LUNGS FOR LYSA

$8,444 of $30,000 goal

Raised by 112 people in 31 months


Hello, my name is Lysa.  "Lisa w/ a Y".    In 2003 I was diagnosed w/ a rare genetic liver/ lung disease called Alpha1 Antitrypsin Deficiency.  Since my diagnosis, I have been receiving weekly infusions of a drug called Prolasin C.    The medicine is $8k per month, slows the progression of the disease but it is not a cure.     In Jan 2015 I went from not being sick enough  for transplant at 24% lung function to "Oh my gosh I hope I don't die!"   I had to quit working and I will need a double lung transplant to stay alive.  I have been on the transplant waiting list since 6/11/16 and still waiting for "the call".  My health insurance is beyond "unaffordable".   My monthly medications, copays, deductible and out of pocket medical expenses more than triple my modest disability income  of $824. per month.  Lung transplant surgery itself is close to $900,000.   Without your support- transplant is not be an option.   Every donation, prayer,  phone call, etc is necessary for me to not just survive this ordeal but THRIVE despite any obstacle.      It has NOT been easy but my motto is always:
"That which doesn't kill me makes me FIGHT harder". and  in the words of Bruce Lee~ "Don't pray for an easy life, pray for the strength to endure a difficult one"
Please click the link below to read more about me, besides my failing lungs.

Shout out to Marshawn Lynch for allowing me to use the words "BeastMode" and represent an extreme example of a BeastMode24/7 lifestyle.   Hope to meet you someday to thank you in person.  Lysa

MY STORY! CLICK HERE!

People ask me all the time, what is it like to live with  this disease ?   This video says it all!  




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Help me celebrate another year of life and one more day closer to my double lung transplant!
Yay!! CAKE FOR EVERYONE!! #Loved
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Thank you all for helping me celebrate. Cake for everyone! :)
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In 4 days it will be exactly 2 years that I have been officially on the lung transplant list waiting for my call. I have managed to stay out of the hospital since last October and I have been able to make it through the winter with no infections or major lung problems. I am maintaining to the best of my ability, back in college, and confident that my "call" will come soon. My medical expenses are still adding up with every day that passes and I appreciate all of your support. Please share if you can! Thanks so much and let's see if we can rally for the cause and make something happen. Let's do this!
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Hello, I wanted to add an uplifting update today just to let everyone know that I am still sick but still living life to the best of my ability. This day would not have been possible had it not been for all of you! Your support has been monumental for my survival and hopefully will continue until my donor lungs come available. Thanks in advance for every donation, share, and prayer. Hugs and love, Lysa Dilley Wrote. Hope you enjoy the video!
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Read a Previous Update
Todd Offutt
19 months ago
1
1

Prayers and blessings.

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Annette Li Pira
31 months ago
1
1

Lets help my friend with her double lung so her and cooper can play in the snow Love ya , Praying that you will get your lungs

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Tracy Gardner Hall
10 months ago

Oh man!!!!! I'm so sorry you're going through this.

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Tracy Gardner Hall
11 months ago

I'm glad you're in good hands, but ugh!

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$8,444 of $30,000 goal

Raised by 112 people in 31 months
Created January 16, 2016
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Praying for you Lysa. Keep fighting, you can do it.

KS
$50
Kelly Smith
3 months ago

Thinking of you and your beautiful smile Stay strong girl! You got this! Kelly Floyd Smith

$20
Anonymous
8 months ago
SW
$300
Shawn Wyman
8 months ago

Much love from a fellow Alpha1. You inspire me.

$25
Anonymous
9 months ago
JS
$500
Jeanie Steinmetz
10 months ago

We are praying for you!

Todd Offutt
19 months ago
1
1

Prayers and blessings.

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Annette Li Pira
31 months ago
1
1

Lets help my friend with her double lung so her and cooper can play in the snow Love ya , Praying that you will get your lungs

+ Read More
Tracy Gardner Hall
10 months ago

Oh man!!!!! I'm so sorry you're going through this.

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Tracy Gardner Hall
11 months ago

I'm glad you're in good hands, but ugh!

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