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Kayla who has Juvenile Huntington disease

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Kayla is 16yrs old has been diagnosed with Juvenile Huntington disease, a deadly disease that there is no cure for, Kayla living with this nasty disease is hard for her day in and day out, the small things like to brush her hair have a shower and get herself dressed, she can't do any more, she has the help of her wonderful mum (Rachel) has shown strength to Kayla even when it's hard, Rachel now cares for Kayla full time, giving up her full-time job that helped provide for Kayla and her sister Hayley. Kayla muscle movements, gait difficulties, irritability, fidgeting, clumsiness, and seziures. Speaking and speach is hard and getting harder to understand, her eating is getting more difficult for her also now, Psychotic behaviour she can't control because her brain can't tell her what to do, abnormality walking, and coordination is getting worse every day, This disease is slowly eating her brain cells away Huntington's disease is a genetic condition that causes progressive degeneration of the brain and spinal cord. This will eventually kill kayla, life expectancy is 8-10yrs I am writing this with a heavy heart I honestly believe Kayla does not have long left and I want her to do the things she wants to do before her passing. I want to help get this out there every small donation helps get Kayla out and do what she wants before she is bed ridden the last legs of life.

Organizer

Amanda Huysmans
Organizer
Carrum Downs VIC

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