Justin Page is Living with ALS
Donation protected
This campaign is for the care and feeding of my friend Justin Page , who I have known for an unbelievable 30 years. About three years ago Justin began to have falls walking up and down steps. Many hospital visits and tests later Justin was officially diagnosed as an ALS patient. He has been fighting it like a champ, including participating in a stem cell trial outside of the U.S. His aggressive treatment and unwillingness to give in, has resulted in an unusually slow progression of the disease. Although he did live in a nursing home for a period, he is currently in an apartment. While he uses a wheelchair or walker, he still stands and has the use of his legs. Some days are better than others, and you can hear that in his voice, which is sometimes strong, and other times obviously stressed. His memory is a bit inconsistent, but not his brilliance or obscene sense of humor.
Justin receives Social Security Disability and Medicare , which are wonderful programs, but let’s say modest. From month-to-month finances are a struggle, which is an added struggle no one with ALS needs. In addition, the stem cell trial he participated in was “FDA unapproved,” though approved in the jurisdiction where it occurred. Simply, the U.S. does not necessarily recognize the medical research in other countries, so although his American doctors are very happy with the results, the “system” is not thrilled about his participation, and that causes hiccups in his benefits at times.
To help in the small way I can, I have created this campaign, which hopefully will bring in some funds for Justin’s continuing needs. If you are able, please contribute. Anything and everything will be greatly appreciated.
To know Justin Page is to love him, and sometimes want to throttle him. He’s a lunatic, and a genius, and infuriating, and my best friend. Give generously, and often.
First diagnosis of ALS
Before the wheelchair
In the wheelchair but still living, w/daughter Carina
Not as cleaned up - the way I know him
Me , bad webcam, but real
Justin receives Social Security Disability and Medicare , which are wonderful programs, but let’s say modest. From month-to-month finances are a struggle, which is an added struggle no one with ALS needs. In addition, the stem cell trial he participated in was “FDA unapproved,” though approved in the jurisdiction where it occurred. Simply, the U.S. does not necessarily recognize the medical research in other countries, so although his American doctors are very happy with the results, the “system” is not thrilled about his participation, and that causes hiccups in his benefits at times.
To help in the small way I can, I have created this campaign, which hopefully will bring in some funds for Justin’s continuing needs. If you are able, please contribute. Anything and everything will be greatly appreciated.
To know Justin Page is to love him, and sometimes want to throttle him. He’s a lunatic, and a genius, and infuriating, and my best friend. Give generously, and often.
First diagnosis of ALSBefore the wheelchairIn the wheelchair but still living, w/daughter CarinaNot as cleaned up - the way I know himMe , bad webcam, but realOrganizer and beneficiary
Rebecca Weinstein
Organizer
Portland, ME
Justin Page
Beneficiary
