Katie King's FUN WISHES Fund
McKenna passed away from #DIPG just as Katherine did, and her family works tirelessly to raise funds for pediatric brain cancer. They supported our family, and were able to help guide us to treatments and medicines throughout our DIPG journey with sweet #KatherineTheBrave.
Sadly, this year, Katherine will not be there with us. She had the most wonderful time at last years stand. She loved serving lemonade.
I need some youngsters and teeny boppers to:
Serve lemonade to paying customers.
Pass out flyers to the local businesses.
Put flyers on cars in the parking lot.
Set up the stand.
Take down the stand.
Location: Schools First Credit Union, 2300 Harbor Blvd, Costa Mesa, CA 92626.
Starts at 9 AM and ends at 1 PM.
Let me know if you are interested! Volunteer hours will be given to the kiddos if needed!
If you just want to donate to help us find a cure for DIPG, and for kids like Katherine, McKenna Claire, Parker Landis, and thousands more, you can go here and mention Lemonade Stand! We will add it to the total at the end of the day!
This “hopeful” trial at CHLA is called PBTC-042/CDK4-6/PD-0332991. It would only require that Katie not be off Avastin for 3 weeks. Scary. The other was 6, and you can guess our answer to that one... She would need to be off Panobinostat, for two. Doable. A brief definition: “Tumor cells grow and divide rapidly and uncontrollably. In normal cells, specific proteins and their enzymes called cyclin dependent kinases (CDK4 and 6) tightly control the process of cell division. Another protein called Rb1 also regulates this cell division and stops the cells from dividing. This Rb1 protein suppresses tumor formation in normal cells. But in cancer, the two kinases (CDK4 and 6) are out of control and drive the cell to divide and form cancer. Tumor cells can sometimes transform or inactivate Rb1 to help them divide continuously. In this study, we are testing an experimental drug called PD-00222991 (called Palbociclib) that works by inhibiting the CDK4 and 6 proteins. In animal studies, researchers have found that this drug works only if tumor cells have an intact Rb1 protein. Over 60 percent of brain tumors in children are likely to have an intact Rb1 protein. You have approached for this study because tumor has been identified to have an intact Rb1 protein"
Not one DIPG patient is on this trial. We would be the first at CHLA. And we don’t know if Katie has this Rb1 protein. We can’t biopsy, so we stab in the dark, and hope. Katherine King’s life is dependent on a drug that we don’t know will work, but is promising, in the petri dish and in lab mice. We have to stop all other drugs, that may, or may not be working, to take this hopeful drug that may, or may not work as well, and hasn’t been tested on any other pediatric patients. The sad look on the doctors face is familiar, yet stark, every time.
That is all I have, and could possibly bear, for today. But no matter what, I wanted to update you all. You all have done so much for Katherine and us, and you deserve an update.
6/2/2015 4.5 x 3.4 x 3.8 cm.
8/18/15 3.6 x 2.6 x 3.2 cm.
10/14/15 4.1 x 3.0 x 3.3 cm.
12/10/15 4.4 x 3.2 x 3.8 cm.
Below is a picture that we took at #MaxLoveProject today with Abigail. She had so much fun, and couldn't hug Abigail enough. Even in this whole mess, she is turning into such a compassionate, loving young lady like Tori and Alissa. I love these girls so much. I am grateful for every day. I promise girls.
#PleaseShareKatherinesStory #MakePeopleListen #KatherineTheBrave #DIPG #DIPGMonster #4IsNotEnough #DIPGWarrior #FightLikeAGirl #ItTakesAVillage
Im sorry I have nothing to give to help with the medical expenses, but what I can give is my prayers for beautiful Katie and all of her loved ones. I promise to share your story Katie in hopes that maybe one day someone can fight this ugly monster called cancer. Stay strong mom , dad and family. Katie you are truely an angel and my role model. Thank you for being so brave.
as a father, i can't even begin to imagine what you're all going through. you're in my prayers. based on so much research and reading I've done on cancer -- mostly holistic approches, it has become apparent that sugar feeds cancer cells. cut all sugars, fruits, carbohydrates and such completely and stick to fresh vegetables. it has shown much promise in many people. sorry for all you're going through and do know that your daughter is an inspiration to many.