Kiss for GIST - Regorafenib fund
£1,918 of £500 goal
Jemma has recently found out that Regorafenib, the third cancer drug in her treatment that could prolong her life, has been withdrawn!
NHS England says that the decision was based on a detailed assessment of the drug and its benefits but we are hoping to get the decision turned around for Jemma and other GIST patients.
We want to do all that we can to ensure that Jemma is able to enjoy as many long years as possible with her family, watching her children grow up. It may be that she can be referred elsewhere to get the drugs required for instance.
Money raised will be put aside to help towards funding Jemma's medication if we are unable to get it back onto the NHS. If we are successful through the petition ( http://epetitions.direct.gov.uk/petitions/73911) then the funds raised can be donated to GIST Support UK ( http://www.gistsupportuk.com/) to help all sufferers.
Thank you in advance for your kind donations and support to Jemma and her family.
Cancer.... what is cancer?
It's sometimes visible and sometimes it's not.
It makes you feel like your stomach is in one big permanent knot.
It's like a 3rd person in your adult relationship that's constantly in the way - who clouds over your fun in every kind of way.
It's a pressure like no other, and one I wish would pass ....
But for me and all us suffering it's like a huge thorn stabbed into our hearts.
Our children are knowing and more so than we think.... but we try to hide it from them, to protect their young minds - or at least so we think .
I have a husband who loves me and a family who care but still at times wonder how life could be if the cancer wasn't there....
This poem comes straight from my heart as I lay here looking and feeling like crap. .... just pondering on how life could be? if this awful disease didn't choose me .