Support fund for Tom and Rose
Donation protected
On Friday July 15, 2016 after a bone marrow biopsy at the Haemotology Department of Torbay Hospital, I was given the diganosis that I had aggressive acute Leukemia and had weeks to live. The only warning was that I had been feeling more and more exhausted and when strange rashes and glands started coming up I thought maybe I had shingles. Internet diagnosis can be so variable, yet when you are not ready to hear the truth, it gives a break from going straight to the life threatening with all the other benign suggestions……. With this hospital diagnosis after blood tests and bone marrow biopsy , I really got it. When the full prognosis came I could easily understand the weird symptoms and feel my body shutting down rapidly, what on Thursday at the doctors was a count of 30 platelets dropped down to almost non existent levels, just 24 hours later, with internal bleeding massive lumps and extreme infections raging inside my mouth making it impossible to eat.
The best, most effective and fast acting treatment offered by the deeply concerned hospital staff was to be aggressive chemo to start on that Friday….. blasting into the bone marrow and the rest of the body with the strongest known chemicals to fight cancer.
Lying in a small, grey, box of a room, with sealed windows on the hottest day of the year and being told I would have to stay in there for the next six months with just a small break to go home every month filled me with dread…. I decided rapidly dying was a much better option…..
…..Determined to escape that environment, I begged to be let out of that room and go home to my beautiful pink bedroom before I made the decision to agree to Chemo treatment beginning Monday morning……they cautiously agreed…..
Lying in bed at home that night with Tom discussing plans for what would happen after my imminent death I really felt I could go at any moment, my skin popping inside, I could hardly breathe.
The following morning Saturday, I had a couple of moments that turned it all around…one was a beloved friend who invited me too make two lists… one with what makes me feel alive and on the other what doesn’t make me feel alive…
I knew then that undergoing 6 months of chemo in a hermetically sealed room with no colour, nature or flowers, no fresh air, not even a breeze from outside…..I would not feel alive to make it through, yet right there, lying in my bed looking out at the trees and birds definitely was giving me an intense, real sense of being alive, no matter what my symptoms and body were doing.
A message came though from a friend sitting in a café worrying about me not being able to take the chemo… a woman opposite overheard this and began telling how she had the exact same diagnosis 6 years ago and that she had refused the chemo and done loads of other treatments like misteltoe etc and was completely recovered….. she looked glowing and fully alive…It had taken a lot of serious work and over £80,000… suddenly I had hope, maybe I could do it too..
On Sunday my sister Sarah drove me to Yorkshire… a perilous journey but somehow we made it and we are here in the hands of a very precious woman who is privately treating all aspects of the leukemia, physically, chemically and emotionally
I am here being looked after by my extraordinarily kind, beautiful, angelic sister Sarah and staying in a room looking up over the skies and trees watching swifts and swallows play in the air in the day and bats coming out at night in the gloaming……
I am in the thick of it….I can’t eat because of infection in my mouth and gums and I cant really walk or even talk too much. I am writing this now even though it is taking a huge surge of will power, because I want you to help me recover…I want to live fully.
Please give now, I need help urgently in the next two weeks to get through this critical stage when the extreme symptoms of leukemia are marching through my body.
We have been given the contact details of a top oncologist in Harley street who can steer me through all this and it looks like I will have to have some aggressive treatments like misteltoe to attack the cancer cells. There is a lot to be done, we are in the acute violent stages now and need all the help we can get
This is where we are at
Melanie. xxxxxxxx
www.melanieeclare.com
If anyone wants to get in touch, please write a card or note and send it to Cholwell Farm, Darltngton, Devon,
TQ9 6AD
or send supportive messages to Rose and Tom via Facebook… and keep believing…….
The best, most effective and fast acting treatment offered by the deeply concerned hospital staff was to be aggressive chemo to start on that Friday….. blasting into the bone marrow and the rest of the body with the strongest known chemicals to fight cancer.
Lying in a small, grey, box of a room, with sealed windows on the hottest day of the year and being told I would have to stay in there for the next six months with just a small break to go home every month filled me with dread…. I decided rapidly dying was a much better option…..
…..Determined to escape that environment, I begged to be let out of that room and go home to my beautiful pink bedroom before I made the decision to agree to Chemo treatment beginning Monday morning……they cautiously agreed…..
Lying in bed at home that night with Tom discussing plans for what would happen after my imminent death I really felt I could go at any moment, my skin popping inside, I could hardly breathe.
The following morning Saturday, I had a couple of moments that turned it all around…one was a beloved friend who invited me too make two lists… one with what makes me feel alive and on the other what doesn’t make me feel alive…
I knew then that undergoing 6 months of chemo in a hermetically sealed room with no colour, nature or flowers, no fresh air, not even a breeze from outside…..I would not feel alive to make it through, yet right there, lying in my bed looking out at the trees and birds definitely was giving me an intense, real sense of being alive, no matter what my symptoms and body were doing.
A message came though from a friend sitting in a café worrying about me not being able to take the chemo… a woman opposite overheard this and began telling how she had the exact same diagnosis 6 years ago and that she had refused the chemo and done loads of other treatments like misteltoe etc and was completely recovered….. she looked glowing and fully alive…It had taken a lot of serious work and over £80,000… suddenly I had hope, maybe I could do it too..
On Sunday my sister Sarah drove me to Yorkshire… a perilous journey but somehow we made it and we are here in the hands of a very precious woman who is privately treating all aspects of the leukemia, physically, chemically and emotionally
I am here being looked after by my extraordinarily kind, beautiful, angelic sister Sarah and staying in a room looking up over the skies and trees watching swifts and swallows play in the air in the day and bats coming out at night in the gloaming……
I am in the thick of it….I can’t eat because of infection in my mouth and gums and I cant really walk or even talk too much. I am writing this now even though it is taking a huge surge of will power, because I want you to help me recover…I want to live fully.
Please give now, I need help urgently in the next two weeks to get through this critical stage when the extreme symptoms of leukemia are marching through my body.
We have been given the contact details of a top oncologist in Harley street who can steer me through all this and it looks like I will have to have some aggressive treatments like misteltoe to attack the cancer cells. There is a lot to be done, we are in the acute violent stages now and need all the help we can get
This is where we are at
Melanie. xxxxxxxx
www.melanieeclare.com
If anyone wants to get in touch, please write a card or note and send it to Cholwell Farm, Darltngton, Devon,
TQ9 6AD
or send supportive messages to Rose and Tom via Facebook… and keep believing…….
Organizer
Melanie Eclare
Organizer
