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Teenage Girl Loses Vision Overnight

$9,101 of $50,000 goal

Raised by 142 people in 3 months
Created June 10, 2018
Team Kura
on behalf of Janice Robinson


On May 30th, Kura Robinson's life changed forever when she was diagnosed with Pseudotumor cerebri resulting in severe Papilledema.  Just having received her first-ever actress award in theatre,  Kura is now legally blind. After a long journey with her Mom and younger sister at her side, Kura’s battle to save her vision has come to a heart-wrenching end. At the start, after experience severe and debilitating headaches, nausea, and sudden vision loss, Kura’s Mom got in the car and drove 120 miles to the Bascom Palmer Eye Center in Miami along with her younger sister, Amaya. The family - single Mom and two daughters fought tirelessly to save Kura’s vision and her life due to heightening inter-cranial pressure around her brain and optic nerves. After being directly admitted into the Holtz Children Hospital due to the severity of her case, spending more than a month in the ICU with Mom and sister at her side, and having multiple procedures and surgeries, Kura underwent brain surgery to install a shunt to drain excess brain fluid. She will now have the shunt for the rest of her life.

The family of three has been devastated by the physical, emotional and financial strain that had besieged them. They have fought desperately to do what any loving family would do for one of their own - a beautiful and kind young woman whose life will never be the same.

This fund is to help with the sky-rocketing medical costs already incurred, as well as future costs associated with her current disability, including the hopeful possibility of innovative glasses that cost $10,000 to help Kura with her vision.

Kura’s Mom is a guest teacher with the Collier County Public School system who is currently unable to work due to her daughter’s condition. This is a single mother and her daughters doing the best they can to survive an unexpected life scenario. Please donate today to help this young lady and her family as they strive to stabilize emotionally and financially while seeking innovative means to begin life anew and assist Kura with her impairment.
  
Please help us help Kura and her family in their time of need. Thank you and BE BLESSED.  #kurascause # teamkura #prayersforkura



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Well it’s been a week now since I have been home and it has been one of the most emotional weeks since this whole journey of pseudo tumor cerebri began on May 30th as we arrive in the 3rd month of hospital life surgeries medication and recovery from it all my daughter has been left legally blind visually impaired what ever title you want to use it doesn’t matter she can’t see . I have stayed hopeful with the little bit she can see and that isn’t much because everything is blurry and grainy and all blended in . I have been researching everything reading every book I spent hours in the library as if I was creating a thesis on the optic nerve and the one thing I found for immediate solution was a pair of electronic glasses that take the 10%vision she has left which really isn’t much because it’s blurry but these glasses take blurry vision and make it clear and in focus. She will be able to plug them up to her phone computer and she will be able to read books which means she can possible be in her regular school again with a teacher aid helping her along the way. This is the beginning of finding a solution but the glasses cost 10,000.00. And I am already drowning in medical bills from all her surgeries and extended hospital stays . I created this video to really bring you all on the inside of what life will be like having a daughter legally blind. Our whole life has changed and how I earn a living as a teacher and singer will be altered a lot but I am hopeful that this is the beginning of a blessed beautiful journey of a new way of life . I am deeply grateful for every donation that comes in the size doesn’t matter it all helps . I am trying to raise money to also take her to Boston’s Children’s Hospital they are excited to meet Kura and feel she is the perfect candidate for ground breaking stem cell type surgery . I am Looking at all other top hospitals as well. Please keep my little family lifted in prayer it’s very sad what is happening but I madez a promise to my daughter that she would be okay and that God is going to keep us . Thank you all in advance for every prayer and every donation .
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I am here literally in the emergency room with Kura while my beautiful 10 year old daughter Amaya is enjoying school and has no idea we are back in the place we called home this summer . The medical bills and long term care of my daughter is way over my head . I am not able to work as a teacher at the moment and I can’t leave the country to go sing I have to stay close to my child it’s very serious . I have been sharing this gofund me now since June and I have been hit with yet another round of medical bills and new hospital stays since her brain surgery . Prayer truly does work and I am praying but right now I am trembling and whipping away tears as I fight to stay above the water it isn’t easy but I am praying and staying hopeful this journey is hard it’s painful and it hurts deeply but I am taking the pain and the emotional wounds like a champ and I am being a pillar of strength for my daughter but we need help it’s needed more now then ever
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Hello everyone I just wanted to give you all an update on my daughters vision journey. The reality is she is visually impaired the inter cranial pressure really did a number on her optic nerves. But I am staying hopeful and prayerful she might be this way for a while but there is innovative medication and procedures being researched and tried everyday that may help her nerves wake up nerve damage is serious she can see movement and large objects but not what they are her acuity is just not there but like I said I will take blurry over complete darkness any day. Please respect my privacy at this time I may not want to text or talk on the phone I am literally researching now where they are trying innovative things for the eyes . I might find my self at the Boston Children’s hospital at some point I am taking it one day at a time she is in good spirits and she is still talking on her phone with her friends Siri literally does everything for her thank God for technology.and her Alexa plays her music so she is dealing with it all best she can .The reality is sinking in I did my best not to cry I was the loving supportive momma . Now the challenge begins everything about our life will change but our love for each other grows even deeper seeing Amaya hold her sisters hand and telling her when to step up is incredible Amaya and I both talked on the way to school and she said “ Mommy it’s going to be okay we got each other” I nearly burst into tears The journey of a disability isn’t new to me my little brother was in the spectrum of disabled but he had vision and ability to walk but he was multi handicapped in other areas he was in the spectrum so I grew up with a special needs little brother that has already given me the patients and compassion . My daughters impairment is bringing us even more closer we laugh still and we listen to music and sing I know as outsiders your hearts are all breaking for me but please rejoice in love and life my daughters diagnosis could of eventually killed her she could of dropped dead had a stroke seriously I am grateful to God she is living breathing and still filled with joy #prayersforkura
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Well it’s official my daughter Kura is visually impaired . We took the news a bit hard as we sat at Bascom Palmer yesterday Kuras tears where real but she is strong and after a few tears I got her back to laughter my goal in this whole journey was to help
My daughter realize that despite all that is happening to her she can still experience joy laughter and love. I remember when my father became visually impaired and he couldn’t drive anymore and he used a magnifying glass to see the words in the Bible and I watched him struggle trying to write his sermons but the reality is he kept on being my Dad that experience with my father prepared me when I told Kura you know your grandpa couldn’t see you he was visually impaired she looked at me like what ? That was an eye opener for her. I am going to be trying to raise as much money as possible to get her some ground breaking electronic glasses that will
Give her some vision acuity for a few hours a day it’s a company in Canada and I am praying that those electronic glasses will help right now everything is blurry for her and grainy as she describes but like I told her I am grateful for blurry as long as it’s not darkness and complete blackout then that’s another situation but visually impaired is what it is and now we will join support groups and discover this world one day at a time . Your donations are blessing me and my daughter in some many ways but we have a life king journey ahead of us . Thank you in advance for your love and support .
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$9,101 of $50,000 goal

Raised by 142 people in 3 months
Created June 10, 2018
Team Kura
on behalf of Janice Robinson
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