Love for Jayden
My grandson Jayden at age 5 months was diagnosed with rhabdomyosarcoma cancer that was January 2013. The tumor was located in his left side of his face. He had a port inserted in his chest in preparation of him receiving chemo therapy. He then started right after his port placement witch was in February 2013. He did chemo once a week. Come June of 2013 thru August of 2013 he was in and out of the hospital for cellulitis and continued his chemo. Throughout his chemo he has had CT, Mri and bone scans every 6 weeks. In October 2013 the doctors started talking about radiation treatments for the cancer to try and get it under control. In November 2013 he traveled to Jacksonville FL for a consultation with the doctor at the Proton Radiation Center. At that time he got sick the first night we were there, we had to rush him to the hospital.He had a bad virus so what was supposed to be a 2 day trip turned into a week. In December 2013 he began his 28 radiation treatments. He received the treatments 5 days a week thru the middle of January 2014. Six weeks after he finished in Jacksonville they did more scans saw a spot in his lungs.They did a biopsy that came back scar tissue.They said he was good and he could be considered on remission. A few weeks after that he went back for a check up scan to make sure all was good. They found more spots in his lungs and said there was no way that it could be scar tissue.They said it was more tumors. So they started chemo again just a different type that they said was stronger. In October of 2014 they sent him to Winston-Salem to get a PET scan to get a better look at the cancer. It showed more spots in his neck chest and face. The doctors continued him on chemo. In January of 2015 more scans were done and it was determined that his cancer was not reacting to the chemo treatments. The tumors in his chest were growing and he now has a tumor by his heart about the size of his heart and it is growing rapidly. The doctor said they could give him a pill that would slow the cancer but not cure or shrink the tumors. They do not know any other chemo treatment that would work. It was discussed that possibly at Saint Jude they might have a possible study drug that might benefit Jayden. We are hoping that they will have something to help him.+ Read More
Well it has been 2 very long weeks Jay Jay. Oma has missed you very much. I would like to say think you to everyone for there prayers, help,flowers, and support. Want to thank everyone who came out for Jay Jay last Saturday.
As I lay in bed wide awake I remember the times of Jay Jay next to me sleeping. I remember going out with him and him loving to be out. He would get a lot of stares he would get a lot of questions. But no matter what he was always a happy little boy. I miss you Jay Jay.You and your Aunt Raven are always with me in my heart and on my mind. I will see you both one day again. That day you guys will be the wise ones and show me the way. Love you Jay Jay and Raven my little black bird
Well everything is almost ready for the memorial on Saturday. Need to pick up a lot of things for Saturday tomorrow and should be all done.
We have been doing good. Yesterday we want and made all the finale things for Jay. Today Dropped things off at the printer. Met up with the lady that does our shirts. Been keeping ourselves busy. Tomorrow another busy day. Will be working on the slide show of pictures and his video of him dancing singing. Will talk with pastor about everything at the memorial. Want to tell everyone thank you very much for all the prayers,thoughts,food, being there for us when we need to just scream.