Robyn's Zip Zac chair
Donation protected
Hello Friends!
We are raising funds to purchase our daughter Robyn a Zip Zac toddler push chair. This chair is designed specifically for toddlers with mobility needs. It was designed by a father for his 18month old son with spina bifida. It is low to the ground, easy to get in and out of, and made to PLAY!
Robyn has Artrhogryposis Multiplex Congenita, a gene disorder that makes her joints and tendons very stiff. It effects 1 in 3000 children. Her particular version called Sheldon Hall Syndrome is among one of the rarer version, effecting 1 in 10,000 kids. Robyn's is a completely spontaneous occurence as no one in our families has ever been effected by AMC.
Robyn was born with very sever club feet, her left knee stuck (contracted) at 90 degrees, her right knee at 110 degrees, thumbs stuck in her palms and limited mobility in her wrists. She was also born lock necked and lock jawed. With the intensive help of Doctors, Chiropractors, and Therapists, she is now able to move her neck, jaw and thumbs. With 2 years of serial casting (beginning at 4 days old and continuing) and 5 tendon operations, her feet are now in a somewhat stable position with the help of daily therapy and braces. She will undergo her next major surgery to start working on her knees when she is 4.
Robyn was born with very sever club feet, her left knee stuck (contracted) at 90 degrees, her right knee at 110 degrees, thumbs stuck in her palms and limited mobility in her wrists. She was also born lock necked and lock jawed. With the intensive help of Doctors, Chiropractors, and Therapists, she is now able to move her neck, jaw and thumbs. With 2 years of serial casting (beginning at 4 days old and continuing) and 5 tendon operations, her feet are now in a somewhat stable position with the help of daily therapy and braces. She will undergo her next major surgery to start working on her knees when she is 4.
While Robyn has a traditional pediatric wheelchair, it is too tall for her to get in and out of by herself and it is too tall for her to interact with her peers comfortably. This littler chair is for home, playgroup and playground use.
The Zip Zac push/wheel chair is not manufactured by a major company and therefore cannot be covered by our insurance. We must purchase it out of pocket. Our intention when Robyn eventually out grows it, is to pass it along to another AMC family with a toddler in need.
The Zip Zac push/wheel chair is not manufactured by a major company and therefore cannot be covered by our insurance. We must purchase it out of pocket. Our intention when Robyn eventually out grows it, is to pass it along to another AMC family with a toddler in need.
Please got to http://www.myzipzac.com/ to learn more about this wonderful chair!
We thank you very much for all donation you can give to help us purchase this for Robyn. I know she will be thrilled to finally be able to PLAY with kids her age without crawling after them.
Organizer
Amy Robertson Nielsen
Organizer
