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Karin “Kiki” Quinn WE LOVE YOU

$53,364 of $10,000 goal

Raised by 443 people in 9 months
Dear family and friends. My wife Jules and I are shocked and saddened utterly devastated to announce that our lives have been completely upended by the discovery of what looks to be stage 4 neuroblastoma in our amazing 15 month old daughter Karin Quinn aka “Kiki.”

Whether you call her Karin, Quinn, Kiki or Baby Q, the fact remains- she is amazing and uniquely fun, smart, and beautiful- our only daughter and the center of our world.

On June 14, Jules and Barbara Dockery took Quinn to her pediatrician to check out whether Baby’s cute pot belly was anything to worry about. He recommended an ultrasound to be sure.

She immediately underwent an ultrasound procedure at Tarzana Children’s Hospital which revealed a large mass on her liver. Julie and Quinn were transported via ambulance to UCLA for admission. Here we remain.

An MRI and CT scan revealed that Quinn has what appears to be a rare, aggressive and particularly lethal form of cancer known as neuroblastoma, an evil disease that lurks in healthy babies and then strikes.

In diagnosing this disease, Kiki underwent two biopsies, one on the mass itself (about the size of potato, located next to her liver), and another sample from her pelvic bone. They are anticipating that the cancer has spread to her bones. It will take more time to confirm this, but what is being discussed now is the reality of stage four neuroblastoma.

This is as bad as it gets. In our future is the entire spectrum of aggressive cancer treatments. Our precious baby will be subjected to Chemo, radiation, surgery, stem cells, and possibly be brought to the brink of death in order to heal from this terrible disease. No less than 3 lives are on the line.

The outpouring of support we’ve received from our friends and family is incredible. Many have asked what, if anything can be done to help.

First, hug your loved ones and be kind to them. Second, donate blood, if you can. Third, send healing thoughts, prayers, and good vibes to baby Quinn. We really really need to catch a lucky break.

Without prompting, Julie’s sister Crystal initiated this gofundme page in support of Kiki. We are NOT expecting donations but we understand that for many, donating to be a part of Quinn’s fund will feel like a concrete step on the road to recovery, and we are grateful for the support.

Thank you all, from the bottom of our hearts.
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Today Kiki had her 4th radiation treatment. We go every weekday morning first thing; she’s not allowed to eat or drink beforehand so we go on long stroller walks around the neighborhood to distract her if she wakes up too early, and Julie and I also don’t eat or drink in solidarity. It’s not easy sometimes :) but we manage.

The Radoncs at CHLA have a cool laid back vibe; it’s kind of zen as far as treatments go. They all adore baby who we’ve been told is as cute and sweet as they come.

She’s been tolerating the radiation well enough, and we try to keep her well stocked with Jamba Juice afterwards.

Her folliculitis is looking a little better, though her skin is still quite dry from the creams. Hopefully that doesn’t persist too much longer.

We also had a wonderful St Patrick’s day! And looking forward to turning TWO YEARS OLD this Saturday!!
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Kiki is doing great at home, and had a chance to visit some snow, do some gardening, and help grocery shopping! All in one day ;)

Looks like next week we start radiation therapy. Her Drs are still debating how many treatments, maybe 12, maybe 20, or somewhere in between.
She’ll go in to the hospital early every morning, be sedated, and have about 15 minutes of treatment and then we can go home. We are hoping side effects will be minimal, looking forward to getting this over with.
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Kiki is doing pretty good these days- enjoying her time in between treatments with adventures on the sidewalk and working on our appetites and getting lots of well deserved rest.

She's getting over a case of folliculitis which has covered her with tiny pimples and blotchy patches- but shows no signs of discomfort, thank goodness. And it does nothing to besmirch her beauty, of course. We've been treating it with creams for a few days and it's noticeably improved a great deal so we are a bit relieved from that. We did have to spend a dramatic night in containment at the hospital while they diagnosed it, which is reason in part for our radio silence this past week.

Separately and most tragically, Max (who refers to himself in third person at times of great selflessness) has come down with a "legit effing cold" AKA "man-flu" and this has resigned him into Quarantine at him parent's house. We wish him a speedy recovery.
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Kiki is doing great a home and eating and talking and dancing all the live long day (and not napping; her recent transfusion has topped off her hemoglobins for extra energy).

I should have mentioned it earlier, but #teamkiki shirts are available for this weekend only via a fundraising website set up by our friend Jennifer. It’s been going on all week but I forgot to mention it here. Oh no!

So, hopefully if you would like one, you still have time- February 16-17 and after that it’s done! This is preorder so they will take some time to ship apparently.

Here is the link!
https://jumpingjackapparel.com/collections/threads-of-heart/products/team-kiki-threads-of-heart-tee

And thanks to everyone who has ordered and thank you everyone for your continued support!!!!
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Raised by 443 people in 9 months
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