652
652
117

Karin “Kiki” Quinn WE LOVE YOU

$54,314 of $10,000 goal

Raised by 452 people in 11 months
Created June 16, 2018
Team Kiki
Dear family and friends. My wife Jules and I are shocked and saddened utterly devastated to announce that our lives have been completely upended by the discovery of what looks to be stage 4 neuroblastoma in our amazing 15 month old daughter Karin Quinn aka “Kiki.”

Whether you call her Karin, Quinn, Kiki or Baby Q, the fact remains- she is amazing and uniquely fun, smart, and beautiful- our only daughter and the center of our world.

On June 14, Jules and Barbara Dockery took Quinn to her pediatrician to check out whether Baby’s cute pot belly was anything to worry about. He recommended an ultrasound to be sure.

She immediately underwent an ultrasound procedure at Tarzana Children’s Hospital which revealed a large mass on her liver. Julie and Quinn were transported via ambulance to UCLA for admission. Here we remain.

An MRI and CT scan revealed that Quinn has what appears to be a rare, aggressive and particularly lethal form of cancer known as neuroblastoma, an evil disease that lurks in healthy babies and then strikes.

In diagnosing this disease, Kiki underwent two biopsies, one on the mass itself (about the size of potato, located next to her liver), and another sample from her pelvic bone. They are anticipating that the cancer has spread to her bones. It will take more time to confirm this, but what is being discussed now is the reality of stage four neuroblastoma.

This is as bad as it gets. In our future is the entire spectrum of aggressive cancer treatments. Our precious baby will be subjected to Chemo, radiation, surgery, stem cells, and possibly be brought to the brink of death in order to heal from this terrible disease. No less than 3 lives are on the line.

The outpouring of support we’ve received from our friends and family is incredible. Many have asked what, if anything can be done to help.

First, hug your loved ones and be kind to them. Second, donate blood, if you can. Third, send healing thoughts, prayers, and good vibes to baby Quinn. We really really need to catch a lucky break.

Without prompting, Julie’s sister Crystal initiated this gofundme page in support of Kiki. We are NOT expecting donations but we understand that for many, donating to be a part of Quinn’s fund will feel like a concrete step on the road to recovery, and we are grateful for the support.

Thank you all, from the bottom of our hearts.
+ Read More
So far so good this week with IL-2 immunotherapy, Kiki is being her usual cute and energetic self and basically helping herself to snacks and cartoons while we wait out this infusion. Turns out they only have to hook her up to this little automatic pump about the size of a original game boy, and that’s it. So she can pretty much move about almost as normal. Quite a drastic change from the usual 5 or 6 drips, pumps and infusions running simultaneously for 24 hours. As of now we’ve not noticed any side effects, but we’ve been warned that next week will be likely very uncomfortable for her, as they reintroduce Ch14.18 to pair with the IL-2, and apparently it’s extremely “irritating” to the entire nervous system, to say the least. So, we’ll take the easy days as we can get them, and hope for the best next week.
+ Read More
We had a great Mother’s Day weekend, enjoying a nice break from work and medical obligations, and making the most of our time together. She thankfully recovered all of her normal coordination and appetites and was pretty much “back to normal” for the past week.


This Tuesday we go back to CHLA for a two week infusion of the next round of immunotherapy. It’s a different drug, called IL-2, and it will run 24 hours over the entire stay at the hospital. Fingers crossed we tolerate it well.
+ Read More
It was pretty tough to suss out her status earlier this past week- we came off of inpatient immunotherapy (ch14.18 also known as diminuxitab) but started two new treatments at home - gm-csf (a shot that makes white blood cells grow) and Accutane (encourages immature nerve cells to mature- neuroblastoma is a cancer of immature nerve cells). It’s a lengthy morning regimen of shots and oral syringes in addition to our daily meds already in place, and in general constitutes a rude awakening no matter how early you get up. Basically, her normally easygoing personality was supplanted with a tendency to fret and obsess- and problems communicating what she wanted. Not to mention not being interested in eating or drinking much. She did lose a pound. But we do our best to reassure her and feed her despite her lack of interest. She’s likely had some peripheral neuropathy- like a tingling in the arms and legs- leaving her uneasy in her stance and we’ve had a few topples and face plants, so we have some scabs on our face. And Accutane dries your skin out so we have to guard against sun exposure and apply lots of lip balm and ointments to keep her from drying out. Short story is: immunotherapy is no walk in the park. But we are hanging in there. And learning to climb up on things ;)
+ Read More
We are home from immunotherapy! It was a rough go in terms of pain and therefore sleep but time flies when you’re having fun and we are already back home enjoying some new and old favorite treats. She’s a little more cranky and loopy, almost like a hangover, though it’s hard to describe. Mood swings, tantrums, diarrhea and general discomfort are unfortunately side effects of this treatment. Hopefully temporary. But we are very glad to be home again!
+ Read More
Read a Previous Update

$54,314 of $10,000 goal

Raised by 452 people in 11 months
Created June 16, 2018
Team Kiki
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$100
Anonymous
13 days ago
$100
Anonymous
14 days ago
$100
Anonymous
29 days ago
TO
$100
THOMAS ORR
1 month ago
$100
Anonymous
1 month ago
$100
Anonymous
1 month ago
$100
Anonymous
1 month ago
$150
Amanda Lee Greenman
1 month ago
$100
Katie Vinten
1 month ago
ND
$100
Nicholete Davis
1 month ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.