Kaitlynn's Medical Fund

Kaitlynn LeBleu, who is 16 years old and is terminally ill.  She is in the hospital fighting for her life as you read this. Kaitlynn has a very rare illness named Leighs Disease. She lost her ability to walk at the age of 6 she has been battling ever since, losing the ability to use her hands for the most simplest of things like eating, drinking, talking on the phone and writing. This awful disease has also taken a large amount of her vision, causing her to wear bifocals for the last five years. She is also fighting Scoliosis which curved her spine to a 78 degree curve. After 8 hours of spinal surgery in 2009 the curve was corrected to 17 degrees with the use of to rods that ran the length of her spine and 28 screws that anchored the rods down to her spine and into her pelvis. Two years later, in December 2013,  Kaitlynn developed a staph infection from her body rejecting the rods. She had to go through another 8 hour surgery to remove the rods and screws. The doctors said that her spine had fused and was still at the 17 degree curve. Recent test show her spine is starting to curve again. Kaitlynn has had many lengthy stays in the hospital due to her chronic pnemonia. In 2013, Kaitlynn was admitted into the hospital yet again, only this time is was due to being in complete respritory failure and a pCo2 rate of 98% after fighting for more than 20 days the worst happened her mother and I had stepped out of her room in ICU being that we had been without sleep for several days. In this ten minute span, when we returned to her room she had coded and stopped breathing.  She had no heart beat either.   We walked into her room to find a doctor up on her bed administering CPR and were forced out of her room into a four by four consult room waiting for the outcome. It was the longest 30 minutes of our lives.  At that moment we were given the choice have the doctors surgically install a trachea tube so she could breathe or risk losing her again. So again Kaitlynn had to have surgery to install the trache tube another lengthy surgery and very risky in the condition she was in. Kaitylynn being who she is, made it through the surgeryand spent another 34 days in Memorial Hermann Pediatric Hospital and then was moved to HealthBridge Rehabilitation Hospital to learn how to 'live again'. When I say live again I mean breathe, eat, talk, drink. Basically what we all need for everyday life. Now everything she drinks has to thickened to a nectar consistency to keep her from aspirating and causing pnemonia. Once released from the hopital life was mostly smooth sailing with a few short hospital stays, emergency room visits and many many dr. appointments. Her room at home is like a hospital room with everything a person with respritory problems would have including a hospital bed, oxygen tanks and concentrator, suction machine and a hospital bed...not your typical 16 year old girls room but she has never let it bother her. See Kaitlynn or KK to everyone who knows her is the most compationate, loving, strong willed, resilient person I have ever met and ask anyone who knows her and they will tell you the same always worring about other people who are sick or have problems even when she is in the hospital. She is willing to give her time and effort to help anyone who needs it always has a beautiful genuine smile that lights up a room or makes someone who isn't doing well feel better instantly. She loves her God and Jesus always saying her prayers for the sick, blessing her food and praying for one day a cure. On October 13, 2015 Kaitlynn went to the emergency room she was hallucinating, talking strange, breathing very shallow and her mother and I knew it was time to see a doctor. When she got to the emergency room they immediatly started antibiotics and oxygen  and we were informed she was going to be transferred and admitted into the downtown Children's Memorial Hermann Pediatrics hospital straight to ICU. By the time she got down town her Co2 rate had risen into the 90% rate and her blood sugar was over 300 which is very high. Over the next few days thing got worse her blood sugar was over 400 and her breathing got very shallow to the point were Kaitlynn was relying on a ventilator to breathe and keep her alive. She was basically in a coma only giving short responces like a hand squeeze or a blink to communicate.  A combination of medications was given and thankfully she woke up and her blood sugar came down.  Her numbers leveled off and she is now in a regular room, but still on several treatments.  Her mom and I are doing everything we can to be with her and in doing so, her mother found herself temporarily unemployed.  I managed to get her to leave the hospital for a short amount of time to decompress.  On her way back to the hospital someone decided that they needed the lane she was driving in more than she did, hit her and then took off!  Needless to say, we need your help.  Parking at the hospital is breaking us by itself and not to mention eating here is getting impossible.Bills don't stop just because your life turns upside down.  Kaitlynn's medical bills are piling up and we need your help as soon as possible.  Please consider donating what ever possible to help us help her.  Thank you in advance for your kindness and consideration.  God Bless.