Help the families of rare cardiovascular diseases

€10,000 goal

Campaign created 6 months ago
The Center for Inherited Cardiovascular Diseases is a highly specialized unit of the hospital Fondazione IRCCS Policlinico San Matteo, Pavia in Italy, certified as a center of excellence. We specialize in the care of patients affected by genetic disorders. For example, cardiovascular and non cardiovascular disorders, inherited tumors, rare and complex genetic syndromes. We also care for patients who are at risk of developing or transmitting these disorders. The Center is highly specialized in the diagnosis and treatment of Marfan, Loeys-Dietz and Ehlers Danlos Syndrome, inherited and systemic cardiomyopathies, lung diseases (e.e. Cystic Fibrosis), along with familial and heritable cancer.

We go beyond carrying only about our patients –  we extend our care to their whole families.

Currently we have more than 7000 families we work closely with. We are in the era of personalized precision medicine. We are going from an era when patients had to share all the signs and symptoms and be treated identically, to the concept that each patient is different. Thus, each patient requires a personalized approach to treatment. The combination of patients and families from our outpatient clinic, as well as the molecular genetics and cardiovascular pathology provide unique facilities for translational research on inherited cardiovascular diseases.

Our NGO - Magica Onlus specifically focuses on raising awareness of these diseases, helping our patients and their families, buying new technology to advance our research and make that research. We aim to help and touch more people who suffer from rare diseases and help them better understand their cases. All funds will be used for research, technology and helping the families of our patients. We aim at buying better holter monitors, lab technology in order to achieve faster and more accurate research. This type of equipment can be very expensive and public hospital often struggle to find funds in order to afford them. Thus, we hope with this fundraiser we can manage to buy new equipment that will help our research and patients altogether. 

You can explore more of our story on the Magica Onlus Italian website or Center of Inherited Cardiovascular Diseases English website.

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€10,000 goal

Campaign created 6 months ago
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