In Memory of Leah's Fight with ALS

$91,030 of $100,000 goal

Raised by 381 people in 34 months
Leah, beautiful mom of two battling ALS  

Everyone faces challenges. Bob and Leah Bardin have faced several, each with positive enthusiasm and faith that has delivered them what they needed, when they needed it most.  Survivors. Believers.

Bob and Leah met more than 25 years ago in high school and even dated for a short time. Their paths after high school took them in different directions for a while -- to college and jobs and new friends. Both happy, but not content, until their paths joined again at an unplanned, but meant-to-be, meeting 8 years later. Embracing the gift of each other, the two have not been apart since, and married in 2002.  

To know Leah and Bob is to know joy. They love to be around other people and are typically the first to arrive and the last to leave. Family and friends were overjoyed when Leah and Bob made the decision to have a family. But that decision was not without obstacles and heartache. 3 years and 2 rounds of IVF later, Joseph Royce made his arrival. Three years later this past August, baby sister Savannah Brooke would join the very close-knit family.

Family is a priority to Bob and Leah, who ensure they spend as much time as possible with grandparents, aunts, uncles and cousins. And ideally, family time involves being on the water -- fishing, sailing, diving, skiing, cruising, or swimming.  Savannah and Joseph had their first boat rides when they were both less than three months old.  If it’s on the water, the Bardin's would be in. 

And like any salty mariner, they’ve been through some serious squalls.  Joseph was born five weeks early at five pounds 12 ounces.  He had to spend a few days in the NICU, but in a matter of weeks grew taller and heavier than a majority of babies his age born at full term.  Savannah came even quicker than Joseph, arriving 10 weeks early and weighing three pounds six ounces.  She was no bigger than Bob’s hand.  Savannah spent two months in the NICU.  With the grace of God, she grew to a normal healthy baby girl in a matter of months, and is also comparing well to babies her age that were born at full term. 

Bob will say that they are all survivors and persevere in adversity. But now they are facing the biggest hurricane of their lives.  

While Savannah was still in NICU, family and friends noticed a dramatic decline in Leah’s physical and conversational abilities. Fearing that perhaps she had a stroke during her pregnancy, Bob took her for several tests.  No one was ready for the true culprit:  ALS (Lou Gehrig Disease) with cognitive impairment. At a time when one minute cannot be spared, the addition of cognitive impairment is known to speed the rate of progression and/or shorten survival time. Our only defense against this incurable disease is our faith in God and love and support of family and friends, both of which are tremendous.  Leah is a fighter and will give this horrible disease a run for its money before she lets it get her down.  

Still, in the 5 short months since her diagnosis, ALS has taken a lot.  Only 42 years old, Leah has lost use of her hands, arms and very limited movement in her legs. She cannot move on her own. She cannot feed herself. She cannot manage her breathing machine that keeps air in her lungs or put on the neck brace that helps her hold her beautiful head high. Unbelievably, she is already in need of home health care. While family and friends volunteer as much as possible, a more stable solution must be found. And unfortunately, this type of care runs several thousand dollars each month and is not covered completely by health benefit plans. 

With a 4 year-old boy, 8 month old baby girl and mounting responsibilities, Bob continues to be a hero, holding down his job and fighting with a smile to keep everyone safe and happy. More than ever Bob and Leah need the special blessing of financial support for her home health care needs. We thank you for any help you can provide!
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We are 30 days away the annual ALS Walk which will be held on Saturday, October 1st at the main UH campus. To register yourself for the walk, please click the link below.

http://webtxportal.alsa.org/goto/inmemoryofLeah

If you didn't purchase a team shirt please consider wearing a purple shirt so we all look uniform. We hope to see all of y'all there walking in memory of Leah!
Savannah just turned 2! (mini-lee)
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We are 30 days away the annual ALS Walk which will be held on Saturday, October 1st at the main UH campus. To register yourself for the walk, please click the link below.

http://webtxportal.alsa.org/goto/inmemoryofLeah

If you didn't purchase a team shirt please consider wearing a purple shirt so we all look uniform. We hope to see all of y'all there walking in memory of Leah!
Savannah just turned 2! (mini-lee)
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It's that time of year again!!! On October 1st, the ALS walk will be held at the UH campus - same place as last year. To register yourself for the walk, please click the link below.

http://webtxportal.alsa.org/site/TR/Walks/Texas?team_id=346895&pg=team&fr_id=12062

After you've registered your name and signed up with our team, please click the Booster link below to purchase your team shirt! Team shirts will only be listed until 8/31 and are $22 - youth sizes are also available. All proceeds from the shirt sales will be donated to the ALS Texas Chapter in Leah's name.

www.booster.com/imoleahbardin

We hope to see all of y'all there and make sure you purchase your shirt! Let me know if you have any questions!
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Leah peacefully passed away yesterday morning surrounded by her family. She was an amazing wife, mom, daughter, sister, aunt and friend. The years we had with her were filled with laughter, tears, and way too many memories to count. We were so lucky to have her in our lives and it will not be the same with her around. We will love and miss you forever, Lee.
A memorial for Leah will be held at the A.D. Bruce Religion Center (UH Chapel) on July 5th at 11 AM. Parking will be available on campus at the Welcome Center parking garage located off of University Drive. In lieu of flowers, please make donations to the Texas Association of ALS.

A.D. Bruce Religion Center
3800 Cullen
Houston, TX 77204

http://www.alstexas.org
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Read a Previous Update
Patti Counts
34 months ago
1
1

My heart, nor words cannot express enough how grateful I am for my family and our friends whom have contributed in so many ways and worked so hard in putting forth so much effort in the care of my beautiful little sister Leah and her precious family. The phenomenal outcome of love, prayers and support, in every way, is deeply appreciated... THANK YOU

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Barbara Kinkead Boykin
30 months ago

This is overwhelmingly beautiful! Bob, you are a great husband, father and son and I am so proud of you! your kindness has not gone unnoticed evident by the out pouring of love from your peers! Leah, don't be afraid cause you are surrounded by love from your friends, family and some you have never met. God is by your side always! We love you baby girl and all is going to be well!

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$91,030 of $100,000 goal

Raised by 381 people in 34 months
Created April 29, 2015
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$250
Danyel Cares
22 months ago

My prayers are with you and your family.

LG
$100
Lloyd Green
23 months ago

Always thinking of your family.

RR
$500
Ravi Ratnala
28 months ago

Just hearing about this. Love y'all so much. Phil 4:13

AH
$100
alan hoffman
28 months ago

i am a good friend of Leah's sister Patti

Patti Counts
34 months ago
1
1

My heart, nor words cannot express enough how grateful I am for my family and our friends whom have contributed in so many ways and worked so hard in putting forth so much effort in the care of my beautiful little sister Leah and her precious family. The phenomenal outcome of love, prayers and support, in every way, is deeply appreciated... THANK YOU

+ Read More
Barbara Kinkead Boykin
30 months ago

This is overwhelmingly beautiful! Bob, you are a great husband, father and son and I am so proud of you! your kindness has not gone unnoticed evident by the out pouring of love from your peers! Leah, don't be afraid cause you are surrounded by love from your friends, family and some you have never met. God is by your side always! We love you baby girl and all is going to be well!

+ Read More
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