few steps of getting back on with life. I'm unable to work just yet so have little to give but iv set a reminder on my phone and in a couple of weeks I'll give what I can. Stay strong dude.

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Cerrie Spall
49 months ago

thank you everyone for donating xxxx we now have a facebook page too charliestreatment on facebook please share the page xxxx

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£6,647 of £20,000 goal

Raised by 124 people in 49 months
No Longer Accepting Donations
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Created February 24, 2015
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£627
Raffle Raffle
45 months ago (Offline Donation)

This is the last of the money raised from our raffle bringing the total to £1527 from the raffle thanks to all

MT
£66
mums work raffle tickets
45 months ago (Offline Donation)
PR
£125
Peugeot raffle Raffle
45 months ago (Offline Donation)
YR
£68
Yklsilp Raffle
45 months ago (Offline Donation)
£5
Anonymous
46 months ago
R
£50
Raffle
46 months ago (Offline Donation)
SS
£44
Surrey commercial services
46 months ago (Offline Donation)
SM
£15
Stella Mulholland
46 months ago (Offline Donation)
RW
£83
Raffle Comersual services work
47 months ago (Offline Donation)
RJ
£26
Raffle Nan james
47 months ago (Offline Donation)
Lisa Sherrington
49 months ago

So sorry to hear about this, I will fund soon when we can financially but in the meantime sharing this with everyone I know to help get it going. Prayers to the whole family!

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Bea Marshall
49 months ago

I would like to thank everyone who has shared this page if you donated as well I can only say from the bottom of my heart thank you. As his Mum I will be funding the first treatment myself as soon as the hospital can arrange how we go about this, as the treatment is £2,000 each time this does not include the hospital costs When you self fund you also have to pay to use the hospital like a private patient would.

+ Read More
Liam Dedoncker
49 months ago

I don't no Charlie I saw this posted by some one I used to work with and decided to have look out of interest, I'm glad I did. I'm 21 as well was diagnosed with ulcerative colitis a similar condition that only affects the bowel. The condition got to severe but now After spending a lot of time in hospitals with menny operations iv had by bowel removed, im now on the last few steps of getting back on with life. I'm unable to work just yet so have little to give but iv set a reminder on my phone and in a couple of weeks I'll give what I can. Stay strong dude.

+ Read More
Cerrie Spall
49 months ago

thank you everyone for donating xxxx we now have a facebook page too charliestreatment on facebook please share the page xxxx

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