Mark's Miracles

$21,741 of $35,000 goal

Raised by 222 people in 75 months
Updated:  May 2019

It has been four years since we took a long trip to Ohio for what we thought was the last time. Recently, we were informed of the possibility of new protocols to treat Mark's primary disease. There is hope that we can find treatment that will give him better quality of life.  The last few months have been a struggle for him. Despite, living his best life always, he lives in  constant pain and side effects of his medications and diseases. Most recently in the hospital for pain treatments and surgery this passed week to deal with the consequences of being sick. We've been trying hard to make it on our own, but continue to go further into debt covering medical bills. In order to make this trip, we are humbly asking for your help.  Any help, is help. We will continue to pay it forward. God Bless You.


Updated: May 2015

Please pray hard. Mark has papilledema, swelling in the optic nerve area for the first time since his emergency surgeries four years ago. He is going blind again. They will be treating aggressively for the next few months. Pray hard.

Updated: April 2015

Mark was hospitalized and endured yet another lumbar puncture. Pressure is still high. Feeling terrible.

Updated: In December 2014, we spent one full month away from home. Ohio ran a trial where unfortunately, mark failed all three phases. We are currently out of options and are simply treated for pain for the next few months.

Updated: August 7, 2014

We just got back from our fourth trip to Ohio. Unfortunately, results indicate he is getting worse. We are doing everything right, and he is not getting better. He was also diagnosed with Enthesitis, a juvenile form of arthritis. At least that explains the increased pain in his lower back and extremities. They have maximized medical therapy for the next four months. At which time, they will decide to do an experimental trial surgery. Please keep the prayers going. God performs miracles. Despite everything, Mark smiles every day and doesn't give up hope.

Updated: February 5, 2014 Mark is a beautiful 11 year old 6th grade Honor Roll student at Winston Park K-8 Center. He has spent the past 3 years of his life fighting against several chronic illnesses. He has had more than a dozen hospitalizations and lumbar punctures to relieve pressure to no avail. He has since been diagnosed with severe Fibromyalgia, Reflex Neurovascular Dystrophy, Chronic Intracranial Hypertension and Chronic Migraine Syndrome. His kidneys and liver are starting to feel the physical affects of his disease and side effects of numerous medications. He needs various types of therapy including daily physical therapy. He and his family travel several times a year to a Pseudotumor Cerebri Clinic in Columbus, Ohio where alternative medical therapy has not yet been exhausted. Mark is humble, wise and incredibly faithful beyond his years.

In response to the mounting medical expenses incurred for Mark's treatment and therapy, we continue to be thankful for all the miralce workers who contribute to his cause.  God Bless You 

Update: October 11, 2013

Mark's visit was very positive.  We learned many new things about his condition including a new diagnoses of Reflex Neurovascular Dystrophy. He is currently stable although a lag in clinical improvement is noted.  His medication was increased but not changed.  The new rheumotologist is fantastic.  He needs a lot of therapy, but we are hopeful.

Update: September 4, 2013

We will be traveling back to Nationwide Children's Hospital in Columbus Ohio on October 8 for additional treatment. Prayers needed.

Updated: July 2013

We took Mark to Nationwide Children's hospital in July 2013, where he was evaluated by a team of experts. His intracranial pressure was up extremely high. Almost a mirror image of the time he had gone blind. After careful evaluation, it is believed that his intracranial pressure is secondary to a systemic illness not yet diagnosed. For this reason, he has begun a new medical treatment, and a battery of tests and therapy in an effort to control the elevation of intracranial pressure before he loses vision once again. Godwilling this will buy some time to discover the true cause of this horrible disease.

We will be traveling back to Ohio on October 8, 2013.

Mark's Miracles is being created to raise funds for all the direct and indirect medical expenses incurred from his battle with Chronic Idiopathic Intracranial Hypertension (IIH), fibromyalgia, and chronic migraine syndrome. We will also need to travel to a clinic in Ohio that has a Pediatric Pseudotumor Cerebri Clinic frequently. Mark currently has therapy four times a week and visits specialist 8 times a month.

We thank you for any help you can provide.

May God Bless You

Mark's Story:

Mark's battle began on January 1, 2011 when he was diagnosed with an autoimmune vasculitis. That slowly erupted into a nightmare when he began having headaches and losing vision. In March 2011, he had nearly gone blind to Grade 4 Papilledema. Bascom Palmer Eye Institute by the grace of God was able to save his vision although he struggles with daily vision changes. He was diagnosed thereafter with a rare disease called Idiopathic Intracranial Hypertension, also known as pseudotumor cerebri. The disease causes increased cerebral spinal fluid applying immense pressure around his brain causing excruciating pain. He has had more than a dozen hospitalizations and lumbar punctures to relieve pressure to no avail. He has since been diagnosed with severe Fibromyalgia, Atypical Chronic Idiopathic Intracranial Hypertension and Chronic Migraine Syndrome all of which cause pain. Additionally, his kidneys are starting to feel the consequences of his disease. He is in constant pain, takes 12 prescriptions a day and suffers physically and emotionally. Yet he always manages a smile that touches your heart.

In spite of it all, he is an intelligent 5th grader who excels in all he sets into motion. His unique antics and wittiness keep us laughing and smiling every day. He is humble and incredibly faithful and an example to us all. He adores his sister who idolizes him. So we continue to pray for a cure, pray for some relief, and pray that he can live a long healthy life.

Updated: 2013

We took Mark to Nationwide Children's hospital in July 2013, where he was evaluated by a team of experts. His intracranial pressure was up extremely high. Almost a mirror image of the time he had gone blind. After careful evaluation, it is believed that his intracranial pressure is secondary to a systemic illness not yet diagnosed. For this reason, he has begun a new medical treatment, and a battery of tests and therapy in an effort to control the elevation of intracranial pressure before he loses vision once again. Godwilling this will buy some time to discover the true cause of this horrible disease.

We will be traveling back to Ohio on October 8, 2013.
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Update!!
Surgery has been cancelled
(Mark is thrilled)
New Treatment Plan underway
The coordinated care here is amazing
More doctors tomorrow
Stay tuned
Thank you for prayers
God is Great
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Crossing the Potomac into Maryland on our way to Columbus, Ohio for our miracle trip. Thank you to all the miracle workers who support and pray for Mark, his journey, and for a cure. Thank you for your donations, you know who you are, who’ve helped make this trip possible. We will providing daily updates. God Bless #faithhopelove #warrior #ihopeforacure #prayformark #marksmiracles
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We made it safely across several states. Now, in Virginia, Mark is having fun with family and will attend his cousin’s High School Graduation tomorrow. Miracle workers are everywhere and there are some surprises in store for Mark this week stay tuned! Appointments at Nationwide Children’s Hospital begin Monday. Surgery is scheduled for Wednesday. Continued prayers appreciated.
#markupdates #ihopeforacure #prayformark #marksmiracles
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It has been a hard few months. Mark has been accepted into the program at Nationwide Children's in Ohio. We will be going back there in June. Prayers need to continue so that we can find a cure.
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Read a Previous Update
Ana Martin-Osle
75 months ago

Dear Mark, Look forward to each day knowing that Jesus is with you leading the way. I love you very much. Tia Ana Maria

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Maria Accion
75 months ago

My prayers are with you, believe in miracles.

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Alina Martin
75 months ago

This is the website for my grandson Mark. Please share on your on page as well.

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$21,741 of $35,000 goal

Raised by 222 people in 75 months
Created May 26, 2013
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ES
$100
Efrain Sora
1 month ago
DF
$50
Diana Fernandez
1 month ago

Praying for your recovery. May we continue to hear your wonderful voice at Prince of Peace. God bless you and your family.

$50
Anonymous
1 month ago
RM
$20
Rosemarie Mortazavi
2 months ago

Praying that he gets all the answers he needs and that God continues to heal him. May the trip be all you guys need. God bless your beautiful family.

BG
$100
Bernardo Garcia-Granda
2 months ago

Mark is very talented young man who is struggling with Pseudotumor Cerebri. We are praying for him and his family and wish him the best. Cira and Bernie.

CR
$25
Christine Reigadas
2 months ago

Mark I hope you can find the miracle you need. You have a great talent that the world needs to hear.

HP
$50
Heidi Perez
2 months ago
DH
$25
Diana Hernandez
2 months ago
ES
$30
Espy Saenz
2 months ago

Lord I trust in you, Mark you are in my prayers,

Ana Martin-Osle
75 months ago

Dear Mark, Look forward to each day knowing that Jesus is with you leading the way. I love you very much. Tia Ana Maria

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Maria Accion
75 months ago

My prayers are with you, believe in miracles.

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Alina Martin
75 months ago

This is the website for my grandson Mark. Please share on your on page as well.

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