Kaidyn's Rare1P36 Deletion Syndrome

Kaidyn Matthew Fleming, is almost 2 weeks old and was just given a diagnosis of a very rare disease that affects 1 in 10,000 children. This rare form of disease is called 1P36 Deletion Syndrome. Deletion Syndrome is characterized by moderate to severe Intellectual Disability, delayed growth, seizures, limited speech ability, hearing and vision impairment, and distinct facial features. We are deciding to make this GoFundMe Page to help out with any medical bills, as well as the mother. She will no longer be able to work due to now having the responsibility to take care of her Child who is going to have a severe Disability. This condition is caused by a genetic deletion, a loss of segment of the DNA of chromosome 1. Most of these cases are not inherited; only about 20% of the cases of people with 1P36 Deletion Syndrome inherit the chromosome with a deleted segment from an unaffected parent. There is no cure for this disease... Kaidyn will need to see many doctors and specialists. I appreciate everyone's time, and again, we appreciate everything that can help during this difficult time... bless you all.