Jeremy Smith battles MS

$5,188 of $10,000 goal

Raised by 31 people in 28 months
I have been battling Multiple Sclerosis for 6 years now. Over the last several years I have tried many different therapies, only to find myself down again, I have been down since October 2016. My neurologist now is recommending that I go see a specialist at KU Medical Center. Since being down for the time I have been bills have piled up. My family and I are now facing possibly losing our home, and yet more medical expenses and travel expenses. So, I am now seeking help. I know times are hard for everyone, I understand if you are not able to help but please share this post so maybe someone will see it that can help. Asking for help is the hardest thing that I have ever had to do and is a very humbling experience. Please keep me and my family in your thoughts.
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I want to take the time first to appologize for the untimely update, and for checking out on society for the last several months. Unfortunately it's 2:00 am and I'm still awake. It has been 9 months since my last update ,and for that I am truly sorry. This is my second sleepless night in a row. Not really the best thing for me; honestly I'm hoping that after writing this update I will feel better.
I really can't find the words to convey the embarrassment that I feel for checking out on the world and those that I love and care about. For checking on my responsibilities as a husband, father, and friend for the last several months. I am truly sorry for any inconvenience, stress, pain, or grief that I might have caused with my neglect or absence. Again, I let pride get inside my mind and beat me up for my lack in physical stamina and stature. I let the doctors sew the seed of fear in my mind, and I was so blinded by self pity and self doubt, that I let my disease dictate my free will, consume me in a cacoon soul sucking sorrow. So, with my pride lacking, I stuck my head in the sand and let my depression about my disease control my life. I checked out.
Well, I'm checking back in. Better late than never. Now, with my mind free of the guilt and embarrassment. I think its time for my update. Since, my last update we have been back to KU Medical Center. My body has adjusted to my current MS drug, so thankfully my liver is A-OK right now. The headaches that go along with this medication are, for now the best choice for me. The alternative drug has too many side effects and that is not something that I'm willing to risk. I will deal with headaches. For the last several months my doctors have been adjusting my other medications, and have actually reduced the amount of medications that I'm on and I have to get blood work done to check vitamin levels.
I want you all to know I'm am still battling. The war is far from over. I may have been knocked down with fatigue, depression, lack of corrdination, body numbness and countless other issues that coincide with this disease, but I have crested the mountain and I think with the baring of my guilt/pride for my past transgressions I can bear my responsibilities and redeem myself in everyone's eyes.
Thank you all for following my story, being in my life, not giving up on me when i was about to give up on myself, and most importantly helping me and my family out. Much love, Skol, Godspeed.
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Tests results are in, so it is update time again. I wish it was great news, I've been to the doctors more in the last few months than most folks see in five years, unfortunately my liver enzyme levels are now at the "worrisome" stage. My Primary Care Doctor has recommended more invasive procedures to see exactly what is going on. I also have to go see a dermatologist to make sure that the new MS drug is not damaging my skin. We have a call into KU Medical Center for more information and advise on what needs to be done with my liver. Due to my recent set backs, I have not been working very much along with the added medical expenses, we could definitely use some help. Even the smallest donation would help. Believe me I hate asking, and I have explored or done, everything aside from selling a kidney ( at this point I don't think my kidneys would bring much). I again thank you all for your thoughts prayers and donations. It means more to me than you know. Thanks again.
Not very talented at selfies.
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It's been a little while since my last update, and quite frankly I've been to depressed too. Right now I feel like I have let all of my supporters down, with the way my body has reacted to my new MS drug. I was very optimistic this last October after going to KU Medical Center. Unfortunately in the rush to start me on the medication the drug company had my stop cold turkey an antidepressant medication. This put me into withdrawl from the antidepressant. Which was the first issue I had to face starting my new med. A few weeks after my initial dose I caught I felt like I was gonna be Patient Zero for the zombie apocalypse. I had almost ever infection that a person can get, nasal, lung, eye, bowel, etc. I won't go into gory details about but we did go through a lot of toilet paper. It took one round of steroids and three rounds of antibiotics, an adjustment to my MS medication and three months before I started feeling better physically. Needless to say my mind wasn't right over this time frame being sick, and weak for three months not being able to work, not being able to do much other than go to the bathroom, my depression increase a week before Christmas I got into see Mt Psychiatrist got me on another anti depressant. This seemed to be working, until I went back to the Doctor for lab work. Unfortunately the new medications or another infection has my liver enzymes elevated to levels that we should be "concerned" about. Now, we have to wait until April to do another blood test to see if my liver has calmed down or if that will be another issue to address. Good news is my eye exam was fine. I know this is a lengthy update, but I need to get all of this out of my head before it explodes. I got back to work two days ago after being out since October. My mental and physical state are improving daily and for that I am truly grateful for. Needless to say being out of work this long has put us in another financial bind. I fought with Short term disability insurance for a year the last time I was out and since Multiple Sclerosis is not quantifiable, they won't approve a claim for it. I am humbly asking again for help. Anything that you can do even if it's just sharing this post helps. Much love to you all. Thank you all in advance.
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Ok, so today is my first dose observation day for my new medication. So far, so good. The new medication is called Gilenya. Possibility for brachicardia, but I'm opptomisticly nervous about getting on this new med, that my heart rate will probably not go down for a week. I should have shaved my sasquatch body for the EKG. Now I look like I have mange from the EKG leads tearing my body hair out. But that is a small price to pay for feeling better. I have to be monitored for 6 to 8 hours today, to make sure I my heart doesn't slow down too much, and can't leave the house. I will let everyone know how it works out. Thank you again for all of your support, thoughts, and prayers.
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Jane Vierthaler Brown
28 months ago

from someone that battle MS I know what you are going through, Hopefully if you are not on disability then at least start the process cuz it can in some cases take years to get

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$5,188 of $10,000 goal

Raised by 31 people in 28 months
Created February 16, 2017
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$200
Aaron Budge
13 months ago

love you man!

CG
$25
Cindy Graham
14 months ago

Prayers for you and much healing!!

NM
$25
Nate Miller
14 months ago
MR
$50
Michael Riney
14 months ago

Good luck Jeremy!

BK
$50
Becky Kimminau
14 months ago
LC
$100
Lu Crow
16 months ago
SC
$50
Shana Carbajal
20 months ago
BK
$100
Becky Kimminau
21 months ago
Jane Vierthaler Brown
28 months ago

from someone that battle MS I know what you are going through, Hopefully if you are not on disability then at least start the process cuz it can in some cases take years to get

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