Robyn's Zip Zac chair

$1,515 of $1,950 goal

Raised by 26 people in 53 months
Amy Robertson Nielsen  FORT BELVOIR, VA

Hello Friends!


We are raising funds to purchase our daughter Robyn a Zip Zac toddler push chair. This chair is designed specifically for toddlers with mobility needs. It was designed by a father for his 18month old son with spina bifida. It is low to the ground, easy to get in and out of, and made to PLAY!

 
Robyn has Artrhogryposis Multiplex Congenita, a gene disorder that makes her joints and tendons very stiff. It effects 1 in 3000 children. Her particular version called Sheldon Hall Syndrome is among one of the rarer version, effecting 1 in 10,000 kids. Robyn's is a completely spontaneous occurence as no one in our families has ever been effected by AMC.

Robyn was born with very sever club feet, her left knee stuck (contracted) at 90 degrees, her right knee at 110 degrees, thumbs stuck in her palms and limited mobility in her wrists. She was also born lock necked and lock jawed. With the intensive help of Doctors, Chiropractors, and Therapists, she is now able to move her neck, jaw and thumbs. With 2 years of serial casting (beginning at 4 days old and continuing) and 5 tendon operations, her feet are now in a somewhat stable position with the help of daily therapy and braces. She will undergo her next major surgery to start working on her knees when she is 4. 
 

While Robyn has a traditional pediatric wheelchair, it is too tall for her to get in and out of by herself and it is too tall for her to interact with her peers comfortably. This littler chair is for home, playgroup and playground use. 

The Zip Zac push/wheel chair is not manufactured by a major company and therefore cannot be covered by our insurance. We must purchase it out of pocket. Our intention when Robyn eventually out grows it, is to pass it along to another AMC family with a toddler in need.

Please got to  http://www.myzipzac.com/ to learn more about this wonderful chair!

We thank you very much for all donation you can give to help us purchase this for Robyn. I know she will be thrilled to finally be able to PLAY with kids her age without crawling after them.


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Update 6
53 months ago

If you were planning to donate and were not able to before we reached our goal, anything you wish to donate we will put toward our gas fund for driving back and forth to Philadelphia to see her Dr at Shriner's Hospital Philadelphia.
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Update 5
53 months ago

OMG!!! YOU ALL AMAZE ME!!! THANK YOU!!! We have met our goal to be able to take advantage of the sale pricing that ZipZac is having this week. I will be ordering her chair today! It should take 2-3 weeks to arrive. I am in AWE of the generosity of our family and friends. Thank you all so much from the bottom of Robyn's little crooked tootsies!!!
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Update 4
53 months ago

AWESOME NEWS! The makers of the Zip Zac chair are having a sale right now! If we can get to our NEW goal of $1200 in the next week we can take advantage of this sale pricing!!!

http://www.myzipzac.com/

Thank you all again for your continued support!
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Update 3
53 months ago

I continue to be blown away by the generosity, caring and sharing of everyone for Robyn. We are hoping to make her birthday tomorrow super special and make it to 50% of our goal by tomorrow night. Thank you all so much for your support! Please share her link around!
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$1,515 of $1,950 goal

Raised by 26 people in 53 months
Created May 4, 2012
Amy Robertson Nielsen  
MW
$100
Michelle Weber
52 months ago

I LOVE this, I get to fulfill two "feel goods" ~ a birthday wish for Heather Sullivan to give back https://www.facebook.com/events/304397406316029/ and some new wheels for a special lil' lady

ED
$50
Eileen Desgrosiellier
53 months ago

I noticed that you have met your goal - but I also know that there are so many other costs related to these purchases - Use this for whatever you see fit - even if it is for a toy or a dinner or whatever!!

$100
Anonymous
53 months ago
LA
$50
Leslie, Rachel, Alex
53 months ago

I know you met the goal so buy a bell or something fun for the chair.

$450
Anonymous
53 months ago
PJ
$25
Paul and Joan
53 months ago
A
$10
Amy
53 months ago
A
$10
Anonymous
53 months ago
$10
Anonymous
53 months ago
$25
Anonymous
53 months ago
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