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Dance Diva Daughter Fights Blindness

$6,445 of $10,000 goal

Raised by 93 people in 1 month
Created June 10, 2018
Team Kura
on behalf of Janice Robinson


On May 30th, Kura Robinson's life changed forever when she was diagnosed with Pseudotumor cerebri resulting in severe Papilledema.  Just having received her first-ever actress award in theatre,  Kura, whose Mother is 90s Dancefloor Diva Janice Robinson of the group Livin Joy, is now experiencing a 65% loss of vision due to an excess amount of fluid in the area surrounding her brain. With the swift-thinking of her Mom, the singer and songwriter behind the international hit song, “Dreamer”, to get her better care, the family of three - Mom and two daughters  - got in the car and drove 120 miles to the Bascom Palmer Eye Institute in Miami. There she was directly admitted to the Holtz Children Hospital due to the severity of her case where she is currently in the ICU. The initial procedure has taken place and the doctors are monitoring any improvement in her vision. There will be several more procedures, and the next several months of her life will be closely monitored to ensure that her vision returns and that no excess fluid is building on the brain. 

Kura's Mom is a single Mom who is raising Kura and her little sister, Amaya, who is nine. They have been living in the hospital since last Tuesday. It does not look like they will be able to return home for at least another week. This fund is to help with the medical costs incurred during their time there, and once she is released.  This is a single mother and her daughters doing the best they can to survive an unexpected life scenario. Please donate today to help this young lady and her family as they wait and keep their faith that Kura will regain her vision and recover her health as soon as possible.
  
Stated by a friend of Kura's and agreed upon by all of us, "I love Kura so much and every day I am so sad to know she's in so much pain.. She is such a beautiful individual inside and out."

Please help us help Kura and her family in their time of need, and may you be blessed in all that you do.  #kurascause # teamkura #prayersforkura


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Kura is home resting and recovering from Brain surgery where she is surrounded by family and friends just loving her through the recovery journey. During this time we met so many people and have amazing memories from the hospital see the video below that Shows all the love that surrounded us during this journey . We have a long way to go but we have come this far by faith. Your donations will help with Kura's post surgery recovery and all her new medical needs that will continue . She has Ventriculoperitoneal Shunt
in her brain and that will keep the fluid from the tumor from making her go blind and causing pressure this shunt will remain inside her head for the rest of her life she will continue to live a happy blessed life filled with Love and Dreams we thank you in advance for any contributions you can make. Pseudo Tumor Cerebri is serious and she will be under doctors care for a very long time but will live life as freely as possible. The long term cost of her care is beyond my thoughts at this moment I am just grateful to have my daughter alive and smiling..
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For 5 hours I waited I began to unravel during the last hour but I found peace in the sounds of gospel music a long shower and quietly talking to God as I picked out a yellow out fit to wear. When she wakes up I want her to see me as bright as the sun for I am her mother she is my child I must be a pillar of strength love and hope for her always despite the circumstances of life . God will carry you. Each hour was truly painful but the love of my daughter and the love of friends and family calling me and praying with me help me through yes I cried I cried all types of tears but I also rejoiced in knowing God wasn’t going to leave me with only 1 child I knew my mother and father were standing at the gates of heaven saying no not yet it was hard these last 5 hours but here I am with both my daughters breathing . No one will ever know what this journey has felt like I am forever changed I am not the same my heart is fragile but my spirit is strong I have a responsibility as their mother to rise above it all despite how hard it is or how painful it is this was the most difficult test of my faith my strength my courage it was all just a deeper shade of pain that I ever felt . Here I stand giving God all the praise glory and honor for once again never leaving me for always protecting me and my children as we travel this journey of life together . What I will tell all of you is LOVE is the most essential ingredient you need to survive this journey without Love you have nothing so love each other pray for each other embrace each other during the hard times don’t look the other way look into the hearts of people you Love and be there for them when a storm is passing over there head LOVE is the greatest umbrella in life . Thank you all for your prayers for your love for your positive energy thank you all for making time for me and my daughters during this very long difficult journey. #prayersforkura
#kurascause
#brainsurgery
#pediatricicu
#godisgoodalways
#recoverytime #theremustbelove
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Now the journey of pseudo tumor cerebri has arrived at brain surgery tomorrow morning at 7:30am the journey has felt surreal the fight to keep her from going blind was a battle and we have always known about this brain surgery option we just chose to try other routes before taking our last chance . Kura has been so strong during this whole experience it’s amazing watching her handle all the poking and needles and procedures and medication . I am optimistic that her surgery will go well God willing and she will be back home to recover the rest of the summer quietly . We need the help more now then ever before . Thank you in advance thank you for your prayers thank you for all the love and support you have shown us. I am beyond grateful . ❤️
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Well here we are it’s the night before her brain surgery and all I can do is pray that God continues to keep us. The doctors all worked so hard for over a month to do anything but cut her head open but the reality became a serious reality and now she will receive a shunt in her head that will stay there for the rest of her life. Now we begin a journey like no other mother and daughters embarking on this together side by side . Thank you in advance for your continued support and love ❤️
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$6,445 of $10,000 goal

Raised by 93 people in 1 month
Created June 10, 2018
Team Kura
on behalf of Janice Robinson
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