656
656
158

Karin “Kiki” Quinn WE LOVE YOU

$61,309 of $10,000 goal

Raised by 471 people in 14 months
Created June 16, 2018
Team Kiki
Dear family and friends. My wife Jules and I are shocked and saddened utterly devastated to announce that our lives have been completely upended by the discovery of what looks to be stage 4 neuroblastoma in our amazing 15 month old daughter Karin Quinn aka “Kiki.”

Whether you call her Karin, Quinn, Kiki or Baby Q, the fact remains- she is amazing and uniquely fun, smart, and beautiful- our only daughter and the center of our world.

On June 14, Jules and Barbara Dockery took Quinn to her pediatrician to check out whether Baby’s cute pot belly was anything to worry about. He recommended an ultrasound to be sure.

She immediately underwent an ultrasound procedure at Tarzana Children’s Hospital which revealed a large mass on her liver. Julie and Quinn were transported via ambulance to UCLA for admission. Here we remain.

An MRI and CT scan revealed that Quinn has what appears to be a rare, aggressive and particularly lethal form of cancer known as neuroblastoma, an evil disease that lurks in healthy babies and then strikes.

In diagnosing this disease, Kiki underwent two biopsies, one on the mass itself (about the size of potato, located next to her liver), and another sample from her pelvic bone. They are anticipating that the cancer has spread to her bones. It will take more time to confirm this, but what is being discussed now is the reality of stage four neuroblastoma.

This is as bad as it gets. In our future is the entire spectrum of aggressive cancer treatments. Our precious baby will be subjected to Chemo, radiation, surgery, stem cells, and possibly be brought to the brink of death in order to heal from this terrible disease. No less than 3 lives are on the line.

The outpouring of support we’ve received from our friends and family is incredible. Many have asked what, if anything can be done to help.

First, hug your loved ones and be kind to them. Second, donate blood, if you can. Third, send healing thoughts, prayers, and good vibes to baby Quinn. We really really need to catch a lucky break.

Without prompting, Julie’s sister Crystal initiated this gofundme page in support of Kiki. We are NOT expecting donations but we understand that for many, donating to be a part of Quinn’s fund will feel like a concrete step on the road to recovery, and we are grateful for the support.

Thank you all, from the bottom of our hearts.
+ Read More
Kiki is HOME! On Saturday we were discharged from what is hopefully (fingers crossed!) our last inpatient treatment! The doctors and nurses on the fourth floor oncology are the BEST and we will miss them dearly.

Now that we have completed antibody therapy, there's just the immunotherapy left to finish- a few more shots in the leg and a couple cycles of accutane pills - all administered by Julie and I, from home!

No more packing/unpacking for overnight stays, and no more commuting to and from the hosptial.

We still have many scans, tests, appointments, and dressing changes lined up over the next couple months, which take time and efforts but we don't mind. As has been discussed between Julie and I, these rituals keep us in fighting shape, staying proactive and vigilant.

BTW, she did great in the hospital with this round of antibody and we are happy to report that aside from some serious mood swings, she's back to her normal self at home and eating a ton and having lots of fun. Her new favorite movie is "Jacky" aka Nightmare Before Christmas, which we watch 3 times a day. Lucky for her Julie and I love this movie too
+ Read More
Yesterday Kiki was admitted to inpatient CHLA for immunotherapy cycle 5 - theoretically the LAST inpatient stay for this protocol!

We are NEARLY THERE!

She's tolerating the ch14.18 pretty well and eating a good amount so far too. The pain seems well managed and fingers crossed this goes smoothly. The infusion lasts 5 days total and is supplemented by some shots in her thighs that stimulate white blood cells to grow. Julie is staying with Kiki overnight and I visit in the mornings before heading to work. My parents help out by covering for Julie when she needs to run an errand or pick up a shift at work.

By now we have many friends here at the hospital as well and Kiki loves to visit them and share her snacks. But not too much sharing ;)
+ Read More
Our days lately feel normal but it's always the calm before the storm. Kiki is, frankly, doing great so far but it's hard to reconcile that with stories we read online of children relapsing when everything seemed to go so well. We embrace this new relative normal but we know better than to take it for granted. It's still a day by day thing.

Kiki's hair has grown back very cutely and as she basically scans as a normal kid, she's been dipping her toes into dance classes and playdates with caution being foremost in our minds. We didn't come this far to start risking it all on some freak accident or illness.

Today we start GCSF (leukine) shots- as we've done many times before. These shots, delivered by Julie into Kiki's thighs, stimulate the bone marrow in her femurs to grow lots and lots of white blood cells. This provides the army to fight against any remaining neuroblastoma cells. Immunotherapy provides the antibodies that target the NB cells specifically. With any luck her immune system will thus be trained for any potential battles to come down the road.

Tuesday we go back to CHLA for what may hopefully be her last inpatient stay. 5 days and then the rest of our protocol calls for at-home medications which theoretically cease in October.

Fingers crossed.

Day by day.
+ Read More
Been a little quieter with posting lately. But I don't want people to get too anxious. Just trying to keep our heads down and not tempt fate too much these days. We are inbetween immunotherapy stays which means we are trying to kind of live normal lives. Well, we always tried to live normal lives but there always was too much medical chaos, and of course, Kiki's
Gaunt, bald, and vulnerable appearance always made for awkward elephant-in-the-room conversations with new acquaintances. But these days, shes looking more or less like a typical skinny short haired kid, and she's very outgoing and independent, and always charms anyone who she meets along our adventures. And no more awkward interactions based on her appearance. Not that Kiki could ever tell the difference, but still.

Still, the other day we had a situation were Kiki's CVC dressing (the central port that runs into her hear and hangs out of her chest, held in place by tape, basically) got wet accidently while bathing her. A wet dressing is a potential infection site. That means a four hour visit to CHLA emergency room to get the dressing changed out.

Any normal family would dread a visit to the emergency room but CHLA is practically our "apartment" and so we had no anxiety about the situation at all- but it was a big inconvenience for our sleep.

Kiki always does great with her dressing changes though. The nurses are always impressed as most kids will thrash and require restraints or cry inconsolably at the least. Kiki however prefers to quietly watch cartoons (on Julie's iPhone pictured here) or maybe even nap.

Also pictured are some fun pics of us just doing our normal family thing as best we can. Kiki has discovered Pringles and so we are often these days indulging her latest craving.
+ Read More
Read a Previous Update

$61,309 of $10,000 goal

Raised by 471 people in 14 months
Created June 16, 2018
Team Kiki
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
GR
$100
Gerald Roskilly
8 hours ago
$20
Eric Camper
4 days ago
$150
Anonymous
11 days ago
PG
$20
Pete Gast
26 days ago
MA
$100
Mary Anderson
28 days ago
$150
Anonymous
29 days ago
$150
Anonymous
1 month ago
$100
Anonymous
1 month ago
$300
Katie Vinten
2 months ago
FR
$100
Fred Ray
2 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.