Karin “Kiki” Quinn WE LOVE YOU

$46,272 of $10,000 goal

Raised by 375 people in 29 days
Dear family and friends. My wife Jules and I are shocked and saddened utterly devastated to announce that our lives have been completely upended by the discovery of what looks to be stage 4 neuroblastoma in our amazing 15 month old daughter Karin Quinn aka “Kiki.”

Whether you call her Karin, Quinn, Kiki or Baby Q, the fact remains- she is amazing and uniquely fun, smart, and beautiful- our only daughter and the center of our world.

On June 14, Jules and Barbara Dockery took Quinn to her pediatrician to check out whether Baby’s cute pot belly was anything to worry about. He recommended an ultrasound to be sure.

She immediately underwent an ultrasound procedure at Tarzana Children’s Hospital which revealed a large mass on her liver. Julie and Quinn were transported via ambulance to UCLA for admission. Here we remain.

An MRI and CT scan revealed that Quinn has what appears to be a rare, aggressive and particularly lethal form of cancer known as neuroblastoma, an evil disease that lurks in healthy babies and then strikes.

In diagnosing this disease, Kiki underwent two biopsies, one on the mass itself (about the size of potato, located next to her liver), and another sample from her pelvic bone. They are anticipating that the cancer has spread to her bones. It will take more time to confirm this, but what is being discussed now is the reality of stage four neuroblastoma.

This is as bad as it gets. In our future is the entire spectrum of aggressive cancer treatments. Our precious baby will be subjected to Chemo, radiation, surgery, stem cells, and possibly be brought to the brink of death in order to heal from this terrible disease. No less than 3 lives are on the line.

The outpouring of support we’ve received from our friends and family is incredible. Many have asked what, if anything can be done to help.

First, hug your loved ones and be kind to them. Second, donate blood, if you can. Third, send healing thoughts, prayers, and good vibes to baby Quinn. We really really need to catch a lucky break.

Without prompting, Julie’s sister Crystal initiated this gofundme page in support of Kiki. We are NOT expecting donations but we understand that for many, donating to be a part of Quinn’s fund will feel like a concrete step on the road to recovery, and we are grateful for the support.

Thank you all, from the bottom of our hearts.
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Kiki is now in her 2nd day of her 2nd cycle of chemo, and so far so good. CHLA has been great for her and she’s even been able to get some time out of the room to stretch her legs and work on her drum solos.
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Today was a big day! Yesterday Dr Kiki self-elected to remove her own chest tube when nobody was looking, and today the surgery team has decided to back this bold decision and let it ride. So, one small step towards independence. She’s still needing 24 TPN to gain her weight back but that’s definitely for the best. Today she was able to do her first romp around the playroom at CHLA, further displaying her tenacity to the adoring medical staff.
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Today we had our first haircut! The chemo is causing kiki to lose her hair at a rapid rate and so I had my hairstylist come by the hospital bed to give us a new ‘do. Short hair suits her just fine I think!

On an aside note, I’ve noticed that not all the ‘thank you’s’ I’ve been sending on this site are not quite sticking, so if you haven’t been thanked, or have been thanked more than once, it may be due to technical difficulties. Anyway, thank you all!!
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Yesterday we made the transfer to Children’s Hospital of Los Angeles. They have an amazing team here dedicated to neuroblastoma patients and we are blessed to be their newest addition. The docs, nurses and care partners here are world-class. Much love to our team at UCLA who got us this far this fast. We will always be grateful.

Kiki still has her chest tube in but is finally out of the PICU and her appetite back in a big way- thank goodness. Tonight we are beginning to also supplement her nutrition intravenously via TPN which should put some meat back on her bones.

She’s also finally sitting up without pain, and eagerly playing with toys, stacking blocks, talking, signing, and enjoying lots of cartoons and music.

Though far from our usual holiday plans, this year we still get to spend our Fourth of July together as a family and enjoying the view of fireworks from our hospital room. Love to everyone!!
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$46,272 of $10,000 goal

Raised by 375 people in 29 days
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