Kevin's Journey - Treating Lyme Disease
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Thank you from the bottom of my heart for clicking on this link.
The last 2 years our healthcare system has failed Kevin … countless doctor’s appointments and visits to the ER looking for answers and nobody would listen.
Kevin’s symptoms of muscle, joint & back pain left unanswered. When he started having issues with his nervous system, vision and cognitive abilities, those symptoms were also left unanswered. The pain that he has been experiencing is debilitating, often confining him to bed, isolating him from friends and family and preventing him from attending his University classes. At one point the pain that he was experiencing was so unbearable that it made him suicidal – if this was going to be his life, he just wanted to die. Distraught and desperate, once again his mother (Silvia) brought him to the ER where she was told that her son had mental issues and it was suggested that he be admitted to the psych ward. Silvia was enraged and extremely frustrated with the lack of empathy and unwillingness to help from the medical staff. She brought him home.
Having no positive results in our own City, Silvia travelled 2hours east to another hospital where Kevin was admitted, but again there were no answers for the many symptoms that he was experiencing, let alone the severe pain crippling him.
Kevin’s symptoms and pain continued to escalate. The family was desperate to help their son – they not only wanted, but NEEDED some answers. So, they embarked on a medical journey of their own, one that would be financially straining. This past November they headed to the US and paid a very large sum of money to have scans and various testing completed. The test results were astonishing! Kevin’s entire spine was in horrendous shape - from bulging discs, disc height loss and desiccation, neural foramina narrowing, schmorls nods – many of these issues missed by doctors on prior testing completed in our City. They were told that Kevin needed to see a neurosurgeon, and that the problems were so severe that surgery may not even be option. They were also told that Kevin was much too young to be a candidate for such a complicated surgery.
The roller coaster of testing began, most coming back negative. But it was determined that Kevin had a nerve disease – however doctors could not agree on what exactly caused this. Kevin started taking pain meds which helped the inflammation affecting his entire body to slowly come down. An eye doctor has confirmed that Kevin’s eyes and cognitive abilities had been compromised by the nerve disease. Treatment for his brain & eyes is an 11 month regiment, costing more than $8,000.00. Treatment for his back issues is attending a special clinic for back decompression, which in the long term will cost between $6,000.00 and $8,000.00. Neither treatments being covered by our health system.
This past Thursday results came back from California that have confirmed that Kevin has Lyme Disease – we are all in shock, still processing this information. All of us doing our due diligence to educate ourselves on this disease, what the treatment is for late stage Lyme Disease that has already caused so much physical and neurological damage and also trying to establish where to go for the absolute best treatment that is available. The Province in which we live doesn’t appear to be that place. So far our research indicates that the Canadian government will not cover more than 4 weeks of treatment, and our findings are that the best treatment available is located in British Columbia and is 100% out of pocket! There is so much to learn and understand.
We are all heartbroken. Kevin took the news well. He just wants to feel better.
This young man has endured almost two years of pain & suffering that could have been avoided if just one person listened and cared - just ONE person over the last 2 years!! There is a severe crisis in our healthcare system. If it had not been for Silvia & Ilidio advocating and taking a stand for their son - they would still be sitting in limbo, and how much more could this young man take?!
Kevin has a long journey ahead of him. The family is now on a mission to help support their son, and to find him the BEST treatment available, in hopes to repair the damage that has already been done and prevent any further.
PLEASE help support Kevin in this journey. Help him treat this disease.
Any monetary donation that you can afford would be greatly appreciated.
If you are unable to help financially and happen to know someone who is battling this disease, PLEASE ask them to reach out to us, there is so much information that we need to know and also need to understand.
Knowledge = Understanding and we need all of the knowledge that we can possibly get, so we can help Kevin.
PLEASE help this 21 year old young man get his life back.
Thank you from the bottom of our hearts,
Victor & Diane Neves and all of our family. xo
The last 2 years our healthcare system has failed Kevin … countless doctor’s appointments and visits to the ER looking for answers and nobody would listen.
Kevin’s symptoms of muscle, joint & back pain left unanswered. When he started having issues with his nervous system, vision and cognitive abilities, those symptoms were also left unanswered. The pain that he has been experiencing is debilitating, often confining him to bed, isolating him from friends and family and preventing him from attending his University classes. At one point the pain that he was experiencing was so unbearable that it made him suicidal – if this was going to be his life, he just wanted to die. Distraught and desperate, once again his mother (Silvia) brought him to the ER where she was told that her son had mental issues and it was suggested that he be admitted to the psych ward. Silvia was enraged and extremely frustrated with the lack of empathy and unwillingness to help from the medical staff. She brought him home.
Having no positive results in our own City, Silvia travelled 2hours east to another hospital where Kevin was admitted, but again there were no answers for the many symptoms that he was experiencing, let alone the severe pain crippling him.
Kevin’s symptoms and pain continued to escalate. The family was desperate to help their son – they not only wanted, but NEEDED some answers. So, they embarked on a medical journey of their own, one that would be financially straining. This past November they headed to the US and paid a very large sum of money to have scans and various testing completed. The test results were astonishing! Kevin’s entire spine was in horrendous shape - from bulging discs, disc height loss and desiccation, neural foramina narrowing, schmorls nods – many of these issues missed by doctors on prior testing completed in our City. They were told that Kevin needed to see a neurosurgeon, and that the problems were so severe that surgery may not even be option. They were also told that Kevin was much too young to be a candidate for such a complicated surgery.
The roller coaster of testing began, most coming back negative. But it was determined that Kevin had a nerve disease – however doctors could not agree on what exactly caused this. Kevin started taking pain meds which helped the inflammation affecting his entire body to slowly come down. An eye doctor has confirmed that Kevin’s eyes and cognitive abilities had been compromised by the nerve disease. Treatment for his brain & eyes is an 11 month regiment, costing more than $8,000.00. Treatment for his back issues is attending a special clinic for back decompression, which in the long term will cost between $6,000.00 and $8,000.00. Neither treatments being covered by our health system.
This past Thursday results came back from California that have confirmed that Kevin has Lyme Disease – we are all in shock, still processing this information. All of us doing our due diligence to educate ourselves on this disease, what the treatment is for late stage Lyme Disease that has already caused so much physical and neurological damage and also trying to establish where to go for the absolute best treatment that is available. The Province in which we live doesn’t appear to be that place. So far our research indicates that the Canadian government will not cover more than 4 weeks of treatment, and our findings are that the best treatment available is located in British Columbia and is 100% out of pocket! There is so much to learn and understand.
We are all heartbroken. Kevin took the news well. He just wants to feel better.
This young man has endured almost two years of pain & suffering that could have been avoided if just one person listened and cared - just ONE person over the last 2 years!! There is a severe crisis in our healthcare system. If it had not been for Silvia & Ilidio advocating and taking a stand for their son - they would still be sitting in limbo, and how much more could this young man take?!
Kevin has a long journey ahead of him. The family is now on a mission to help support their son, and to find him the BEST treatment available, in hopes to repair the damage that has already been done and prevent any further.
PLEASE help support Kevin in this journey. Help him treat this disease.
Any monetary donation that you can afford would be greatly appreciated.
If you are unable to help financially and happen to know someone who is battling this disease, PLEASE ask them to reach out to us, there is so much information that we need to know and also need to understand.
Knowledge = Understanding and we need all of the knowledge that we can possibly get, so we can help Kevin.
PLEASE help this 21 year old young man get his life back.
Thank you from the bottom of our hearts,
Victor & Diane Neves and all of our family. xo
Organizer and beneficiary
Diane Neves
Organizer
Windsor, ON
Silvia Dasilva
Beneficiary
