LUNGS FOR LYSA

$8,644 of $30,000 goal

Raised by 115 people in 36 months


Hello, my name is Lysa.  "Lisa w/ a Y".    In 2003 I was diagnosed w/ a rare genetic liver/ lung disease called Alpha1 Antitrypsin Deficiency.  Since my diagnosis, I have been receiving weekly infusions of a drug called Prolasin C.    The medicine is $10k per month, slows the progression of the disease but it is not a cure.     In Jan 2015 I went from not being sick enough  for transplant at 24% lung function to "Oh my gosh I hope I don't die!"   I had to quit working and I will need a double lung transplant to stay alive.  I have been on the transplant waiting list since 6/11/16 and my current lung function is around 16%.  I am still waiting for "the call".  

Without your support- transplant is not be an option.   Every donation, prayer,  phone call, etc is necessary for me to not just survive this ordeal but THRIVE despite all of the obstacles.      

It has NOT been easy but my motto is always:

"That which doesn't kill me makes me FIGHT harder". and  in the words of Bruce Lee~ "Don't pray for an easy life, pray for the strength to endure a difficult one"
Please click the link below to read more about me, besides my failing lungs.

MY STORY.. What's The Dilley-O, published by Coffee House Writers LLC 

Shout out to Marshawn Lynch for allowing me to use the words "BeastMode" and represent an extreme example of a BeastMode24/7 lifestyle.   Hope to meet you someday to thank you in person.  Lysa


People ask me all the time, what is it like to live with  this disease ?   This video says it all!  




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Update 57
Posted by Lysa Dilley
10 days ago
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A little late for this update but here goes for any of you who are late to the party. I got my lung transplant on December 6, 2018. It's now been 5 weeks since my surgery and we have been living at a hotel down the street from the hospital since post op day 12. Here is a video from 62 hours post op. Thank you for the continued support and we appreciate any help you can offer. We've been at the hotel for a few weeks now and although "hotel" sounds like a vacation, it has been physically and financially difficult for me and my family. Thanks again for your donations, God bless.
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Update 56
Posted by Lysa Dilley
2 months ago
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I was recently admitted to the hospital at my transplant center for an exacerbation and respiratory failure. While I was there, they were able to bump me up on the transplant list and they actually got an offer for matching lungs for me. Unfortunately the lungs ended up being no good and there were 21 people ahead of me on the list. I'm home now and the wait continues. Thank you all for the continued support and prayers. Home is where life gets hard without round the clock medical staff taking care of me. Im happy to be sleeping in my own bed again though!
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Update 55
Posted by Lysa Dilley
4 months ago
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Here is the link to my first published article which also happens to be the story of my Alpha1 journey to lung transplant! http://coffeehousewriters.com/author-intro-whats-the-dilleyo/
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Update 54
Posted by Lysa Dilley
6 months ago
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Help me celebrate another year of life and one more day closer to my double lung transplant!
Yay!! CAKE FOR EVERYONE!! #Loved
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Read a Previous Update
Todd Offutt
24 months ago
1
1

Prayers and blessings.

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Annette Li Pira
36 months ago
1
1

Lets help my friend with her double lung so her and cooper can play in the snow Love ya , Praying that you will get your lungs

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Lisa
2 months ago

Lysa keep up the fight! Life is so worth it. I'll keep you in my prayers.

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Tracy Gardner Hall
15 months ago

Oh man!!!!! I'm so sorry you're going through this.

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Tracy Gardner Hall
16 months ago

I'm glad you're in good hands, but ugh!

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$8,644 of $30,000 goal

Raised by 115 people in 36 months
Created January 16, 2016
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$100
Anonymous
8 days ago
BS
$75
Bob Stevenson
9 days ago

Keep going ... strong!

$25
Eileen Shrem
2 months ago

Your in my prayers

$50
Lisa Giovagnorio-Dieffenthaller
7 months ago

Praying for you Lysa. Keep fighting, you can do it.

KS
$50
Kelly Smith
8 months ago

Thinking of you and your beautiful smile Stay strong girl! You got this! Kelly Floyd Smith

$20
LUANN UNGER
10 months ago
1
1
$75
Howard Spiegel
10 months ago
1
1
DC
$50
Denny Conroy
12 months ago
$20
Anonymous
13 months ago
SW
$300
Shawn Wyman
13 months ago

Much love from a fellow Alpha1. You inspire me.

Todd Offutt
24 months ago
1
1

Prayers and blessings.

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Annette Li Pira
36 months ago
1
1

Lets help my friend with her double lung so her and cooper can play in the snow Love ya , Praying that you will get your lungs

+ Read More
Lisa
2 months ago

Lysa keep up the fight! Life is so worth it. I'll keep you in my prayers.

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Tracy Gardner Hall
15 months ago

Oh man!!!!! I'm so sorry you're going through this.

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Tracy Gardner Hall
16 months ago

I'm glad you're in good hands, but ugh!

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