Making home, home
I can remember the incident like it was yesterday. It was April 22, 2016. Dior had been sick with walking pneumonia for about three days, and was prescribed antibiotics and breathing treatments to aid her in her recovery. Dior was resting in her bedroom when I went in to check on her – she needed to eat and take her medicine. However, when I went to get her out of bed, she told me she couldn’t get up. At that moment, I knew something was terribly wrong. I looked into her eyes and she said, "Mommy, I can't.”
Dior was airlifted to the hospital to meet with specialists, who confirmed she had Guillain Barre Syndrome. I had never heard of this before, so the doctors explained it was a condition where the central nervous system is attacked by the immune system as it fights infection. This is what happened when Dior came down with walking pneumonia. She spent her sixth birthday in the hospital and couldn’t see her baby sister in person for three months, but somehow, she found a way to smile and carry on.
Dior still needs a wheelchair, feeding tube, and ventilator, and can't even hold her head up independently. We have learned to make life as comfortable as possible and are still learning to adapt to our new “normal.”
Chive Charities has helped us with a wheelchair-accessible van, which will make transporting Dior to all the places she loves to go so much easier, and we are so grateful. When they asked what else could help her adapt to her new situation, there were two things that immediately came to me: new floors and a modified bathroom.
Because our home is carpeted, Dior can't maneuver around very easily – her electric wheelchair really struggles. It's a challenge in our tiny bathroom, too, which is too small to fit both her and her chair. We are making things work because we have to, but wood flooring and a wheelchair-accessible bathroom would make things so much easier for our family. We are grateful for all that's been given to us to help Dior adjust and appreciate each and every donation!
My family cannot begin to thank you for your generosity and commitment to make the difference in so many lives including ours. Just a few hours ago we were unable to make our home accessible for Dior and with your kindness we are able to make this dream come true for her. Dior is truly and fighter and will overcome this horrible disease and with your help she can now do that comfortably. Again, I cannot say thank you enough to each and every person that made this possible for us, we couldn’t have done it without you. We will forever keep calm, and Chive On!!