Hope for the Future
Donation protected
I am a 28 year old living on my parents and families kindness and charity. Despite their willingness and determination to see me healed they have neared the end of their fiscal rope. Ignoring their own bills and needs. Working overtime, making a million sacrifices.
I was diagnosed and treated for Autoimmune Hepatitis in 2008. Despite seeing multiple specialists I never responded to treatment. I now have decompensated liver failure. Conventional medicine only offers me a liver transplant. Which I have decided not to do.
In August I took a turn for the worse. We were talking end of life and hospice. I was in the hospital every two weeks for months with hepatic encephalopathy. Which is basically a coma that left in will kill me as my brain marinates in ammonia my liver can no longer get rid of.
However my mother found a doctor in a city 600 miles away. She is the perfect doctor for me. She diagnosed me as having Lyme's and is treating me for that as well as several coinfections and other deficiencies which could be why I never responded to treatment.
We have been healing my liver with alpha lipoic and glutithione infusions every month, which is an essential part of my recovery. I am slowly regaining my health. My numbers are improving as well as my color, energy and my appearance. I have hope, but the treatments aren't covered by insurance. Or the expense of the trips and my copay on all my hospital bills already buried me. The only disability or funds I get at the moment amounts to 350 a month.
I hope to get to the place where I can work again. But until then I am a burden. The best temporary solution I can arrive at is spreading the cost of treatments and supplements and trips among those who chose to help.
Thank you for reading my story and for anything you may wish to give. Regardless if you would like more information to perhaps help a loved one or yourself in a similar sounding situation. Or just an update feel free to leave a message and I would love to hear from you. The greatest healing therapy is friendship and love.
I was diagnosed and treated for Autoimmune Hepatitis in 2008. Despite seeing multiple specialists I never responded to treatment. I now have decompensated liver failure. Conventional medicine only offers me a liver transplant. Which I have decided not to do.
In August I took a turn for the worse. We were talking end of life and hospice. I was in the hospital every two weeks for months with hepatic encephalopathy. Which is basically a coma that left in will kill me as my brain marinates in ammonia my liver can no longer get rid of.
However my mother found a doctor in a city 600 miles away. She is the perfect doctor for me. She diagnosed me as having Lyme's and is treating me for that as well as several coinfections and other deficiencies which could be why I never responded to treatment.
We have been healing my liver with alpha lipoic and glutithione infusions every month, which is an essential part of my recovery. I am slowly regaining my health. My numbers are improving as well as my color, energy and my appearance. I have hope, but the treatments aren't covered by insurance. Or the expense of the trips and my copay on all my hospital bills already buried me. The only disability or funds I get at the moment amounts to 350 a month.
I hope to get to the place where I can work again. But until then I am a burden. The best temporary solution I can arrive at is spreading the cost of treatments and supplements and trips among those who chose to help.
Thank you for reading my story and for anything you may wish to give. Regardless if you would like more information to perhaps help a loved one or yourself in a similar sounding situation. Or just an update feel free to leave a message and I would love to hear from you. The greatest healing therapy is friendship and love.
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Organizer
Rebecca Jones
Organizer
Fairbanks, AK
