Help Olivia Battle Chronic Lyme
To all parents: How far would you go for your child if you had to watch them beg you in tears not to give you their treatment because they were already so sick from the others (keep in mind they are like chemo?) How far would you go for your child if you watched them become pale and utterly exhausted from an outing that consisted of getting a heart monitor hooked up to her? How far would you go for your child if you had to carry her to the bathroom and to bed at age 14 and then undress and redress them? How far would you go for your child if you held her in your arms looked in her eyes listened to her tell you in slurred speech that she was in so much pain that she couldn't handle it? How far would you go for your child if you held her head in your lap, stroking her hair as she had convulsions? I would go to the ends of the earth. If you would be willing to help me in that process I would be so grateful to you. Please help my daughter
Hi, my name is Olivia Evans-Whiteside and I have late stage Chronic Lyme Disease. I am only 15 and my bills are adding up very fast. I have to see my doctor very frequently, I have several prescriptions that have been costing a lot. Many of the medications don't agree with me and it is just money down the drain. I also have to take several vitamins, supplements and some special food that I can get down. I have a Picc Line (a catheter that goes up my arm and to my heart to deliver medication straight into my heart) and I get daily IV treatments. I have an in-home nurse that visits weekly to change the dressings on my arm, check on the Picc Line, sticks my other arm to draw my blood, and monitors my health. We also have my braces that cost a lot every month as well and my insurance isn't very good so we have high co-pays. Because my dad refuses to help pay his 75% of my braces, my mom got rid of her Jeep Liberty and bought a really old junky car that doesn't run well (no wipers, bad brakes, makes noises like a dying cat) so she could put a down payment on my braces and make the payments.
I have several health problems directly related to the Chronic Lyme. I get hives almost everyday and Benedryl does nothing, I get covered in other rashes that itch so bad, I have terrible insomnia but sleep aids make me hallucinate, I am in constant pain everyday all day, some days I cannot walk, I have collapsed and my mother and brother had to carry me to my room, I get migraines almost daily, I have blurred vision, I have heart palpitations and am just starting a med for that, my chest always hurts as if bricks were dumped on my chest, I am starved for air and nothing helps it, I get confused, spaced out, I can't always get the words I need from my brain to my mouth, sometimes I don't understand simple things, my mood is up and down and I am sad a lot, I don't want to miss out on the normal things of being a teen so I push myself pretty hard and that also pays a toll on me. I haven't been able to be in school since February, I had to take a leave of absence at my job that I love so much, Dairy Queen, I can't take a simple walk for more than a block because I become too tired and my joints hurt too bad to go any further. I watch people walk by my house and it makes me so sad that I can't do any of that. Even a trip to the movie theater is difficult. I volunteer time for a service organization I am in and hold a Grand Officer position , I have played the violin for 5 years and I have been active in Speech at school.
I realize my mom is very dedicated to me and my health as well as my brothers and she is trying to finish her education so she doesn't have a lot of money for all of the things it takes to try and kill all these nasty little bacteria buggers. She has had to stay home with me because I am so sick. Since I have neurological problems she can't leave me home alone. She does everything possible for us, but since she is unable to work because of my illness it makes it very difficult on our family.
I am thankful my mom is so dedicated to me and has fought to get me all of the medical care I need. She searched high and low for the great doctor we are currently seeing. We have to travel up to St. Paul Mn to see her. We always have to borrow my grandmas car or my cousins because our car isn't road worthy to go that far.
This illness has been very emotionally, physically and mentally trying and I am doing everything I can to keep it together. Thank you so much for reading and considering. I appreciate it! XOXOXOX
4/7/2014- Well, things have really changed since I first wrote that :( I am no longer able to go to full time shcool, now I do a 12 hour a week program to keep my core classes so I don't lose those credits. I haven't been able to work at DQ in quite a while, I had to take a leave of absense which makes me really sad because I love it, I haven't been able to work at the dome, go to a Rainbow event, or pretty much even go on a walk. I am lucky if I can even walk! I started having nuerological problems. That means the Lyme is affecting my brain. I have been occassionally falling, having blurred vision, slurred speech, I sometimes have convulsions, I have days I can't walk at all and have to use a wheelchair at home. I have been having really bad brain fog too and I can feel it, I don't like that at all. I don't like feeling trapped in my house with my mom all the time.
4/13/2014- I went to prom with my sweet boyfriend Isaia and it was fantastic! We had so much fun. We had a fabulous dinner at the Water Street Grill in Waverly! My moms friend Christine at Photography by Christine did a whole fun photo shoot of us the the day before!!! We stayed out only until 11:30 because I couldn't handle any longer. I did end up in severe pain by 2:00am and my mom stayed up with me all night long, took care of me, and rubbed my back. I am still glad I went even though I had all the pain.
We have found a great Lyme Specialist who we are very happy with! The office visit is $300 for the first visit (because of a sliding scale) and $100 for follow ups. We will need $780 very soon to send off necessary lab work that insurance does not cover. Luckily my grandma drives us up because my moms car is not reliable for a trip like that at all. We also need to make some changes to our house to make it a little safer for me since I have been falling down the stairs or just unable to walk at all . My moms friends husband is going to do all of the construction work for us, but we just need to get the supplies. Currently we are trying to raise donations to support my lab work, some medications, and the construction supplies. Its not a lot of contruction supplies luckily:)
And.....TOMORROW IS MY 15th BIRTHDAY!!!!!! Going to the cardiologist for my 15th birthday,wonder if he will get me a cake. hmmmm....
Hey...check out my website! I am working on it a little more!!!
*I have it linked to my mom's facebook page since she can answer questions better, plus she knows way more people than I do.
*Please "like" our family facebook page:
Posted by Olivia Evans
As far as medical expenses, she still has bills we hope to someday get caught up. Her main thing we are trying to get taken care of are her braces. She needed a little more work than we had planned for so we still owe around $1000 more. We were really wishing her father would step up to the plate and pay that portion, but we can't count on that. The work is close to being done now, with only a few more months, but they won't schedule the removal of the braces until they are paid off. I am really hoping we can try to get this paid for soon. If you would like to donate towards the removal of her braces, we would be so grateful! It has been such a hard 2 years with all of the expenses of her treatment. I am trying so hard and want to get this accomplished for her.
Thank you so much! We appreciate all of the prayers, help, encouragement, and love you all have given!
Posted by Olivia Evans
All in all, she has good days and bad days. We take them all one step at a time. She recently did a modeling thing for a prom dress store in Des Moines. She looked beautiful! She won't be wearing these dresses to prom, but she loved wearing them for a day. Please continue to pray and if you wish to donate for her next doctor visit, we would appreciate it. Between the gas and the visit it costs about $500 and we had to miss her last visit due to lack of funds :(
Thank you all so much!
Posted by Olivia Evans
Unfortunately Olivia has to stop a medication that was very helpful because we simply cannot afford it. Between the medication and her braces we had to make a choice. She needs her braces finished and we are praying through fundraising we can end up being able to get her back on all the medication she needs. If you can help Olivia, that would be wonderful. Please share this page!
Thank you all!
Posted by Olivia Evans
Olivia has had to have her Picc Line replaced twice this past few months, and has had other troubles with it that have required another hospital visit. We still have weekly visits from her nurse. She still has her braces and there is no projected date anytime soon for getting a them off. We have some things that are covered and some things that are not and we fall quite short because of it. If you are able to help offset any of her expenses, we would be extremely grateful. We try as hard as we can to make it through, but this illness is very difficult to make it through on our own. Thank you all for your prayers and kind thoughts!
Hi, my mom recently showed me your story. It's unfortunately way to similar to mine (even down to the picc medication tearing up your stomach and the rash you got from the bandage/dressing). I got sick when I was 12 and it took them 2ish years to finally diagnose me with Lyme. For 10 years I always had symptoms but they were tolerable. Now I am 23 and Recently my disease decided to do its own thing. Now I am back with my picc line in and all. I just recently opened up about my story as well, I know it's a pretty hard thing to do. Congrats on being strong through it all! Feel free to message me if you ever want to talk or have any questions.
I believe I can help you; unfortunately not financially, but I can promise you that this Doctor can give you your life back! I was told I only had two days to live, and prepared for the worst. My friend who was cured of Lupus by this Doctor called me, and I boarded the plane the next day. I was seizureing until unconciousness and I would scream from wracking pain and tearing muscles. I passed out over and over, several times daily. I could not walk by myself, my husband pushed me on my walker. My neurological symptoms caused it to be very difficult to speak. I got there on Monday, by Tuesday I was able to carry on conversations with ease. I on Wednesday, no longer needed assistance with my walker, on Thursday I was able to use the cane that my twin sister gave to me in her will when she passed away from Lyme disease. She was 30 and left a little boy w/o a mommy. :( By Friday I no longer needed a walker, or a cane, my children thought that there was a possibility I would not return home at all, and I was able to come home and on the sixth day ride bicycles with my children for the first time in their lives! (They are 12 and 10) So many times my husband has been told that my case was hopeless, he did not believe in homeopathic's at all! But now, he told me that he would rather live in a cardboard box then have lack of funds get in the way of me returning to Dr. Calzada! My phone number is 801-669-3801, I love to make new friends! It brings me so much joy to know that my story and the death of my sister could touch others! Please.... If you would like a friend to listen who understands I would LOVE to be there! I CAN ASSURE YOU THAT THERE IS HOPE, THIS MAN IS MIRACULOUS, BRILLIANT, AND humble.... I am here for you, if you need "anything". I have had late stage Lyme for 16 years.
I went with today and came home exhausted. All I did was sit in the waiting room, Olivia had the tough part. We arrived at the hospital at 12:oo, a half hour early due to a storm. The drive it self was tiring, terrible driving conditions! We got back home about 4:30, so yeah, long day. Olivia, you will probably be extremely tired today and maybe tomorrow, rest as much as you can. I love and am praying for your recovery!