I Want To Live
Donation protected
My name is Mark. I'm 51 years old and I have Spinal Muscular Atrophy (SMA). It is rare that people with SMA to live near or past 60, so I realize and accept my time is nearing an end here.
While my life has been full and rewarding both with people and finances I now face some difficult issues.
I was fortunate to have had a great career in the computer world. I earned a living that allowed me to buy three vehicles, a house, vacations from coast to coast, and raising a 13 year old boy. Sadly, after 12 years of working, I was laid off for the second and last time in 2002.
Over the past 14 years I've done all that I know how to do with 1/3 the income I was use to. Unfortunately, I find my days juggling bills and communicating with my bank trying to keep my mortgage from being sold.
Not the poetic end of a life I considered blessed.
If I could remove this dark shadow of debt that hangs over me the stress that comes with it would disappear. I believe with less stress my body would be stronger to fight the SMA.
My brother, who also had SMA, died at age 54. I was with him when he past. He spent his last years concerned about finances too. It just doesn't seem right. Life needs to be focused on the positive things in life not dollars and cents.
People who know me, know I'm very positive. I will remain positive until that day I must say goodbye.
While my life has been full and rewarding both with people and finances I now face some difficult issues.
I was fortunate to have had a great career in the computer world. I earned a living that allowed me to buy three vehicles, a house, vacations from coast to coast, and raising a 13 year old boy. Sadly, after 12 years of working, I was laid off for the second and last time in 2002.
Over the past 14 years I've done all that I know how to do with 1/3 the income I was use to. Unfortunately, I find my days juggling bills and communicating with my bank trying to keep my mortgage from being sold.
Not the poetic end of a life I considered blessed.
If I could remove this dark shadow of debt that hangs over me the stress that comes with it would disappear. I believe with less stress my body would be stronger to fight the SMA.
My brother, who also had SMA, died at age 54. I was with him when he past. He spent his last years concerned about finances too. It just doesn't seem right. Life needs to be focused on the positive things in life not dollars and cents.
People who know me, know I'm very positive. I will remain positive until that day I must say goodbye.
Organizer
Mark Plocharczyk
Organizer
Midlothian, IL
