Ryan's Medical Expense Fund
After 3 weeks the pathology showed that it was a rare cancer called Ewing's sarcoma. Only 200 cases of Ewing's are diagnosed in the WORLD each year. Even less cases are diagnosed when the mass starts in the soft tissue (the kidney). Most cases start in the bones. We found out last Friday, February 20th, that he needs to get started on chemo asap. The first week he will have one, 8 hour treatment. Then in two weeks he will have one 8 hour day followed up by four, 6 hour day treatments in a row. A total of 5 days in a row. One of the drugs he will get after this week long treatment is a white blood cell booster called Neulasta. That one injection alone is $4,500. And that is the pharmacy's cost. If I understand the doctor correctly, he may even have 3 during that week long treatment. He can also get this injection at home just like insulin injections. The reason he will be needing this is because this course of chemo is the strongest that they have available. The doctor has said that it will totally wipe out all of your white blood cells also known as your infection defense system of your body.
In addition to the treatments mentioned above, Ryan may have to complete a total of 50 weeks of chemo treatment. During these treatment days, Ryan will be out of work and unpaid. As many know from experience, medical expenses add up very quickly and we are truly grateful for anything we may be blessed with to go towards these expenses.
We have been married for 4.5 years and we have a beautiful 4 year old daughter and a wonderful 1 year old son. I (Heather) am self employed and own a small hair salon. Ryan is an outside salesperson for HD Supply Whitecap.
You never think this will happen to you. You don't plan for it. You want to keep it as far from your mind as possible. However, this is happening. There is no doubt in our minds that we are going to have a victorious outcome. We are so thankful for what the Lord is doing in this situation and we can't wait to share the testimony after we come out on top. We look forward to sharing our story with you.
God bless you!!
Ryan is doing PHENOMINAL.
Just a little testimony from yesterday to prove this:
Our insurance changed from BCBS to United Health July 1 so yesterday I had a case manager call from U.H. to let me know she was here to help if I have any questions. She said, "I reviewed Ryan's treatment and it appears that he is on some really tough chemo. At least that's my opinion. To my surprise when I called and spoke with Liz (Liz is our doctor's nurse) she said you just wouldn't believe it. When he comes in he is looking so great and he is out fishing when this chemo should have him in the bed for weeks!"
Of course Ryan has bad days but he really has done magnificent.
He has had two scans so far and they have shown NO new lesions. The lesions that are there show that the fluid within them is shrinking. So that's great. We will know FOR SURE that the cancer is gone after his PET scan but they can't do that until after he is done with chemo.
So what's next? Unfortunately there is no proven maintenance drug (except Jesus) according to our current doctor. There is supposedly a pretty high chance that the cancer could come back. (However we have faith and are standing on the promises of God and know that will not be the case here. ) This led me to researching other treatments which then led me to a Dr. at the Cleveland Clinic in Ohio. I've already sent his records. As soon as we get an appointment we will be heading there to hear his advice. He is supposed to be a Ewing Sarcoma expert. And he will go above and beyond if the patient is willing to undergo more treatment. I know that me being led to this doctor was nothing more than being led by God.
Anyway- there you have it.
As always we Thankyou for your prayers, love, encouragement and continued support. I don't know how people do it with no help. I can't wait to return the blessing to someone else when they need a hand.
Blessings to you and our deepest love!
Ryan and Heather
Ryan just finished up a week long chemo treatment last Friday. He did really well. This week he has felt tired and a little less than great but he is hanging in there like a champ! He got some blood yesterday so hopefully that will propel him into feeling even better.
May 4 he will have an MRI to make sure that the lesions in has back have shrunk. We definitely feel like they have (not only because we prayed over his back and we know that God is working in his body) but because he has not been on any pain medicine and Dr. Keedy said that no pain is a great indicator that they are shrinking. When all of this began he was in so much pain that no pain medicine would help.
May 5 we will know the results from the scan and he will also have another chemo treatment.
I have scaled back my work to 3 or 4 days a week to be with my family more and to stay organized and to basically not lose my mind. Lol so if you try to call the salon and can't get me please feel free to call me on my personal phone. 931-307-9182 Also if you could help spread the word about why my salon is closed at random times that would be great! I don't want people to think I'm just never there. ;)
As always, thankyou so very much for your continued support through prayers, meals, money and encouraging calls and texts. You have no idea how you have touched our lives. We love you all!!!
We met with Dr. Keedy this morning before a round of chemo. Today Ryan will get doxorubicin, vincristine and cyclophosphamide. It will take about 6 hours to infuse.
After today he will have another week long chemo treatment starting April 20. April 4 he will have a MRI to determine what the lesions are looking like and to make sure the chemo is working. Dr. Keedy said that the fact that the pain is gone is a very good sign that it is working. (Of course we expected no different. Because we know the healer, JESUS.)
Since he opted to do chemo every 2 weeks versus every 3, we are looking at 28 weeks of chemo instead of 50. Thank the Lord.
We asked her what happens after he has completed the whole round of treatment. Her response was that we just have a look through MRI and PET scans and go from there. Maybe radiation.
STILL standing. Although I know, we know, that this is going on in his body it does not change the fact that this sickness has absolutely no right in his body. In his bones. The Word of God says:
My son, give attention to my words; Incline your ear to my sayings. Do not let them depart from your eyes; Keep them in the midst of your heart; For they are life to those who find them, And health to all their flesh. (Proverbs 4:20-22 NKJV)
Folks, there is a reason why God's word says this. And that is because it is TRUE. When we fix our eyes on the healer and not on the sickness, our bodies will be quickened. They will recover. I can't wait to see this MRI. I'm getting my hopes up because that's what God wants us to do. Have faith!!!!
As always, Thankyou so much for being there for us. Your kind words and extreme generosity is just a true testament as to how good God is. Each one of you have been a witness for him to us during this time and I Thankyou from the very bottom of my heart. I love you all!!!
Today was day two of a week long chemo cycle. This week he gets three drugs. Etoposide (chemo), Ifosfomide (chemo) and Mesna (bladder recovery drug because Ifosfomide is so hard on your bladder). He will have one "one day treatment" on April 7 after he finishes this week and then another week long cycle fourteen days after April 7. After that he will have some tests to see the results on the cancer and to make sure his bladder and kidney are doing.
I know God has a hedge of protection around Ryan. That became clear while in the waiting room we got to talking to another couple. The woman has cancer and has been doing treatments since October. She said that everytime she has a treatment she is in the bed for 3 weeks. When we told her Ryan did so well with his first cycle and then well through this one she looked like she just lost her best friend.
Every day God continues to tell me that this is going to be ok. And to not look at and compare this road of ours to someone else's road and expect the same outcome. Even when it comes to side effects.
Ryan has been a little tired today but that's it. His appetite is crazy, good. We eat the whole time we are at the hospital for 5 hours. (I'm going to gain 100lbs if I don't watch it.
For Chemo he has given me a scripture to stand on. And that is:
And these signs shall follow them that believe; In my name shall they cast out devils; they shall speak with new tongues; They shall take up serpents; and if they drink any deadly thing, it shall not hurt them; they shall lay hands on the sick, and they shall recover. (Mark 16:17-18 KJV)
I truly believe that this Chemo can target this cancer and kill it and that Ryan will not have any side effects or life long ailments because of it. In JESUS name.
You probably get so tired of hearing it but THANKYOU for everything that you do for us. Even down to the messages and texts. I wish you could know how encouraging it is to have help during something like this. It has definitely lead me to reach out to other people more than I used to when they need help.
I love you from the bottom of my heart!!