Jayson's Transportation
Donation protected
I am Jayson's mother. That's our nickname for him. His real name is Joseph Edward Jude Boles IV. Jayson was born 22 years ago. He has spina bifida. His neural tube defect is at the Lumbar 5 and Sacral 1 joint of the spinal column. All the nerves below the L5-S1 juncture are damaged.
What this means is that he can walk by using the mobility in his hips and knees. He has no mobility in his ankles and no real feeling in his feet. He does feel pressure, but no pain. While Jayson enjoys being as active and social as possible, this is hampered by his lack of transportation.
Additionally, I have always been grateful that he can walk, but too much physical activity is stressful on him, and he runs the risk of injuring his feet from excessive walking. He also had foot surgery when he was 4 months to repair two club feet, which has left him with small feet (about a size 8 shoe) and a wobbley walk. He also had 4 other foot surgeries between the ages of 13 and 15 to improve his mobility on his right foot, but there only was a slight improvement.
Another aspect of his spina bifida is hydrocephaly, which has caused some brain damage. His I.Q. has been measured at about 86, just below normal. He also is incontinent and requires catheters, medicine, and pads to stay dry.
Three years ago, he walked to town (about 1 mile) and developed two large blisters on his feet. He didn't notice them until he came home and saw that his socks were bloody. It required extreme foot care, including 3 separate intravenous doses of antibiotics to treat for sepsis, a surgery to lance an improperly healed blister, and visits to a local clinic weekly. The nurses and I changed bandages 3 times a day for 19 months. Yes, that's right. It took almost 2 years to heal 2 blisters.
The second summer on his first trip to the beach, the hot sand gave him another blister. Honestly, I almost cried, but fortunately it was on the side of his foot and healed in about 3 weeks.
Shortly after that I bought him a used four-wheeler ATV for $700. After more than $500 worth of repairs over the last 2 years, it's not worth repairing anymore. He needs another one, but I don't have the money.
Here is a link of what I would like to buy him. The extra money is for delivery to our town, insurance, a removeable roof, and a small trailer that I would like to have built for it.
With this, my goal is to give him an opportunity to earn some income from either delivering wood in the winter, or running errands for people like a taxi/hauling service.
Finally, I believe Jayson is very fortunate for someone with spina bifida. He walks; many children don't. Also, he suffered very few complications when he was younger, but as he becomes older, it is more obvious that he needs more support, not only financially, but physically and emotionally as he realizes how limited his options are with this handicap.
I would not be asking for this money except that my own efforts at trying to build a second income are stalled, and I'm beginning to doubt my effectiveness. Here is the website that I've been building: http://www.createmyhomeschool.com It has been up for about 19 months and has cost me $600 and netted me $13. I'm not saying that I'm giving up, but I must be realistic too. I get about 8,000 page views per month.
This is not the only thing that Jayson needs, but if this small request is unsuccessful, there is no need to ask for more.
Thank you very much for reading my request.
What this means is that he can walk by using the mobility in his hips and knees. He has no mobility in his ankles and no real feeling in his feet. He does feel pressure, but no pain. While Jayson enjoys being as active and social as possible, this is hampered by his lack of transportation.
Additionally, I have always been grateful that he can walk, but too much physical activity is stressful on him, and he runs the risk of injuring his feet from excessive walking. He also had foot surgery when he was 4 months to repair two club feet, which has left him with small feet (about a size 8 shoe) and a wobbley walk. He also had 4 other foot surgeries between the ages of 13 and 15 to improve his mobility on his right foot, but there only was a slight improvement.
Another aspect of his spina bifida is hydrocephaly, which has caused some brain damage. His I.Q. has been measured at about 86, just below normal. He also is incontinent and requires catheters, medicine, and pads to stay dry.
Three years ago, he walked to town (about 1 mile) and developed two large blisters on his feet. He didn't notice them until he came home and saw that his socks were bloody. It required extreme foot care, including 3 separate intravenous doses of antibiotics to treat for sepsis, a surgery to lance an improperly healed blister, and visits to a local clinic weekly. The nurses and I changed bandages 3 times a day for 19 months. Yes, that's right. It took almost 2 years to heal 2 blisters.
The second summer on his first trip to the beach, the hot sand gave him another blister. Honestly, I almost cried, but fortunately it was on the side of his foot and healed in about 3 weeks.
Shortly after that I bought him a used four-wheeler ATV for $700. After more than $500 worth of repairs over the last 2 years, it's not worth repairing anymore. He needs another one, but I don't have the money.
Here is a link of what I would like to buy him. The extra money is for delivery to our town, insurance, a removeable roof, and a small trailer that I would like to have built for it.
With this, my goal is to give him an opportunity to earn some income from either delivering wood in the winter, or running errands for people like a taxi/hauling service.
Finally, I believe Jayson is very fortunate for someone with spina bifida. He walks; many children don't. Also, he suffered very few complications when he was younger, but as he becomes older, it is more obvious that he needs more support, not only financially, but physically and emotionally as he realizes how limited his options are with this handicap.
I would not be asking for this money except that my own efforts at trying to build a second income are stalled, and I'm beginning to doubt my effectiveness. Here is the website that I've been building: http://www.createmyhomeschool.com It has been up for about 19 months and has cost me $600 and netted me $13. I'm not saying that I'm giving up, but I must be realistic too. I get about 8,000 page views per month.
This is not the only thing that Jayson needs, but if this small request is unsuccessful, there is no need to ask for more.
Thank you very much for reading my request.
Organizer
Diana Boles
Organizer
El Paso, TX
