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My time is limited, I want to make it count!

$5,500 of $100,000 goal

Raised by 77 people in 5 months
Created January 26, 2019
Fundraising Team
A few months ago, I went to the doctor because I was feeling exhausted all the time.  I am only 45 years old and should not wake up tired after 8+ hours of sleep!  After an EKG, a very observant nurse practitioner noticed what they call a left branch bundle block.  She had a background as a cardiology nurse, so my first thought was "of course she's going to think its heart related, that's what she knows!"  Thank god she did because this had been missed by a doctor 2 1/2 years ago on the exact same test with the exact same results!  Had it been caught then, my condition would have been treated in the early stages and my current situation would most likely be very different.  Instead, the damage was allowed to worsen over the years and has now progressed to Severe Cardiomyopathy with my heart working at only 5-15% of its capacity, normal range being 60-70%.   With no treatment, life expectancy would be less than 1 year.  There is no cure for my particular type of cardiomyopathy and no exact known cause for it, with heredity being the doctors best guess.  My parents both died around the age of 40, so my family's medical history is rather limited and life longevity is not exactly in my favor.  Treatment with medication, I am told by a few cardiologists, goes by what they called "the rule of 3's" where typically 33% get better, which, at best would extend my life a few years, 33% remain the same and  33% get worse.   I have translated to mean they have no idea what is going to happen and like I mentioned earlier, if it stays the same or worsens, my life expectancy would be a year or less. 
Facing your own mortality is a curious thing.  Everyone knows they're going to die someday but when you're given a small time frame, I think how you handle it and what you do with that time, defines you as a person.  I want my definition to be a good one! 
So, basically, I am at a point where I have to make a choice, go back to working 60-80 hrs/wk, knowing my time on this planet is limited which would be an exercise in futility or map out a plan for the next few years to get as much out of life as possible.  I choose the latter.  If I had a wife and kids, the plan would be a no-brainer, I would want to spend as much time as possible with them.  I don't have that so, instead, I want to travel the world experiencing everything this planet has to offer!  I would like to make a difference, however small, wherever I go on earth.  Unfortunately, this is not free, which is why I'm here.  I recently hooked up with a worldwide volunteering organization. I want to spend the majority of the short time I have left in this life helping other people.  To be honest, this decision is far from selfless.  Am  I volunteering to see the world?  To help with travel costs?  To make a difference?  To chalk up karma points?  For personal fulfillment?  YES! 
Along with money, I need ideas on what to do.  What is the one thing you want to do before you die?  Those are the things I want to do!!  If you choose to donate, know that it is needed, appreciated and it will be put to great use! Thank you so much!
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I just wanted to thank everyone again for donating their hard earned money to help me reach my goal of paying my medical bills and traveling the world. I fell way short of my goal so far but every dollar helps. I also wanted to update everyone on my progress (or lack there of) so far. On April 10th, I had an ICD (Implantable Cardioverter-Defibrillator [pacemaker/defibrillator combo]) installed, which fixed the minor of the 2 heart problems and was supposed to possibly alleviate
some of the symptoms of the severe cardiomyopathy but unfortunately has not. I have been even more exhausted since leaving the hospital so, I apologize for not getting back to you if you've tried to get in touch with me! I have been starting to feel better the past couple of days and I hope this is the start of an upward trend! Even with the great medical insurance AND the long term disability insurance I have, the medical bills are really piling up. I have been put on the heart transplant list but I have no idea what that entails until I discuss the details with my team of doctors in Boston on the 17th. My world travel/volunteering plans will have to be put on hold for a little bit but it will definitely not stop me! Does anyone have a one-eyed Willy-like treasure map up in their attic? Know a bank with no security? Can see the future and give me the lottery numbers? Any better ideas? LOL
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$5,500 of $100,000 goal

Raised by 77 people in 5 months
Created January 26, 2019
Fundraising Team
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$25
Jacqui Paradise
26 days ago
$25
Jim Haas
1 month ago
JR
$35
Johanna Rodriguez
2 months ago
CM
$10
Cheryl Mungo
2 months ago
$200
Tina Liakos
2 months ago
MB
$500
Michael Boldrighini
2 months ago
CM
$20
Cheryl Mungo
2 months ago
CM
$5
Cheryl Mungo
3 months ago
SD
$100
Sherman The Dog
4 months ago
MK
$100
Mike Kaszuk
4 months ago
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