Help Mary stop the MonSter

$4,180 of $60,000 goal

Raised by 31 people in 28 months


Please help stop the MonSter

Hello, thank you for finding your way to my page. Let me introduce myself, my name is Mary Cruce. I am 59 years old and have been living with Multiple Sclerosis, MS for 22 very, very long years. My life is like being trapped in a nightmare that you can’t wake up from. The MS MonSter slowly steals body parts until you no longer feel human, dependent on family and friends to meet your basic needs. This is what happened to me and why I need your help to stop the MonSter.

My nightmare began on the morning of the last Saturday in June 1994. I woke up with numbness in both of my feet. I thought I slept wrong and it would just go away. I was wrong. Over the next 2 weeks the numbness crept up my legs like a fog rolling in from the sea. After a MRI I met with the doctor who said “I have some bad news and I have some worse news”. That was the day I learned I had a brain tumor at the base of my brain and “oh by the way you have MS”. The following month I had surgery to remove the tumor and that was that. But then I had to face the second half, MS. That fight would continue for years even decades. I couldn’t just cut it out like the tumor. Over the next 2 decades I have experienced most of the symptoms of MS, numbness, pain, spasticity, imbalance, weakness, and worst of all is the MS fatigue. MS fatigue makes me feel exhausted, unable to move or even think. The fatigue is extremely debilitating. I would become so exhausted from getting ready to go out, I would have to cancel. And like a monster I never know when or how it will attack. I have gone to bed only to wake up not able to move my arms.

I have tried most of the MS medications both injectable and pill form but nothing has stopped the MonSter from progressing. Until now I can’t walk without a device and the fatigue and pain are overwhelming.

But now there is hope to stop the progression of this disease. There is a treatment, Hematopoietic Stem Cell Transplantation, HSCT that has proven to stop MS from progressing. HSCT has been used for the treatment of cancer for years. A simplified version of HSCT is first they would harvest my own stem cells from bone marrow and freezes them. Then I would receive chemotherapy in order to wipe out my immune system. The next step is to reintroduce my own stem cells back into my body in order to rebuild my immune system, (re-boot me if you will). While HSCT for MS is available in other countries it is still under clinical trials here in the USA, and unfortunately I do not qualify for a trial.  

Because time is of the essence I have applied and been accepted to a facility in Puebla, Mexico for a treatment date of July 18, 2016. The cost of the treatment is $54,500 with additional costs of flight and living expense for 28 days. I need your help to stop the MonSter. I am excited and hopeful about the potential to stop this MonSter. I look forward to stopping the MS MonSter.

My family and I sincerely thank you for any level of help you are able to give.

Please help me stop the MonSter.  

Mary
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Well it’s been just a little over three months since my HSCT treatment in Mexico. I’m very happy to report that the improvements I felt early on are still there. The MS fog has lifted and I’m able to think a bit more clearly. I’m able to stay awake longer without any medication or naps. These are just a few of the improvements and I look forward to continued positive changes. Oh, and my hair is growing back, YEA! Again, thank you one and all for your help to stop my MS.
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Hello everyone. Well, tomorrow we leave Mexico and head home. My treatment here is done. This has been an amazing journey. I am currently feeling better than I have in years. I’m able to do things I haven’t in a very long time and it’s all thanks in part to the kindness and generosity of all of you my friends. Just know you have given this girl a new lease on life. For the first time in a very long time I have HOPE about the future and that is priceless. Now the real work begins I have months of Physical Therapy ahead and 5 more rounds of chemotherapy over the next year. I look forward to my continued rehab. I will never forget you my friends that helped to make this possible, a new life. To each I of you I wish love, health and happiness. Mary. Hello
My group from mexico
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UPDATE :) I have finished Chemo!!! I had a rough couple of days with nausea. But with Bob and Heather here I made it through the tough times. In the mean time I had my stem cells infused back into me and feel good after the procedure. All positive thoughts :) Now we spend our time at the apartment while I’m neutropenic (low or no immune system). They run blood tests every other day, I feel like a pin cushion. It has been a long journey and without the help of all of you this could not have happened. I am grateful to each of you and cannot thank you enough for your positive thoughts, prayers and good vibes. Here’s wishing you happiness and good health.
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Well, we are here in Puebla. I want to let everyone know with all your help and support I made it! I'm here with Bob and Heather. I've started the stem cell treatment and look forward to finally stopping the MS madness. Thank all of you for your generosity. I will forever be grateful.
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Read a Previous Update
Kathryn Schlitz
22 months ago

Fred and I are so happy everything has gone well. Have a safe trip home and our prayers will be with you and the family. Fred and Kathy Schlitz

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$4,180 of $60,000 goal

Raised by 31 people in 28 months
Created February 12, 2016
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NA
$100
Nancie Elizabeth Ashworth
14 months ago

Mary! It's Nancie from a zillion years ago. Please let me know if I can help. After all, you are Geoff's aunt and godmother.

AP
$100
Amy Parham
24 months ago
1
1

With lots of love, william&amy

MC
$100
Michael Castrignano
25 months ago
1
1

The lord sent us an angel in Mary. Her strength plus the love and support of her family has carried her this far, she deserves and needs our help for a better future. Please make a donation to help Mary and her family.

CS
$100
Carmen Simanteris
25 months ago
1
1

Wishing you a successful surgery and recovery! Carmen and Nick (golf friends of Sally and Bill)

RB
$150
Rich & Tina Bruno
27 months ago
1
1

Mary-we are friends of Bill and Sally. We hope this will help reach your goal and help you. God Bless

$25
Anonymous
27 months ago
1
1
DA
$200
Debbie & Randy Adger
27 months ago
1
1

We wish you the very best luck Mary if anyone deserves the help it is you 1

TW
$100
Tina Perez Wilson
27 months ago
1
1

Sending Love and positive thoughts to you♥

Kathryn Schlitz
22 months ago

Fred and I are so happy everything has gone well. Have a safe trip home and our prayers will be with you and the family. Fred and Kathy Schlitz

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