Terri's ALS Journey
Since that time, Terri has traveled to the Mayo Clinic, #1 medical institution in the US, to receive a second confirmation and has began the journey to face her diagnosis. Right away, during that trip in early February, Terri made it known to her doctors that she is anxious to participate in any clinical trials shown to improve patients with ALS. The medical staff said its difficult to get into a trial and many people wait a very long period of time.
Being strong in her faith, Terri forged ahead with the belief she would be selected. Well her prayers have been answered. On March 27, Terri received a call that she is going to be one of 48 participants in the US study of Brainstorm's NurOwn stem cell trial.
There are many travel costs associated with this study. Terri will travel back to Rochester, Minnesota 10 times in the next twelve months. The 690 mile journey, lodging, and food x 10 trips = $$ are all on their own dime. Terri has also modified her diet and is taking a regiment of healthy supplements to support prolonging the strength of her muscles.
Terri continues to work as a real estate agent, while Jeff is a programmer at La-Z-Boy in Monroe. However, all of these trips and this new 'not-so-normal' lifestyle costs money and no one household can maintain the cost of everyday life, while fighting a life threatening disease such as ALS. Please, let's band together and help ease the financial burden of participating in this miracle stem cell trial. Please donate today. More fundraising events are in the works, but for now, this is the easiest and quickest way to help out.
Read about Terri's journey by joining the Facebook Group: https://www.facebook.com/groups/terriscourageousbattlewithals/
You can also help support the acceleration of a different drug that is not yet available in the US to ALS patients. Let’s show the FDA that we support the accelerated approval of Genervon GM604 so that all ALS patients can have a chance. Sign this petition and share it with your friends: SIGN PETITION .
May 2016 - Update - Terri and Jeff are still waiting to learn the results of their 2015 clinical trial. In the mean time, they spent some time in Washington fighting for more awareness and funding for ALS patients everywhere. They are presently selling their Canton home and seeking a one story home for the future. Your contributions to this fund will continue to help them deal with the high expenses associated with treating Terri as her ALS illness progresses. Thank you!
God is good always, so are miracles and cures. Now, let's go kick some ALS, Terri style! Thank you!
The 2nd annual MyFriendTerri.com Golf Tournament is set for Saturday, June 3rd at Fellows Creek Golf Club in Canton, Mich. This charity event was established to help Terri Pickering Saenz who is fighting ALS. Again this year, a portion of the proceeds raised will go towards ALS research at the ALS Therapy Development Institute in Boston.
Join Terri and Jeff in a fun filled day as we raise funds to help the Saenz Family battle this horrific disease known as ALS. The funds raised for Terri will be used to help defray the costs associated with this disease that currently is without a cure. Your participation will ease some of that financial burden while funding unique ways to slow down her ALS. We are hopeful of obtaining another application of NurOwn for Terri, developed by Brainstorm and perhaps available in either Canada or Israel in the next 18 months.
Registration to participate in the 6/3/17 golf event is $125 per person and includes 18 holes, scramble format with cart, course contests, gift prizes, lunch at turn, and a dinner reception. The dinner will include a prize 'tin can' auction, cash bar, and loads of fun! It’s $500 for foursome and just $35 for attending the post-golf dinner and post event only.
Advanced registration is requested – Reserve your spot/team today by visiting www.MyFriendTerri.com/event/ and pay by credit card or paypal. Send checks payable to MyFriendTerri.com with your registration form to:
P.O. Box 87914
Canton, MI 48187
Or click here: http://myfriendterri.com/event/register-golfers/ for credit card or PayPal processing. Make sure you mark you are going on our Facebook event ( https://www.facebook.com/events/437430009932067/) and spread the word!
Coming up next month is a fundraiser specifically created to support Terri and her family with expenses associated to configuring their new home for ADA compliance. We are hosting the 2nd annual Bowling Night for MyFriendTerri.com at Westland Bowl on Friday, November 18th from 6:30 to 11:00 pm. Last year was great fun and we are hoping for the same this year.
Registration for the 2016 Bowling Night for MyFriendTerri.com is now open. We are just over 4 weeks away from this great event. Please register online today to reserve your spot. PayPal, credit cards, or checks accepted. Also, email me if you wish to donate a prize to our event. Last year over 50 unique gifts, baskets, cards were donated. Thank you.
Tickets are $25 for adults; $15 for kids ages 12 and under.
Easy to register & pay online at http://myfriendterri.com/event/
Print the form found online and mail in your check made payable to MyFriendTerri.com to our PO Box 87914 Canton, MI 48187.
Entry includes 2 games of bowling, shoe rental, pizza, a buffet of appetizers and treats from Scott Winfrey's Marquis Foodservice Inc., and opportunity to enter a giant room of prizes, gift cards, event tickets, and more!
Thank you for your continued support in helping to battle this disease.
Remember, God is Good Always, and so are Miracles & Cures.
Here's my challenge to you all. The first place team in fundraising right now has collected $8151 in sponsorships - all money goes to ALS Association Michigan Chapter. Our team 'MyFriendTerri.com Kicks ALS' is not even in the top 10.
However, Terri has many friends out there, including all of you who donated to her GoFundMe account. All we are asking for is a small donation of $10! That's it. With your help, we can move into first place. Remember, all donations are tax deductible since ALS Association is a not-for-profit organization.
And if you donate towards helping ALS patients, here's my promise to you: If we are the #1 team on Oct 1, I will make sure our star Ms. Terri is wearing a tiara and sash and we will Facebook Live that special moment for all to see!
Let's make her the beauty queen we all know she is!
Please support our efforts and donate today on our team page. Its super easy. Thank you! #endALS
Here's our link to the team page to donate: http://webmi.alsa.org/site/TR?pg=team&fr_id=12027&team_id=350034
As Terri says, God is Good Always, so are Miracles & Cures!
I wanted to thank everyone! This is unfathomable the work god has done for my family! I can't thank everyone enough and how truly blessed we are!
Jeff and I are sitting just in awe of what God is doing through you. Thank you isn't enough. We wish we could make up a more important word to demonstrate our feelings . But for now thank you - you are lifting a burden that allows us to focus on healing for our family. May God bless you all abundantly!