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Medical expenses for transplant

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As you all know Justin was born with hlhs or hypoplastic left heart syndrome. He has gone through 3 open heart surgeries and 8 cardiac caths. In June he was referrred to the heart failure team at Joe Dimaggio. After multiple test we found out his Fontan is failing. So as of today he was presented to the transplant team for a new heart. We are currently waiting to see what the next step is. With many trips and time off needed to be with him I am asking for help.  I am one not to ask for help in any way, Never in a millions I thought we would going on this journey at the age of ten. Any amount will help us out, and it is truely appeciate it. Thanks all for the many prayers. As of this week he is listed as a status 2 on the list. The next few weeks he will have a picc line place and start Milirone. Then he should move up to a 1b. Will wait at home unless something comes. I just finish school and have not been able to get a job due to the medical appoints. So formation will help with the travel back and fourth. And the time I'll take off of my little part time job. We appreciate it. We are at 200+ days waiting on the heart.

Organizer

Amanda Wise
Organizer
West Palm Beach, FL

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