Maddison Mertz's Miracle
Maddison was diagnosed with Stage 4 Glioblastoma Multiforme Cancer on November 18th… and Maddison needs a miracle.
Glioblastoma is a very rare and difficult to treat cancer. On November 15th, Dr. McCue, at Children’s Hospital in Minneapolis, removed 95% of the tumor in her neck (C1-C7). Beginning Monday, December 5th, Maddison will undergo radiation treatments five days a week for the next six weeks.
Maddison’s parents, Zack and Lindsay, remained hopefully she would qualify for certain trials which have shown more successful outcomes. But last night, sadly, they learned she does not qualify for those trials. In addition, there are certain chemotherapies which have been found to have higher success rates, and again, unfortunately, Maddison does not appear to have the correct genetic marker to qualify her for those treatments.
However, through a vast outpouring of support from friends and family throughout the country they have many leads and contacts which are providing hope and ideas on how to better help Maddison. Many of these ideas will not be covered by insurance. For example, there is evidence to support that if Maddison spends two hours in a hyperbaric chamber prior to each radiation treatment, she can improve the results of the radiation treatment. This will not be covered by insurance and will cost them $2,000 a day, which means approximately $60,000 out-of-pocket in the next six weeks. This is just one of the many out-of-pocket costs required throughout Maddison’s treatment.
Zack and Lindsay will do whatever it takes to help Maddison and they need our help. I know you want to help, of course you want to help. The only way we can help right now is to help fund Maddison’s miracle.
Please give generously so they can explore every possible option for Maddison’s treatment.
Mass of Christian Burial will be held on Friday, June 2, 2017, 11:00 AM at St. Victoria Catholic Church, 8228 Victoria Drive, Victoria, MN, with Father Robert White presiding. The visitation will be Thursday, June 1, 2017, 6 - 9 PM and also 2 hours prior to the Mass at St. Victoria Catholic Church. The burial will be at St. Victoria Catholic Cemetery, Victoria. At the request of the family, people can wear their Pink for Maddison shirts or anything else that they have that is pink, in honor of Maddison.
Maddison was born on May 26, 2009 at Edina, MN, to Zachary and Lindsay (Hoffmann) Mertz, the oldest of two daughters. She was baptized at St. Edward’s Catholic Church in Bloomington, MN, and was currently a very active 2nd grader at Victoria Elementary School. She enjoyed gymnastics, dance parties and hanging out with her most amazing friends.
Survivors include her loving parents, Zachary and Lindsay; sister, Mackenzie; grandparents, Leo and Mary Ann Hoffmann of Bloomington, Gary and Betsy Mertz of Arkansas; great grandparents, Ollie and Barbara “Honey Bunny” Mertz of Rochester; aunts, uncles, cousins and many friends.
Thursday, June 01, 2017
6:00 PM - 9:00 PM
St. Victoria Catholic Church
8228 Victoria Drive
Victoria1, MN 55386
Get Directions on Google Maps
Friday, June 02, 2017
St. Victoria Catholic Church
8228 Victoria Drive
Victoria1, MN 55386
Get Directions on Google Maps
Visitation will be from 9 - 11 AM.
Also... I'm not sure if these will continue to be available, so plan ahead and buy the next size up for your kids... that way the support will continue as your kids grow.
Here is an update from Lindsay and Zack:
Tomorrow is the start of radiation. It's still hard to wrap our heads around. How could this have happened and so quickly? Why did this have to happen to Maddison? Questions that go through our heads every day. I wish we had answers but we don't. All we know is we will not give up hope. There are GBM survivors and we truly believe God has big plans for her. Maddison will have radiation starting tomorrow. She will continue this treatment for the next 6 weeks. In addition to radiation we are trying to get her into hyperbaric treatments. Of course like everything else, we've hit a hiccup. We thought we had the green light for starting this tomorrow but now the radiation oncologist is pushing back on the idea. We will get over this hurdle and still tackle this disease like the super girl our Maddison is. In addition to radiation tomorrow, Maddison will also have physical and occupational therapy. It will be a very long day for her but she has the best thing to come home to, a new puppy. We got a new puppy Saturday night. It has truly brought smiles to our sweet daughters face. It's so nice to see Maddison's personalalitybcoming back.
Zack and I are so grateful to everyone who has donated to our gofundme page. It's means the world to us. At first we could not imagine asking people to help financially but after hearing that some of her treatments would not be covered we didn't know what else to do. We are so lucky to have this amazing community of support.
Thank you from the bottom of our hearts.
I too found myself and my daughter who was 9 at the time in this position when she had a brain tumor. The drugs were labeled as investigational and only for adults. As a last resort I called and sent an email to the medical director for the big pharmaceutical company that had the drug. I pleaded our case and within 24 hours I heard back and he was going to take it to the FDA for approval for a pediatric patient. We had to be under the care of a doctor in new york as we were in Wisconsin and the experts for that cancer and that chemo were there. We boarded the plane the next day and we were at the hospital waiting for the approval and within hours she was getting the med. All costs were covered as it was considered investigational. If the family wants more info they can contact me by facebook. Prayers to this family...it is a tough journey to be on.Hugs to the family and little Maddison.
My prayers are with yo! I'm battling gliosarcoma grade 4 (a more rare and aggressivesubset of gbm. If you are open to alternative treatments, research vitamin C infusions . Talk to Between the Bridges Healing center in Mankato. Research boswellia serrata extract, turmeric, Astragalus, paw paw, liposomal vitaminC and D , frankincense oil, chaga extract, ginger, God be with you!!
Hi Zach and Lindsey, as you tread this terrible journey please know you are not alone! Please look into Momcology.org-- to join a network of parents of children with cancer. We have a group specific to brain tumors and one for moms in Minnesota as well. The parents often share information about trials, doctors, etc all over the country. Prayers for your family as you navigate the next steps -- Justine (a cancer mom)
My heart is breaking for you. I lost a child to a disease as well. No parent should ever know the pain of losing their child. I am so sorry for your loss, and I will keep you all in my thoughts and prayers. Your daughter was absolutely beautiful, and her story was one that reached far and wide. If it offers any comfort at all, know that there are people that care, and who thought of your family often- and will continue to do so. Rest in peace, sweet girl.
I just got in to MN for a business trip and flipped on the news. Maddison's story was on the news. It touched me. My father and best friend was diagnosed with a glioblastona stage four 17 years ago. He was healthy and strong and said he would fight, even after telling him the statistics and odds, both which were devastating and heartbreaking. A miracle was needed. He had immediate surgery and they announced they got 95% of it. He was then accepted to Duke Cancer Center where he received radiation therapy, chemo therapy and an experimental trial at that time but it's now a standard of care, Temodar. I am pleased to say my father lived for 13 very good years and passed away from something other than his brain tumor. It never returned. He saw 4 grandsons born and touched many many people. So my comment is this - fight, fight, fight. Never give up. Get to a center of excellence for glio brain tumors (I recommend Duke). Miracles happen everyday and our God, our great Physician is still performing them daily. Don't look at the statistics - skew the results and become that poster child. May God Bless you and keep you in the palm of his hand. And never never give up hope. A complete cure can happen even when things don't look good. Keep fighting, have hope, and live every minute.
You can also go to Zack and Lindsay Merts on the Webb. Some newspaper and wcco tv videos of Maddison's journey. Thanks to all who have donated. Greatly appreciated
I am a follower of Whitney Bjerken, and this is how I found out about this. I am so sorry for your loss...No parent should go through this. I just wanted to let you know that you all are in my prayers.
So very sorry to hear of your loss. May her angel wings be present upon you in every hour, and every minute, of every day. I did not know her, but I know her love and legacy will live on forever ♥
Tried to order a shirt but can't find where to actually buy it. 4 pages of comments but no option to add to cart. Anyone know what I did wrong
My friends daughter has stage 4 glio. She uses turmeric every day in her diet. Please google it & begin using it. She was given 12-18 mos and is past year 4. She has also had the surgeries, radiation & chemo. Praying for your sweet girl! ❤️
Praying for your precious daughter! Yes, my grandson went to St Jude Children's Research Hospital for 6 mos when he was 9 mo old. He us now 8 and doing great. Also want to share www.thetruthaboutcancer.com and www.mykidcurescancer.com, both great places for resources of information. God Bless you all!
One last comment - I work in the pharmaceutical industry and have extensive contacts and relationships with drug companies. Please message me if you have any questions or need any advice in navigating this complex industry. Thanks.
Zack and Lindsay Mertz. Should have been a z on last post on mertz
Lindsay has been putting updates on caring bridge. Type in Maddison Mertz Thank you
Checking in to see any status update. How is she doing?
I am trying to help my partner finish her degree after she fell behind due to being in hospital because of her Crohn's Disease. Please aid me in my efforts to support my partner as she works to finish her English Language BA degree after she fell behind due to being constantly in and out of hospital (on many occasions it has been*for extended periods of time). Link below, please help :( https://donatewealth.com/site/campaigndetail/comid/3rPavtHQZp
Can I send a check. If yes where?