LivGracefully
Donation protected
We are the Stilke Family: Dave, Kirsten, Mason and our angel Livia.
Livgracefully is an organization in honor and memory of our beloved Livia Grace who passed away suddenly on September 26, 2104 at the young age of 8 years old.
Livia loved life. She was courageous, funny, emapthetic and generous. Livia batteld Cystinosis, a rare metabolic disease, that she shared with her brother Mason. Together, they survived Cystinosis and all the issues this disease threw at them. Sadly, Livia's little body was fighting something much worse, something we knew nothing about. Livia's life was cut short due to an even more rare disease called Fibromuscular Dysplasia, or also called FMD. FMD didn't give us or her a chance to find a cure, or a miracle...or try anything to save her life.
Our plight in life has now become a mission. A mission to find a cure. Not only for Cystinosis, but also for FMD. We hope to embody all that Livia was, and give back just as she enjoyed doing in her life.
"Livgracefully" (LIVia GRACE) was established as a "movement" to do good. To embrace all that Livia was, and to honor her memory and the legacy she leaves behind. It is an entity that hopes to riase awareness to the diseases she courageously battled and that Mason still does.
Mason, and thousands of other kids and adults battle cystinosis each day. It is our mission and our goal to not only raise awareness but to find a cure. Find a cure for not only Cystinosis, but also a cure for FMD. We want to see something happen, in memory of Livia and in honor of her beloved brother Mason. BUt we can't do this alone....
We humbly ask you to help us in our mission. Help join us in our fight...Our journey to battle and stand tall. Our mission to raise money for research and better medicines!
If you are interested in donating to this great cause for research and a cure, we simply ask for donations! Your donations will go directly toward these two entities!
If you prefer to write a check, we will take that too! Please make all checks out to: Livgracefully
Message me for my address to send the check and we will galdly put it towards our Livgracefuuly movement!
Please read more below....
This movement embodies all that Livia was and all that we will do in this life to honor her and her brother Mason. This donation tells others that YOU chose to donate to help find a cure! YOU CHOSE to remember Livia and all she taught us about "living gracefully".
Our goal in life is to make Livgracefully a name that gives back to not only our beloved community, but to these diseases that need help and a voice. Livgracefully will grow into an entity that someday will give out scholarships to children, as well as give out helping hands to those in need. Our goal is to someday, make Livgracefully an entity that graces and blesses each and every entity it touches, just like Livia's life did. And we need YOUR HELP!
Livia LOVED to help anyone. It is with her motivation that we, her family continue her efforts in giving back. Help us keep Livia's memory alive. If we can take anything from Livia's time here on Earth, let it teach us how we too can live as she lived. We can learn from her, grow and give back to the universe as she has so gladly given to it.
This is just the start.... and if you will, we ask that you join us....to LIVGRACEFULLY!!! Help us stand tall, and help us to remember who Livia was and all that she embodied!! For a simple donation, YOU can be a part of something extraordinary--just like Livia was!
Your support means the world to us!
Thank you!
Love, The Stilke's
Livgracefully is an organization in honor and memory of our beloved Livia Grace who passed away suddenly on September 26, 2104 at the young age of 8 years old.
Livia loved life. She was courageous, funny, emapthetic and generous. Livia batteld Cystinosis, a rare metabolic disease, that she shared with her brother Mason. Together, they survived Cystinosis and all the issues this disease threw at them. Sadly, Livia's little body was fighting something much worse, something we knew nothing about. Livia's life was cut short due to an even more rare disease called Fibromuscular Dysplasia, or also called FMD. FMD didn't give us or her a chance to find a cure, or a miracle...or try anything to save her life.
Our plight in life has now become a mission. A mission to find a cure. Not only for Cystinosis, but also for FMD. We hope to embody all that Livia was, and give back just as she enjoyed doing in her life.
"Livgracefully" (LIVia GRACE) was established as a "movement" to do good. To embrace all that Livia was, and to honor her memory and the legacy she leaves behind. It is an entity that hopes to riase awareness to the diseases she courageously battled and that Mason still does.
Mason, and thousands of other kids and adults battle cystinosis each day. It is our mission and our goal to not only raise awareness but to find a cure. Find a cure for not only Cystinosis, but also a cure for FMD. We want to see something happen, in memory of Livia and in honor of her beloved brother Mason. BUt we can't do this alone....
We humbly ask you to help us in our mission. Help join us in our fight...Our journey to battle and stand tall. Our mission to raise money for research and better medicines!
If you are interested in donating to this great cause for research and a cure, we simply ask for donations! Your donations will go directly toward these two entities!
If you prefer to write a check, we will take that too! Please make all checks out to: Livgracefully
Message me for my address to send the check and we will galdly put it towards our Livgracefuuly movement!
Please read more below....
This movement embodies all that Livia was and all that we will do in this life to honor her and her brother Mason. This donation tells others that YOU chose to donate to help find a cure! YOU CHOSE to remember Livia and all she taught us about "living gracefully".
Our goal in life is to make Livgracefully a name that gives back to not only our beloved community, but to these diseases that need help and a voice. Livgracefully will grow into an entity that someday will give out scholarships to children, as well as give out helping hands to those in need. Our goal is to someday, make Livgracefully an entity that graces and blesses each and every entity it touches, just like Livia's life did. And we need YOUR HELP!
Livia LOVED to help anyone. It is with her motivation that we, her family continue her efforts in giving back. Help us keep Livia's memory alive. If we can take anything from Livia's time here on Earth, let it teach us how we too can live as she lived. We can learn from her, grow and give back to the universe as she has so gladly given to it.
This is just the start.... and if you will, we ask that you join us....to LIVGRACEFULLY!!! Help us stand tall, and help us to remember who Livia was and all that she embodied!! For a simple donation, YOU can be a part of something extraordinary--just like Livia was!
Your support means the world to us!
Thank you!
Love, The Stilke's
Organizer
Kirsten Franke Stilke
Organizer
Elkhorn, WI
