Stem cell/ progressive neuro LYME

Hello! My name is Kelley and I live in the Black Hills of South Dakota.  This is a picture of me a few years ago.  I have lost a lot of hair since.  I am 49 years old and started having health problems 16 years ago. I stayed strong for the first nine years and thought  my symptoms were from stress or flu bugs. I developed a tremor of my head which I tried to ignore for a very long time, and at the same time I was constantly sick, complaining of body pain and fatigue. But seven years ago the health problems became too big for me, and I had to give up my full-time job working with emotionally disabled students. I have been going to doctors ever since and living a completely different life. Each year that passes, my body gets weaker regardless of what I do to stay strong. The tremors of my head are progressing; and after two unrelated major surgeries, the tremors are now moving to my left arm and right leg.  Many nights I have a most difficult time falling asleep because I have to wait and pray for the tremor to calm down as I lay my head on my pillow.  My nervous system is completely shot. All of my other health problems are listed at the bottom of this page in hopes that my story may help others who have been labeled a "mystery patient" like me. I have gone to every type of doctor imaginable, and every possible test has been done. Over the years I have been diagnosed with "possible" MS, Fibromyalgia, Chronic Fatigue Syndrome, and an Essential Tremor.

But last November my husband took me to the Mayo Clinic for the third time. The internal medicine doctor tested me for literally 120 different things in my blood. The only thing that came back NOT normal was a positive test for.....

LYME DISEASE

Sixteen years ago I flushed a tick down the toilet that I pulled from my arm. I remember now...I got sick. But my blood tests came back negative when checked before. The bacteria from the tick has affected my body neurologically, and now that it has been living in me for so many years...there isn't anything that can be done that I haven't already tried.  Antibiotics are used initially in the beginning after a tick bite, but even that is not an option for me. I am allergic to tons of medications and have already had a dangerous infection in my colon from antibiotics.

If you feel led to, please help me go to Germany for Stem Cell treatments for Lyme Disease. I am worn out from my head and body shaking, and all of the other problems I have listed below. I have already met the doctor in person, a humble and kind man who has been treating Lyme Disease patients for over 20 years.  His name is Philip Battiade and can be found at www.Infusio.org .   My own blood would be used to grow the stem cells. Also, I have talked with two super nice gals who recently traveled to the Infusio clinic for Lyme treatment.  One is Jennifer and you can follow her story at  Honeychickhomestead.com.  Another is Nancy Brown and is available for phone calls.  Please let me know if you would like to talk with her and I will send you her number.  Thanks a million ladies!    
 
After our trips to Mayo Clinic and all of the other expenses over the years (I also battle skin cancer), we will try this fundraiser and see how the hand of God works!

I thank you from the bottom of my heart! Even if we can find 30,000 people to donate one dollar...I can go. I believe in miracles!!! Will you help me spread the word? God bless us....every ONE of us.

The following symptoms are all ongoing troubles for me, and other than occasional anxiety from time to time....NONE of these symptoms I had before the tick bite. Lyme is caused by a MONSTER bacteria and if any of you out there suffer from any of these symptoms as well...please DO NOT GIVE UP.
I almost did. (Thanks Mom!)

Dizziness, off balance and unstable gait, muscle weakness in all limbs, muscle spasticity in legs and throat (spasticity of the throat affected my voice box and caused me to choke on food for two months), severe panic attacks (in the beginning, two of which paralyzed me for over ten days each), daily muscle pain, severe brain fog, confusion, and memory problems (had neuropsychological assessments done by specialist), periods of trouble with words, muscle heaviness in legs (as if I am wearing a water soaked wet suit, or that I am dragging weights attached to my hips), muscle spasms in thumbs and fingers, periods of tightening in chest (similar to a MS Hug), years of pain in many organs-I like to call them gizzards ;), severe heat intolerance, needle poke/bee sting feelings, pins and needles in hands and feet (neuropathy), white lesions on brain and tons of MRI's, vision problems (ocular migraines, unknown pupil dialation, and nystagmus), TMJ and ruthless jaw pain with headaches and many trips to various urgent cares and dentists, daily handfuls of hair loss, ongoing joint pain, RELENTLESS fatigue, severe allergies (I cannot take medicines other than Tylenol to help with pain or the tremors), ongoing facial numbness and tingling, Restless Leg Syndrome, very low blood pressure and adrenal gland problems (had to go on hydrocortisone at times but reacted to that as well), strong heart palpitations that sent me to the hospital more than once (I have premature PVC's), constant blood sugar fluctuations from low to high, thyroid fluctuations, excessive thirst, dry mouth and dry nose, itchy skin and red bumps, deep pain in bones, confusion on walking (feelings of having to tell my brain to move my legs), floaty high feelings in head, buzzing noises in head that wake me up during the night, zipper sensations in limbs,
AND... swollen lymph nodes.


Thank you Honey, my AMAZING husband....my beautiful-hearted children, all of my super loving family and friends, Dr. Tucker, Dr. Rafferty, Melissa Aberle, Dr. Kuyper and the gang, and most of ALL.....

THANK YOU JESUS.

"God, sometimes I don't understand why you allowed me to have these tremors. I've looked around...A LOT...and very few people have tremors of their head, and especially at my age! Some people, even doctors, think that it's because I'm nervous, or that I have ANXIETY or that I am not sure of myself. I can never hide ANY emotions because they ALL come out in the form of a tremor, even when I am excited or filled with joy. It's EMBARRASSING."

"My child, I am sovereign, and My grace is sufficient for you. There is a bigger part to this picture and My love will carry you through."

I kicked and screamed for a long, long while.

Then finally.....
"Ahhh Lord, I really DO see your love! It's ok God.
I TRUST IN YOU."