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Karin “Kiki” Quinn WE LOVE YOU

$60,769 of $10,000 goal

Raised by 465 people in 13 months
Created June 16, 2018
Team Kiki
Dear family and friends. My wife Jules and I are shocked and saddened utterly devastated to announce that our lives have been completely upended by the discovery of what looks to be stage 4 neuroblastoma in our amazing 15 month old daughter Karin Quinn aka “Kiki.”

Whether you call her Karin, Quinn, Kiki or Baby Q, the fact remains- she is amazing and uniquely fun, smart, and beautiful- our only daughter and the center of our world.

On June 14, Jules and Barbara Dockery took Quinn to her pediatrician to check out whether Baby’s cute pot belly was anything to worry about. He recommended an ultrasound to be sure.

She immediately underwent an ultrasound procedure at Tarzana Children’s Hospital which revealed a large mass on her liver. Julie and Quinn were transported via ambulance to UCLA for admission. Here we remain.

An MRI and CT scan revealed that Quinn has what appears to be a rare, aggressive and particularly lethal form of cancer known as neuroblastoma, an evil disease that lurks in healthy babies and then strikes.

In diagnosing this disease, Kiki underwent two biopsies, one on the mass itself (about the size of potato, located next to her liver), and another sample from her pelvic bone. They are anticipating that the cancer has spread to her bones. It will take more time to confirm this, but what is being discussed now is the reality of stage four neuroblastoma.

This is as bad as it gets. In our future is the entire spectrum of aggressive cancer treatments. Our precious baby will be subjected to Chemo, radiation, surgery, stem cells, and possibly be brought to the brink of death in order to heal from this terrible disease. No less than 3 lives are on the line.

The outpouring of support we’ve received from our friends and family is incredible. Many have asked what, if anything can be done to help.

First, hug your loved ones and be kind to them. Second, donate blood, if you can. Third, send healing thoughts, prayers, and good vibes to baby Quinn. We really really need to catch a lucky break.

Without prompting, Julie’s sister Crystal initiated this gofundme page in support of Kiki. We are NOT expecting donations but we understand that for many, donating to be a part of Quinn’s fund will feel like a concrete step on the road to recovery, and we are grateful for the support.

Thank you all, from the bottom of our hearts.
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Some sad news to report. We had our ultrasound this morning and one of the twins did not make it. She looked to be a little girl and her size was approximate to 18 weeks. We are sad but processing the news well I think. We were always aware that this sort of thing could happen.

Our little boy is looking very good so far though, and a good size for 20 weeks, so we are excited about that and will be focusing on the positive as best we can in the days ahead.
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Well this week wasn’t too crazy so far. Kiki had to have a 5-day infusion of IL-2 which is some kind of antibody or immunotherapy precursor. It doesn’t hurt (though can cause a reaction- in our case it seems to have made her elbows dry) and this time her Drs have allowed us to take the infusion pump home, which isn’t easy since it can’t turn off or be disconnected, thus she’s kind of on a fragile leash of sorts. But we did our best and daddy (myself) slept on the floor next to her bed to make sure she didn’t get up and accidentally disconnect while we weren’t watching. Kind of exhausting and we found even the small things like getting dressed or taking out the trash nearly impossible without another adult present. But we toughed it out and Kiki’s grandparents were a big help as well.

Of course on the last day, grandpa discovered he could clip the pump to the back of her overalls and then she could run around to herself. Well, better late than never.

Also, Kiki had a big CT scan this week, but she was cooperative with drinking her special “apple juice” (containing the contrast for the scan) and while we haven’t heard anything directly regarding results, no news is treated as good news until notified otherwise. So for now, we are excited to spend the weekend untethered and altogether.

This coming Tuesday, Julie and Kiki will spend the week inpatient at Chla for cycle 4 (I believe) of ch14.18 and IL-2.
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Happy Fourth of July! We had a fun day off all together all day long, starting with watching the local neighborhood parade (she loves to see fire trucks) and eating Starbucks pumpkin loaf and Cheetos for lunch. Then we made our way over to our friends’ house for a little pool party - even though Kiki can’t get wet, we loved watching all the other kids splashing and today we FINALLY were willing to try a popsicle and we were instantly hooked. It was a great day. We were too tired to see fireworks but hopefully that’s something we can try next year. I hope you all are having great day!!
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You sitting down? Ok, here’s the season two twist that nobody saw coming ... we WERE going to announce the baby’s gender tonight, but we we only know for sure that one of them is a boy. That’s right, we are having TWINS!!! The other baby is camera shy and we just don’t know yet. So stay tuned. Meanwhile, we are excited, elated, and a little bit terrified of what lies ahead, but we will keep you posted as always. LOVE to everyone!!!
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$60,769 of $10,000 goal

Raised by 465 people in 13 months
Created June 16, 2018
Team Kiki
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