Support Lily's Therapeutic Backyard!
As those of you who follow us on Facebook know, our daughter Lily has been challenged with multiple disabilities: Daily seizures, mitochondrial disease, significant global delays and severe autism. Despite these challenges, she is a beautiful, happy little girl.
The amazing news is that we have recently been granted a wish for Lily from Make-a-Wish! ( www.wish.org) For Lily they will be building a play structure with slides, swings, and steps for her to climb. They are putting in a larger structure so Lily will be able to enjoy this for years to come. We love this wish for three major reasons: 1) Her home therapists can help her use the structure to build strength and balance, 2) Lily LOVES swings and will have a great time, and 3) It is an activity she can do with her twin brother where they can both feel like "normal" siblings.
The challenge here is that before Make-a-Wish can build the structure, we need to create a safe surface to put it on. Unfortunately, the surface expense is outside of Make-a-Wish's generous budget. Most kids have their play structures over grass, but with Lily's frequent seizures and low muscle tone, we need to put in a safer surface. Wood chips and rubber chips won't work because Lily puts everything in her mouth. The best option for Lily is an artificial turf surface where you rip out the existing lawn, lay down gravel, and install the soft, grass-like turf above it. This makes the structure safe if children fall from any height.
We also need to remove a very large tree to properly position the structure.
The turf company, Forever Lawn, has been extremely generous in donating labor and giving us a deep discount on the product, but it is still quite expensive. Being raised in the Midwest, it is difficult for me to ask for help, but it is time to swallow my pride and ask for help for Lily.
We're asking for donations to help defray the cost of these materials. We've got volunteers to help rip out the lawn and spread the gravel, but we're still looking at $12,000-$15,000 worth of materials. I wish we didn't need to ask, but all of our "extra" money goes to Lily's medical expenses, so it is time for us to ask our friends and family for help.
If you choose to contribute, we'll use that money to put in the new turf and remove the tree. Any extra funds would be used for a therapeutic trampoline to accompany the play structure and/or a trust for Lily's future medical care. (despite my best intentions, I may not live forever) We're not an official charity, so there isn't a tax write-off, but you would know exactly who your donation is helping!
We'll keep you all updated on the progress via Facebook and Lily's blog, www.lily-bean.com.
Note: Photo is by our awesome friend Aly at La Luz Photography ( http://www.laluzphotographyblog.com/)
We had some other special needs kiddos over for the grand opening and it was so amazing seeing them play, smile, and have fun together. This is a truly special place.
Thank you again for your support!
Thank you, thank you, thank you.
Some folks have asked if they can still give. We've hit our goal, so don't feel obligated, but you can if you like. Any excess funds will start a Special Needs trust to help support Lily in the future.
But for now, I've got some grass to dig up in the backyard! Thank you!
Lily and her family!
Amazed but not surprised at the outpouring of love and support for the Rohs Family. You have beautiful friends and family all gathering around you. Truly a blessing to Lily!
This is one of the most beautiful girls I know. Lily........Hugs. This is a family I've know for years. Hope the reach their goal quickly.