Jamie Sieverson Clishe Medical Fund
Jamie Sieverson Clishe, a dear friend of mine and mother of three beautiful children got sick a little over two years ago. It came on suddenly without warning. She has been seeing the top specialists in Denver at the University as well as National Jewish. She has been traveling back and forth several times a month. She has also seen specialists from the University of Utah. After many tests and surgeries they have discovered many health issues. Jamie has a progessive lung disease, many lung nodules, recurrent infection that antibiotics are not able to cure, an automatic nervous system disease that effects her heart and equilibrium, pectus excavatum, neuropathy, and a rare blood cancer. The most pressing at this point is the blood cancer. Jamie has an monoclonal IGA heavy chain no light chain. They believe it is in association with Amyloidosis. She has had many biopsies looking for the source , as Amyloidosis can hide in the body. It is imperative that they find the source to treat her properly. They have tried many medications and at this point are only able to treat symptoms, which are worsening with time. Her oncologist in Denver has referred her to Mayo Clinic in Minnesota, as the doctor that discovered and named this cancer is there. Traveling back and forth to Denver and Utah over the past couple of years has depleted the families' resources and put them in a financial bind. We are asking for help to get her to Minnesota so she can have a fighting chance at kicking this disease. Thank you so much for your support during this difficult time.+ Read More
After meeting with doctors in Grand Jct and specialists at National Jewish in Denver, Jamie needs once again go to Mayo in Minnesota. Her lung function test has improved since the last visit to National Jewish, which is encouragement that the new medicine is working!!! Please help us get her back to Mayo, with your support and prayers!
Good news, Jamie gets to start her new treatments at the infusion clinic in Delta. Doctors were struggling to find a place that would be willing to administer it, without having to do it at the hospital in Denver. Friday will be the first day. Prayers that it goes well and works with her body. She will be traveling back to Denver August 2nd to meet with pulmonary specialist, and ENT to do more studys on the thickening of her esophagus , swallowing issues, voice, and new pulmonary growths. She will also be meeting with the renal specialist to figure out the cause of her upper extremity edema. Continued prayers please!
Mayo trip went well, didn't really get the answers we were looking for. However, they did narrow it down and let us know everything started in the lungs. There is nothing they can do at this point other than treat symptoms and watch for progression. Jamie got approved for a new medicine, which she will be receiving at St . Mary's in Grand Jct several times a month. It is a very rare, expensive medicine that you have to meet criteria to have. She has been working with National Jewish to monitor and help with symptoms. She has a new onset of pitting adema in her upper extrimities and face. They are looking into the causes of this as it is a typical. Chest xrays and CT scan showed a new growth in the right lung. We ask for your prayers and support during this difficult time.
Jamie is on her way back home from Mayo. She had a wonderful care team working with her. They are still waiting on some pathology slides to arrive from National Jewish, as there are tests they would also like to preform on them. They did start her on some new medicines, they feel might work better. She is scheduled to go back June the 7th and 8th.