Kennedy's Disease Awareness

$17,075 of $15,000 goal

Raised by 88 people in 13 months
Fred Briones
on behalf of Kennedy's Disease Association
 SANTA CLARA, CA
My name is Ralph Frederick Briones. I am from Northern California. Last year, I was diagnosed with Kennedy's Disease. Kennedy's Disease is a rare X-linked recessive genetic progressive neuro-muscular disease. Both the spinal and bulbar neurons are affected causing muscle weakness and wasting (atrophy) throughout the body which is most noticeable in the extremities (legs/arms), it is especially noticeable in the face and throat, and causes speech and swallowing difficulties, major muscle cramps as well as other symptoms. (KDA Website)





So why am I trying to raise money? Since it's an ultra rare disease that affects only 1 in 40, 000 males, it isn't at the top of the list of most research facilities. There are however, organizations like the Kennedy's Disease Association who fund research on a yearly basis. Becoming a member of the KDA has been such a blessing. The network and support system that exists has helped me uderstand the disease and given me the resources to live a healthy life.

We are closer than ever to find a viable treatment and cure. Although, we need your help and support so we can provide the neccessary funding for Kennedy's Disease research.  Each year, the Kennedy's Disease Association awards grants for research which is funded by donations and fundraisers like this.

The best thing about this fundraiser will be the awesome perks that will be added. We have autographped cookbooks, hot sauce and salsa from bay area local buisinesses, dance classes, martial arts classes, gift cards and autographed memorabilia from my personal collection. If you are also interested in donating item for perks, please contact me! 

I will be updating this page soon with new perks. Keep checking. Thank you all for your generosity. This means the world not only to me, but to all my brothers in the video and around the world. Let's find a cure for Kennedy's Disease.

All of the proceeds will go directly to the Kennedy's Disease Association.

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Thank you all for your continued support and generous donations. Yesterday, we reached our goal and surpassed the $15,000 mark. Please continue to help spread awareness for Kennedy’s Disease and share this campaign. Together we are stronger.
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Hello,

This year we hope to continue to raise awareness for Kennedy's Disease. Last year we raised over 10,000. Your generous donation will continue to help fund research and education.

Thank you and I appreciate your support.

Kennedy's Disease Awareness
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Hello all. Thank you for all your support. Today is #GivingTuesday and I am asking for your help. I am increasing my original goal to $12,000. We are closer than ever to finding a treatment or cure for Kennedy's Disease. Your donation will directly fund research and education. Again, thank you. The entire Kennedy's Disease community appreciates your generosity.

Here is a video from Rare Disease Day 2017 with many of my KD brothers from around the world.
Living with Kennedy's Disease
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Hello,

I wanted to thank everyone who has supported the campaign so far. The most important aspect of this fundraiser is raising awareness for Kennedy's Disease. With your help we had over 900 views on Youtube from over 16 countries. That may not seem like a lot , but KD is an extremely rare disease. Please continue to spread awareness and hopefully we find a cure soon. Thank you again for all your continued support.
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$17,075 of $15,000 goal

Raised by 88 people in 13 months
Created February 28, 2017
Fred Briones
on behalf of Kennedy's Disease Association
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$5,000
Anonymous
21 days ago
$50
Anonymous
1 month ago
$25
Christine Bradfield
1 month ago
1
1

Sorry I’m late! Blame it on Filipino time! ❤️

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